Pafupifupi 16 peresenti ya anthu omwe ali ndi matenda a Down syndrome amakhalanso ndi celiac.
Anthu omwe ali ndi matenda otchedwa Down syndrome, omwe amapezeka ndi matenda a chibadwa, amayamba kukula ndi matenda omwe amapezeka pamtunda kuposa anthu onse. Ndipotu, matenda a leliac angakhudze anthu 16 mwa anthu 100 alionse ndi matenda a Down syndrome.
Nchifukwa chiyani izi zimachitika? Mwatsoka, madokotala sali otsimikiza. Koma kugwirizana kwakukulu pakati pa zinthu ziwirizi ndizo zomwe makolo ndi osamalira anthu omwe ali ndi matenda a Down syndrome amafunika kumvetsetsa, kuti athe kuyang'ana zizindikiro za matenda a leliac ndi kupeza mayeso oyenera , ngati n'koyenera.
Zoopsa za Syndrome ndi Matenda
Matenda otsika amachokera ku vuto ndi majini anu. Aliyense ali ndi magawo 23 a majini (mumapeza hafu ya awiri ndi mayi anu ndi hafu kuchokera kwa abambo anu), koma anthu omwe ali ndi matenda a Down syndrome ali ndi zovuta zowonjezera m'magazi ena awiri. Zimenezi zimapangitsa kuti akatswiri a sayansi ya zamoyo azitchula kuti "trisomy 21," dzina lachidziwitso la Down syndrome.
Zowonjezera zowonjezerazi zimachokera ku dzira la amayi anu kapena ubwamuna wa abambo anu, ndipo chiopsezo cha matenda a Down syndrome chimawuka ndi zaka za amayi (ndipo mwinamwake bamboyo, ngakhale si onse ochita kafukufuku amaganiza izi). Pafupifupi mwana mmodzi mwa ana 700 onse obadwa ku United States chaka chilichonse-pafupifupi 6,000 ana onse-ali ndi matenda a Down syndrome.
Anthu omwe ali ndi matenda a Down syndrome ali ndi nkhope zosiyana , kuphatikizapo maonekedwe a amondi, makutu ang'onoang'ono ndi pakamwa, ndi mutu wazing'ono womwe umakhala wokhazikika kumbuyo.
Amakhalanso ndi minofu yochepa, ndipo nthawi zambiri amakhala ndi zovuta zokhudzana ndi matenda omwe amachokera ku masomphenya ndi kukhumudwa kumva kumtima. Ana onse ndi achikulire omwe ali ndi matenda a Down syndrome ali ndi vuto lina laluntha, ngakhale kuti mlingo wa izi ungasinthe kwambiri kuchokera kwa munthu ndi munthu.
Mavuto ndi machitidwe odyetseratu zakudya amakhalanso ofala kwa omwe ali ndi matenda a Down syndrome.
Ana obadwa ndi matenda a Down syndrome sangakhale ndi anus (yomwe ingathe kukonzedwa ndi opaleshoni atangobereka). Pafupifupi 5 peresenti mpaka 15 peresenti ya anthu omwe ali ndi matenda a Down syndrome angakhale ndi matenda otchedwa Hirschsprung, amene amapezeka pamene matumbo akulu sagwira ntchito bwino. Izi zingafunike opaleshoni kuchotsa gawo la matumbo akulu omwe sagwira ntchito.
Matenda a Celiac: Mkhalidwe Wachibadwa Wina
Monga matenda a Down syndrome, matenda a celiac ndiwo maonekedwe a chibadwa- mwachilankhulo, muyenera kukhala ndi "matenda enaake" kuti mukhale ndi vutoli. Komabe, palinso zinthu zina zomwe zimakhudzidwa, zina zomwe asayansi sanazindikirepo. Sikuti aliyense amene ali ndi zotchedwa "matenda a chilonda" amathamanga ndi matenda a leliac.
Matenda a Celiac amakhalanso ndi chikhalidwe chokha , chomwe chimatanthauza kusokoneza gawo la thupi lanu ndi chitetezo cha thupi lanu. Pamene muli ndi celiac, kudya zakudya zopangidwa ndi limodzi la zipatso zitatu zowonongeka -kudya, balere, kapena rye-zimapangitsa chitetezo chanu cha mthupi kuteteza ndi kuwononga intumbo yanu yaing'ono. Izi zimachepetsa kuthekera kwanu kuti mupeze zakudya zofunikira kuchokera ku chakudya. Mu mawonekedwe ake oopsa kwambiri, matenda a leliac angayambitse matenda osowa zakudya m'thupi, kuchepa kwa magazi m'thupi, komanso kuopsa kwa lymphoma.
Anthu omwe ali ndi matenda a Down syndrome ali ndi chiopsezo chokwanira cha matenda omwe amatha kudzipha, ndipo ofufuza amakhulupirira kuti anthu 16 pa 100 alionse omwe ali ndi matenda a Down syndrome ali ndi matenda a celiac. Izi ndizopambana kwambiri kuposa pafupifupi 1 peresenti ya chiwerengero cha anthu ambiri. Akatswiri amalimbikitsa makolo kuti azikhala ndi ana omwe ali ndi matenda otchedwa Down syndrome omwe amawoneka kuti ali ndi matenda oopsa omwe ali ndi zaka makumi awiri ndi zitatu.
Ana omwe amawonetsa chithunzichi amafunikira kuchita njira yotchedwa endoscopy kuti madotolo ayang'ane mwachindunji ndi kusonkhanitsa zitsanzo zawo za m'mimba. Izi zingawoneke ngati ndalama zambiri, koma ndizofunikira kuti mupeze chitsimikizo cha matenda odwala matendawa .
Komanso, makolo ambiri omwe ana awo apeza mapeto osonyeza kuti mwana wawo akuyenda pamsasa popanda mavuto, komanso kuti zimakwiyitsa kwambiri makolo kusiyana ndi ana.
Kuzindikira Matenda a Kachilombo Kupitirira Kukula
Ngakhale matenda anu a Down syndrome akuwonetsa zosautsa za matenda a celiac monga wamng'ono, musamalole kuti muteteze. Ngakhale achikulire akhala atangophunzira kumene ali ndi celiac , ndipo n'zotheka kukhala ndi vuto nthawi iliyonse. Sikuti ndi chikhalidwe cha ubwana chabe.
Zizindikiro zodziwika bwino za matenda a leliac zikuphatikizapo madzi otsekula m'mimba, kutopa, kutaya thupi, ndi kuchepa kwa magazi m'thupi . Komabe, anthu ambiri alibe zizindikiro za "classic", ndipo m'malo mwake ali ndi zizindikiro zomwe zingaphatikizepo kudzimbidwa , kupweteka , kuphatikiza tsitsi . Ana omwe ali ndi matendawa amatha kukula pang'onopang'ono kusiyana ndi anzawo ndipo angathe kukhala achidule ngati akuluakulu.
Mavuto monga kuchepa nkhawa ndi matenda ovutika maganizo komanso ovutika maganizo angakhalenso ofala kwa anthu omwe ali ndi matenda a chilili, ndipo zonsezi zimachitika kwa anthu omwe ali ndi matenda a Down syndrome.
Kafukufuku wina, wotsogoleredwa ndi madokotala ku Boston Children's Hospital, anapeza kuti zipatala zapadera za matenda a syndrome sizifufuza nthawi zonse zizindikiro za matenda a leliac, makamaka pamene zizindikiro siziri "zizindikiro zapamwamba" zomwe zimagwirizanitsidwa ndi chikhalidwe. Phunzirolo linatanthauzira kudzimbidwa ndi mavuto a makhalidwe monga zizindikiro zomwe nthawi zambiri zimaperekedwa ndi osamalira ana omwe pambuyo pake anayesedwa matenda oopsa.
N'zotheka kukhala ndi matenda a Celiac popanda chizindikiro chilichonse , koma magulu awiri ochita kafukufuku apeza kuti anthu omwe ali ndi matenda a Down syndrome omwe amakhala ndi matenda a celiac amakhala ovuta kwambiri kuposa kuti asakhale ndi zizindikiro zoonekeratu, makamaka kukula kwake. Kwenikweni, kafukufuku wina anapeza kuti ana a Down syndrome amene adatengedwa kumene kuti ali ndi matenda a leliac anali ochepa kwambiri kuti akhale pansi pa 10th percentile kwa kutalika ndi kulemera.
Komabe, kafukufuku wina amasonyeza kuti zizindikiro zosaonekazi-kuchepa kwa magazi, kutsegula m'mimba, ndi kudzimbidwa-zimapezeka nthawi zambiri mu Down syndrome ana opanda celiac. N'zotheka kuti anthu omwe ali ndi matenda a chilondawa azikhala ndi chithokomiro chochepa, chomwe chikhoza kuchitika pakakhala kulibe matenda enaake omwe ali ndi matenda a Down syndrome. Choncho, ochita kafukufuku adati, osowa chithandizo ndi odwala akufunikira kukhala tcheru ndi kuwunika mawonekedwe.
Pali nkhani zabwino: phunziro lalikulu lochokera ku Sweden linasonyeza kuti anthu omwe ali ndi matenda a Down syndrome ndi matenda a leliac alibe chiopsezo chachikulu cha imfa kusiyana ndi anthu omwe ali ndi matenda okhawo.
Kusamalira Wina Amene Ali Ndi Matenda Osavuta
Mwatsoka, pakalipano palibe mankhwala omwe amachiza matendawa. Izi zikhoza kusintha m'tsogolomu, koma pakadali pano, chithandizo chokha cha matenda a celiac ndi zakudya zopanda thanzi , zomwe munthu yemwe ali ndi matendawa ayenera kutsatira moyo wake.
Zakudya za gluten zimakhala zosavuta pa pepala, koma zingakhale zovuta pakuchita chifukwa zakudya zambiri zili ndi mbewu za gluten. Pamene mukuphika munthu yemwe ali ndi matenda a leliac, muyenera kuwerenga malemba mosamalitsa ndikupewa kusokoneza kwa gluten ku khitchini.
Ndipotu, mabanja ena amatha kudya zakudya zopanda thanzi kunyumba kuti ateteze thanzi lachilendo. Kudya kunja kungakhalenso kovuta, ngakhale kuti zakhala zosavuta ndi kuperewera kwa menus opanda mchere pa zakudya zosiyanasiyana zofulumira komanso malo odyera mwamsanga.
Mawu Ochokera
Pamene mwana wanu ali ndi matenda a Down syndrome, poganizira kusintha kwakukulu monga zakudya zopanda thanzi zingawoneke zovuta, makamaka ngati mwana wanu ali ndi matenda ena omwe amapezeka kwa omwe ali ndi matenda a Down syndrome. Kulera ana a Down syndrome kapena kusamalira munthu wamkulu kungakhale kovuta, ndipo kuonjezera zakudya zofunikira zodyera sikungakuthandizeni.
Koma pali uthenga wabwino: palibe chifukwa chosiya mwana wanu ma cookies, pizza, ndi zina zomwe mumakonda, popeza kuti zakudya zonsezi za gluten zilibe bwino. Komanso, mutadziwa bwino kuphunzirira komwe kumabwera ndi zakudya, mumapeza kuti chidzakhala chachiwiri, ndipo mukhoza kuwona kuti mwana wanu amadya zakudya komanso zizindikiro zina zimapindulitsa.
> Zotsatira:
> Ludvigsson JF et al. Matenda a Celiac ndi Down Syndrome Kufa: Phunziro la Mdziko Lonse. BMC Mankhwala. 2017 Jan 31; 17 (1): 41.
> National Down Syndrome Society. Matenda a m'mimba ndi Down Syndrome.
> Mårild K et al. Down Syndrome imayanjanitsidwa ndi Kuopsa Kwambiri kwa Matenda a Celiac: Phunziro Loyendetsa Bwino Padziko Lonse. Journal of Pediatrics. 2013 Jul; 163 (1): 237-42.
> Pavlovic M et al. Kuchenjeza kwa Matenda Osavuta mu Matenda Aakulu - Zakale Zatsopano ndi Zatsopano. World Journal of Clinical Cases. 2017 Jul 16; 5 (7): 264-269.
> Sharr C et al. Kuzindikira Matenda a Celiac kwa Odwala ndi Down Syndrome. Genetics Medical Journal, Gawo A. 2016 Dec; 170 (12): 3098-3105.