Multiple sclerosis (MS) ndi matenda oopsa a ubongo omwe amakhudza ubongo ndi msana, zomwe zimayambitsa zizindikiro monga kutopa, kupweteka, kufooka, kuvutika maganizo, ndi vuto la m'mimba ndi chikhodzodzo. Mwamwayi, ngakhale kufufuza kwakukulu, akatswiri sanapezebe mwatsatanetsatane "chifukwa chiyani" kumbuyo kwa MS-ndi kusokonekera kumeneku komwe kwachititsa kuti zikhale zovuta kupeza chithandizo.
Izi zati, uthenga wabwino ndi wakuti mwa kufufuza kwambiri, kuzindikira, ndi maphunziro, anthu ambiri akukhala bwino ndi MS ndipo matenda awo adachepetsedwa ndi kuyambitsa matenda atsopano ochiritsira matenda . Komabe, ngakhale kuti akupita patsogolo kwambiri, ntchito yambiri ikufunikanso kuchitidwa. Pano pali mabungwe omwe akutsogolera omwe akulimbikitsidwa kuti apange moyo wabwino kwa iwo omwe ali ndi MS ndipo potsirizira pake akupeza chithandizo cha matenda awa omwe amalephera.
National Multiple Sclerosis Society
National MS Society (NMSS) inakhazikitsidwa mu 1946 ndipo ili ku New York City, ngakhale kuti ili ndi mitu yobalalika m'dziko lonselo. Ntchito yake ndikutseka MS. Koma pakadali pano, bungwe lapaderali lopanda phindu likufuna kuthandiza anthu kuti azikhala bwino ndi matendawa pogwiritsa ntchito kafufuzidwe, kupereka maphunziro apamwamba, kulengeza, kulenga midzi ndi mapulogalamu omwe amalola anthu omwe ali ndi MS ndi okondedwa awo kulumikizana ndi kusintha khalidwe lawo labwino.
Iphatikizani
Cholinga chachikulu cha NMSS ndi kulimbikitsa mgwirizano pakati pa anthu omwe ali ndi MS komanso achibale awo, abwenzi, ndi ogwira nawo ntchito-njira yothandizira kupeza chithandizo, motero. Pali zochitika zingapo zomwe zimathandizidwa ndi NMSS m'dziko lonse lapansi kuti inu ndi okondedwa anu mukhonza kukhala nawo, monga kutenga nawo mbali mu Walk MS kapena Bike MS mwambo kapena kukhala MS Activist.
Zida
Maphunziro ndi mapulogalamu a maphunziro ndizopindulitsa ziwiri za NMSS. Ndipotu, anthu akhala akugwiritsa ntchito ndalama zokwana madola 974 miliyoni pofufuza mpaka pano ndipo akuthandizira kuti apeze kafukufuku wosangalatsa, koma izi zidzasintha maonekedwe a MS.
Mapulogalamu ena ochita kafukufuku omwe akuthandizidwa ndi NMSS akuphatikizapo kufufuza za momwe zakudya ndi zakudya zimathandizira mu MS, stem cell treatment, ndi momwe mzere wa myelin ungakonzeretsedwe kuti ubwezeretse mphamvu. Kuphatikiza pa mapulogalamu a kafukufuku, zinthu zina zamtengo wapatali zomwe zimaperekedwa ndi NMSS zikuphatikizapo gulu lothandizira pa Intaneti ndi MS Connection Blog.
Multiple Sclerosis Association of America
Association Multiple Sclerosis ya America (MSAA) ndi bungwe lopanda phindu ladziko lomwe linakhazikitsidwa mu 1970. Cholinga chachikulu ndicho kupereka thandizo ndi kuthandizira anthu a MS.
Iphatikizani
Njira imodzi yogwirizanirana ndi MSAA ndiyo kukhala "mtsogoleri wa msewu," zomwe zikutanthawuza kuti iwe umafalitsa mawu pa Kusambira kwa MS fundraiser ndikudziwitsa za MS. Izi zikhoza kuchitidwa pafupifupi (kudzera m'magulu a anthu) kapena poyankhula ndi malonda ndi mabungwe ammudzi.
Zida
Webusaiti ya MSAA ndi yogwirizana ndi othandizira ndipo imapereka zipangizo zamaphunziro zambiri. Chinthu chimodzi cholimbikitsana ndicho kusintha kwawo moyo M tsiku ndi tsiku S kubweretsanso kanema komwe kumasonyeza momwe MSAA imathandizira omwe amakhala ndi MS (mwachitsanzo, kupereka chovala chozizira kwa mkazi yemwe MS wake amawotcha ndi kutentha).
Ndiponso, chithandizo chofunikira kwambiri ndi ntchito yanga ya MS My Phone, yomwe ili mfulu kwa anthu omwe ali ndi MS ndi omwe amagwirizana nawo. Pulogalamuyi yatsopano imalola anthu kuti ayang'ane ntchito yawo ya matenda a MS, kusunga uthenga wathanzi, kulenga malipoti a zizindikiro zawo za tsiku ndi tsiku, ndipo ngakhale kulumikizana mosamala ku gulu lawo losamalira.
Pulogalamu Yachidule Yowonjezereka kwa Multiple Sclerosis
Monga bungwe lokhazika mtima pansi lopanda phindu, cholinga cha Project Accelerated Cure Project ya MS (ACP) ndi kuyendetsa mofulumira kafukufuku pofuna kupeza chithandizo.
Iphatikizani
Kuphatikiza pa zopereka, pali njira zingapo zoti mutengere nawo gululi kuphatikizapo:
- Kugwiritsa ntchito Mary J. Szczepanski "Musataye Mtima" MS Scholarship
- Kuyambitsa msonkhano wolemba kalata
- Kusamalira ACP fundraiser
Zida
Chochititsa chidwi n'chakuti ACP ili ndi zowonjezera zowonjezera (zoposa zikwi zitatu) zamagazi ndi deta kuchokera kwa anthu omwe amakhala ndi MS komanso matenda ena othetsa nzeru. Ofufuza angagwiritse ntchito deta imeneyi ndikubwezeretsanso zotsatira ku ACP kuchokera pazokha. Cholinga cha mndandanda wazomweyi ndizochita bwino kwambiri ndikupeza chithandizo kwa MS.
Palinso zothandizira za ACP zomwe zimalimbikitsa mgwirizano ndi kusonkhana kwa ena m'mudzi wa MS, kuphatikizapo MS Discovery Forum ndi MS Minority Research Network.
MS Focus: Multiple Sclerosis Foundation
Multiple Sclerosis Foundation (MSF) inakhazikitsidwa mu 1986. Cholinga choyamba cha bungwe lopanda phindu chinali kupereka maphunziro kwa anthu omwe ali ndi MS pakukulitsa umoyo wawo. Patapita nthawi, MSF inayamba kupereka ntchito kwa anthu omwe ali ndi MS komanso okondedwa awo, kuphatikizapo kupereka maphunziro apamwamba.
Iphatikizani
Njira imodzi yosangalatsa yogwirizanirana ndi MS Focus (ngati muli ndi MS) ndikuyenera kukhala wovomerezeka wa MS Focus. Pulogalamuyi, akazembe amachenjeza za MS m'madera awo, akukonzekera ndikutsogolera otsogolera ndalama, ndikuthandizira anthu omwe ali ndi MS ndi magulu awo osamalira ndi ntchito zoperekedwa ndi MS Focus. Anthu omwe ali ndi chidwi pa pulojekitiyi ayenera kugwira ntchito yoyamba ndipo, ngati avomerezedwa, adzalandira maphunziro apadera kuti awaphunzitse za udindo wawo.
Njira inanso yogwiritsira ntchito (kaya muli ndi MS kapena ayi) ndikupempha chidziwitso cha MS Focus pa Mwezi wa National MS Education ndi Udzidzidzi mu March. Chida ichi chaulere chimatumizidwa kunyumba kwanu ndipo chiri ndi zipangizo zamaphunziro kuti zithandize kumvetsetsa za MS m'dera lanu.
Zida
MSF imapereka zowonjezera zothandizira maphunziro, kuphatikizapo magazini ya MS Focus, mapulogalamu a audio, ndi ma workshop okhaokha. Zimathandizanso anthu omwe ali ndi MS kukhala bwino ndi matendawa powapatsa magulu othandizira komanso magulu othandizira ndalama monga yoga, tai chi, madzi olimbitsa thupi, kukwera pamahatchi, ndi mapulogalamu a bowling.
Komanso, Medical Fitness Network ndi mgwirizano wa Multiple Sclerosis Foundation. Mtanda umenewu ndi bukhu lachinsinsi la pa Intaneti lomwe limalola anthu omwe ali ndi MS kufunafuna ubwino ndi akatswiri olimbitsa thupi m'dera lawo.
Mungachite MS
Kodi Mungapange MS, mwachidule Jimmie Heuga Center ya Multiple Sclerosis, ndi bungwe lachilendo lopanda phindu lomwe limapatsa anthu omwe ali ndi MS kudziwona okha ndi moyo wawo kupitirira matenda awo. Maziko amenewa adakhazikitsidwa mu 1984 ndi Olympic skier Jimmie Heuga, yemwe anapezeka ndi MS ali ndi zaka 26. "Filosofi ya moyo wake wonse", yomwe imaphatikizapo kupititsa patsogolo thanzi labwino komanso kukhala ndi thanzi labwino komanso moyo wabwino, ndi ntchito yaikulu ya Can Do MS.
Iphatikizani
Njira zazikulu zogwirizanirana ndi Can Do MS ndikulandila zochitika zanu zothandizira ndalama, kulimbikitsa mapulogalamu a maziko a maphunziro omwe amagwiritsa ntchito pochita masewero olimbitsa thupi, zakudya, ndi kusamalira mazati, kapena kupereka ku maziko molunjika kapena ku bungwe la Jimmy Huega Scholarship.
Zida
Kodi Mungatani MS imapereka ma webinars pa nkhani zosiyanasiyana za MS, monga madandaulo olemala, mavuto a inshuwalansi, mavuto a chisamaliro, ndikukhala ndi ululu wa MS komanso kupsinjika maganizo. Amaperekanso mapulogalamu apadera omwe amaphunzitsa anthu, monga mapulogalamu a masiku awiri omwe amachititsa kuti anthu omwe ali ndi MS amathandizane ndi anzawo, othandizana nawo, komanso ogwira ntchito zachipatala a MS pamene akugawana zomwe akumana nazo komanso kuphunzira za makhalidwe abwino.
Mzinda wa Rocky Mountain MS
Ntchito ya Rocky Mountain MS ndi kuphunzitsa anthu za MS komanso kupereka chithandizo chapadera kwa anthu omwe ali ndi vutoli. Pachilumbachi akuyambira pa yunivesite ya Colorado, yomwe ndi imodzi mwa mapulogalamu aakulu kwambiri a kafukufuku wa MS padziko lonse lapansi.
Iphatikizani
Ngati mumakhala kunja kwa Colorado, mukhoza kukhala wothandizira wobiriwira, kumene mumapanga mwezi uliwonse kuti muthandizire. Kapena mungaganizire kupereka galimoto yanu yakale ku Magalimoto Othandiza.
Ngati mumakhala ku Colorado, mungathe kupanga timu yanu yoyendayenda ndikugwirizanitsa ndi Multiple Summits kwa MS, kupita ku gala ya pachaka, kapena kukhala membala wa Young Professionals Network.
Zida
Phiri la Rocky MS Center limapereka zipangizo zamaphunziro, osati kwa iwo omwe ali ndi MS, koma kwa mabanja awo ndi osamalira. Zambiri zofunikira zikuphatikizapo:
- Infor MS: Magazini aulere, a pamtunda uliwonse omwe amawunikira kapena kusindikiza omwe amapereka zamakono zafukufuku wa MS komanso zakuthupi za anthu omwe amakhala ndi MS
- EMS News: Tsamba lamakalata lomwe limapereka mayesero ofufuza omwe akugwirizana ndi MS ndi zotsatira zake
Mzinda wa Rocky Mountain MS umaperekanso mankhwala othandizira, monga hydrotherapy, Ai Chi (omwe amadziwika ndi Tai Chi), komanso uphungu, kuwunika kwa anthu olumala, makadi a MS MS, ndi pulogalamu yowonjezera tsiku lachidziwitso.
Mawu Ochokera
MS imakhudza anthu mwapadera, chifukwa chake kulimbana ndi matendawa ndi kusamalira zizindikiro zake kungakhale ntchito yovuta. Mwa kuyankhula kwina, palibe anthu awiri omwe ali ndi zofanana za MS.
Izi zinati, monga mabungwe a MS akupitiriza kulimbana ndi chithandizo ndi kupereka chithandizo chomwe chimathandiza anthu kukhala bwino ndi matenda awo, ndikofunikira kukhalabe olimba pa ulendo wanu wa MS.
> Zotsatira:
> Birnbaum, MD George. (2013). Multiple Sclerosis: Buku la Clinician la Kuzindikira ndi Chithandizo, Zolemba 2. New York, New York. Oxford University Press.
> Ziemssen T. Symptom Management kwa Odwala Amene Ali ndi Matenda Ambiri. J Neurol Sci . 2011 Dec; 311 Suppl 1: S48-52.