Pewani zolakwa zopatsa mphatso ndi malangizo awa
Ngati munthu wapadera pamndandanda wanu wamaphunziro akukhala ndi multiple sclerosis (MS), mukhoza kudabwa zomwe muyenera kuchita komanso musaganize kuti mukuwapatsa. Ngakhale mphatso iliyonse yochokera pansi pamtima iyenera kuyamikiridwa, pali malingaliro angapo kuti mukwaniritse mwayi wanu wopambana mphatso.
Mphatso Zopewera Kupatsa Anthu Amene Ali ndi MS
Tiyeni tiyambe ndi mphatso zomwe muyenera kupeĊµa kupereka kwa omwe ali ndi MS.
Chilichonse Chimene Chimakwiyitsa
Izi ndizovuta ayi-ayi kwa munthu yemwe ali ndi MS amene akupirira zovuta za tsiku ndi tsiku za kusokonezeka kwa chidziwitso . Gag mphatso monga kuimba anthu a chipale chofewa kapena mitu ya nyongolotsi zimakhumudwitsa anthu ambiri, koma kwa anthu ena omwe ali ndi MS, nyimbo yomwe imachokera ku chinthu choyimba kapena kuvina imatha kuyambitsa zokambirana kapena kuyesa kumasuka.
Muyenera kuganizira mozama za mphatso zomwe zimapanga phokoso, monga maola okalamba kapena akasupe aang'ono. Ngakhale kachigawo kakang'ono ka maselo a ubongo "kulandidwa" ndi zizindikiro zomveka za phokoso lakumbuyo zingachepetse munthu yemwe ali ndi MS pansi kapena kutengera zinthu zofunika kuziiwala.
Nyengo Matiketi
Mukhoza kutanthawuza bwino poyesera kuthandiza munthu amene ali ndi MS "kutuluka m'nyumba kwambiri." Njira yabwino yochitira zimenezi kusiyana ndi kuwapatsa mphatso yomwe imafuna kukonzekera, kukonzekera, ndikukakamiza anthuwa kuti azikhala "osangalala" pafupipafupi maziko?
Koma vuto ndilo kuti munthu yemwe ali ndi MS sakudziwa momwe angamvere m'maola angapo, mocheperapo pa tsiku lapadera mwezi uliwonse.
Pamene munthu yemwe ali ndi MS akunena kuti watopa, kawirikawiri zimakhala zosokoneza mphamvu za MS kutopa .
Ndipotu, anthu ambiri okhala ndi MS samadziwa kuti chizindikiro cha MS chidzachoka liti "chokwiyitsa" mpaka pamene chimalepheretsa kugwira ntchito, kapena osachepera, kumapangitsa munthu kusangalala.
Ngati mukufuna kusangalala ndi ntchito ndi munthu yemwe ali ndi MS, afunseni mafunso angapo monga:
- "Ndi nthawi yanji yomwe mumakhala nayo nthawi yabwino?"
- "Kodi mumakonda brunch yamtendere kukhala ola limodzi losangalatsa?"
Kuti mupange mphatso yapaderadera, muuzeni munthuyo ndi MS kuti simungamve kupweteka kwanu ngati mutapempha nthawi zingapo musanapite nawo.
"Zosangalatsa" Mphatso
Chonde musapatse wina ndi MS chithunzi cha phiri ndi ndemanga yokhoza kuchita chirichonse chimene mumaika malingaliro anu. Munthu yemwe ali ndi MS amafunikira zoposa mawu olimbikitsa kuti atenge zovuta zenizeni. Zomwe zimatanthauza zingakhale zopweteka.
Pewani mphatso ndi uthenga wachipembedzo pokhapokha mutakhala pachibwenzi ndi munthuyu ndipo musamangodziwa zomwe chikhulupiriro chawo chimatanthauza kwa iwo, koma momwe angasankhire ndikukhala nawo pamoyo wawo. Zomwezo zimapita ku mauthenga andale. Musatanthawuze kuti anthu omwe ali ndi MS ali abwino kapena oipira bwino chifukwa purezidenti kapena wandale wina ali mu ofesi.
Zinthu Zokhudza MS
Pali zinthu zina zokongola komanso zosangalatsa kunja uko za MS, monga zozizwitsa t-shirts, mugs, ndi mabandeti, ambiri ochokera ku mabungwe othandizana ndi MS . Koma pokhapokha mutakhala ndi MS, simungapereke mphatso imodzi kwa munthu yemwe ali ndi MS.
Chomwe chingakhale chokongoletsa kapena chothandiza kwa anthu omwe ali mu gulu lomwelo akhoza kukhumudwitsidwa pamene aperekedwa ndi munthu akunja.
Mphatso Zili ndi Uthenga Woyenera
Anthu omwe ali ndi MS amawidziwa kuti (monga aliyense) "ayenera" kuchita zambiri ndipo "ayenera" kupeza zabwino pazochitika zilizonse. Ambiri omwe amasuta fodya (omwe ali ndi MS kapena omwe alibe) amadziwa kuti "ayenera" kusiya kusuta , ndipo ndani pakati pathu sangapindule ndi kukhala ndi thanzi labwino?
Si nzeru kuuza wina (MS kapena ayi) zomwe "ayenera" kuchita, osati ngati mphatso monga zojambula zojambula kapena buku la "Chikuku Chakudya" cha matenda aakulu komanso madalitso ake.
Izi zikhoza kutanthauza kuti MS ndi vuto la munthu, kapena kuti ali ndi mphamvu yowononga matenda awo kuposa momwe amaganizira. Mauthenga amtundu umenewu akhoza kukhumudwitsa, ndicho chinthu chomaliza chimene mukufuna kwa wokondedwa wanu.
Gulu Lodabwitsa
Monga momwe munthu yemwe ali ndi MS sangathe kukonzekera zinthu miyezi isanakwane, amafunikira chenjezo pang'ono asanayambe kena. Mwinamwake angafunikirenso kupuma ndi kusunga mphamvu tsiku lomwe amadziwa kuti padzakhala chochitika. Ndiye pali zochepa koma zofunika, ntchito zothandiza kuti azisamalira (mwachitsanzo, mankhwala a nthawi, kudziletsa, nthawi yowonjezera kuyang'ana bwino ngati akudziwa kuti padzakhala chikondwerero).
Maphwando odabwitsa angabweretse munthu yemwe ali ndi mphamvu za MS zomwe akuyenera kuchita kuti akonzekere chochitika chowopsya, komanso kuwaponyera mu chisokonezo chimene sanakonzekere.
Mphatso Zoganizira Zopatsa Anthu Amene Ali ndi MS
Ngakhale pali mphatso zingapo zomwe mungapewe kupereka munthu yemwe ali ndi MS, apa pali mphatso zina zomwe zingabweretse chimwemwe chachikulu:
Onani Zochita Zawo
Ganizirani za zokonda za munthu zomwe mumakonda ndikugula chinachake chogwirizana nazo. Mwachitsanzo, ngati mnzanu, membala wanu, kapena mnzanu akugwira ntchito limodzi ndi MS amakonda kuwerenga mabuku osamvetsetseka, kugula imodzi kuchokera kwa wolemba wina wosadziwika kapena kulingalira khadi la mphatso ku bukhu la mabuku kapena pa intaneti. Ngati amasangalala ndi chilengedwe, khalani ndi bukhu la chithunzi chabwino kapena chomera. Mungathe kuganiziranso ntchito yolembetsa magazini mwezi uliwonse kapena khofi kapena gulu la vinyo.
Perekani Zokondedwa Zawo
Kupereka kwa chisomo cha wokondedwa wanu ndi mphatso yamalingaliro. Izi zikuti, musaganize kuti chikondi chanu kapena chikondi chanu chokondana chikugwirizana ndi MS. Aloleni iwo asankhe, ndipo onetsetsani kuti mukudutsa nazo.
Konzani Chitonthozo Chakudya
Aliyense amakonda chithandizo nthawi ndi nthawi. Ganizirani maimelo kapena kutulutsa zipatso zatsopano, brownies, kapena masewera omwe amawakonda kwambiri. Inde, samalani ngati munthuyu ali ndi zoletsa zakudya kapena kudwala.
Pangani Chinachake
Kupanga chinachake nthawi zambiri kumapita kutalika kuposa kugula chinachake kuchokera ku sitolo. Zimasonyeza nthawi, khama, ndi chifundo-kuyesa kupanga khadi, kumanga kansalu, kuphika chakudya chamadzimadzi, kapena kuyika mkanda.
Kukhalapo Kwanu
Tsoka ilo, anthu ambiri omwe ali ndi MS amadzipatula okha, onse enieni komanso mophiphiritsira. Kuyenda movuta ndi kutopa kungachititse kuti kusiya kwanu kukhale kovuta. Kuonjezera apo, kusungulumwa kwa kukhala ndi matenda omwe ambiri omwe ali pafupi nonse mulibe ndi mapiritsi enieni komanso ovuta kumeza nthawi zina.
Kumbukirani, kupezeka kwanu kupitako kapena ngakhale foni ikhoza kuyenda kutali.
Mawu ochokera
Malangizo omwe ali pamwambawa akutanthauza kukutsogolerani, koma ndithudi, samagwira ntchito kwa munthu aliyense yemwe ali ndi MS. Mwachitsanzo, mnzanu wapamtima amene ali ndi MS akhoza kusangalala ndi phwando lodabwitsa kapena buku lolimbikitsa kuwerenga.
Pamapeto pake, khulupirirani zachibadwa zanu ndikukhalabe woganizira. Kupatsa mphatso ndi zosangalatsa, zokongola ndipo zingalimbitse ubale wanu ndi munthu.