Momwe matenda opatsirana olakwika amathandizira
Ngakhale nkhani zaumwini sizingakhale zachizoloŵezi pa About.com, izi ndizofunikira kwambiri pazomwe mungapeze pa webusaitiyi. Ndili nkhani yanga yolakwika ndikufotokozera chifukwa chake ndikugwira ntchito yomwe ndikuchita. Ngati sikunali kulandira chithandizo cholakwika, sindingakhale Mtsogoleri Wanu Wopatsa Mphamvu Wodwala .
Kumapeto kwa June 2004, ndinapeza mtanda wa galasi pamtambo wanga.
Izo sizinapweteke - zinali chabe kumeneko.
Nthawi yomweyo ndinapangana ndi dokotala wanga, ndipo popeza sankadziwa kuti ndi chiyani, ananditumizira kwa dokotala wina wa opaleshoni amene anachotsa madzulo amenewo. "Tikukudziwitsani pamene tikumva kuchokera ku labu," adatuluka ndemanga ya opaleshoni pamene ndinakweza malaya anga ndikukonzekera kupita kunyumba.
Patapita sabata, palibe mawu. Ndinayankhula ndi ofesi ya opaleshoniyo ndipo ndinauzidwa kuti zotsatira sizinabwerere pano. Tsiku lachinayi la July lidapangitsa kuchedwa, kotero ndinadikira.
Patapita sabata lina, dokotala uja adanditcha ine ndi zotsatira za labu yanga. "Muli ndi khansara yosaoneka kwambiri yotchedwa subcutaneous panniculitis-monga T-cell lymphoma," adandiuza.
Kenaka adagwetsa bomba wachiwiri. Ndinauzidwa kuti chifukwa chake zotsatira za labu zinatenga nthawi yaitali chifukwa zotsatira zake zinali zosavuta - kuti labu yachiwiri adaitanidwa kuti ayambe kachiwiri . Ndinawauza kuti, "Mahala awiriwa adziwonetsera okha.
"Tidzakonza udindo wanu wachangu pafupipafupi."
"Posakhalitsa" zinatenga milungu iwiri, si zachilendo monga ndikudziwa kuti mukudziwa ngati munayamba mwasankhidwa kuti muyambe kuyendera. Nthaŵi yomweyo ndinayamba kufufuza pa intaneti kuti ndidziŵe za subchananeous panniculitis-monga T-cell lymphoma (SPTCL).
Zinali zovuta kupeza kalikonse chifukwa, monga dokotala wandiuza, ndizochepa.
Chimene ndinaphunzira chinali chakuti ndi matenda osatha, othamanga. (Ndikudziwa kuti pulojekiti ya mankhwala ku Moffitt Cancer Center yakhazikitsidwa posachedwapa yomwe imawonjezera moyo kwa zaka ziwiri.) Mu 2004, munthu wamkulu kwambiri yemwe ali ndi SPTCL ankawoneka kukhala ndi moyo zaka zingapo, kaya adalandira kapena ayi chithandizo chilichonse.
Nditamuwona katswiri wa oncologist, anakhumudwa kwambiri. Dr. S, ndidzamutcha, wandituma chifukwa cha ntchito yamagazi ndi CT scan, zomwe zonsezi zinabwerera chifukwa cha zovuta zina. Komabe adakakamiza ntchito ya labuyo kuti adziwe kuti palibe umboni wina.
Zinali zopanda nzeru kwa ine. Ndinamva bwino. Ndinali kusewera golf kamodzi kapena kawiri pamlungu. Ndinangodziwa zidutswa zosowa.
Pamene ndinamukakamiza kuti adziwe zambiri, adatchula zizindikilo zanga zowonjezera - kutentha ndi kutuluka kwa usiku. "Koma ndine 52 !," ndinalangiza. "Pa 52 akazi onse ali ndi thukuta usiku ndi kutentha !"
Anatsimikizira kuti zizindikiro zanga sizinali zogwirizana ndi kutha kwa thupi. Mmalo mwake, iye anati, iwo anali zizindikiro za lymphoma yanga. Popanda chemo, anandiuza kuti, ndikadafa kumapeto kwa chaka.
Ndinapempha za kuthekera kuti zotsatira zabubu zinali zolakwika.
Ayi - osati mwayi, adatero. Malasiti awiri anali atatsimikizira okha zotsatira. Kulimbikitsidwa koyamba mankhwala a chemotherapy kunayamba kukwera.
Kuwonjezera pa banja langa komanso mabwenzi angapo apamtima, sindinayambe kugawira ena uthengawo. Bzinesi yanga inali kuvutika kale - kukhala wodzigwira ntchito komanso kukhala ndi inshuwalansi yathanzi yowonjezera kuti chidziwitso changa chinali chokwera mtengo, nayonso. Ndimagwiritsa ntchito nthawi yochuluka ndikufufuza, kudandaula, ndikulipira madokotala ndi mayesero omwe anandiika pa inshuwalansi. Moyo, womwe unatsala, unali kutsika ma tubes - mofulumira.
Panthawiyo inali August, ndipo ine ndinali ndi chisankho choti ndipange.
Chemo, kapena palibe chemo? Ndinaphunzira kuti Dr. S adadwala, ndipo mnzanga Dr. H. anali kutenga mlandu wanga. Dr. H anandifunsa chifukwa chake ndinali kuyembekezera kuti ndiyambe chemo, ndipo ndinamuuza kuti ndikuyesera kupeza wina wa oncologist kwachiwiri. Panali zizindikiro zambiri za mafunso. Yankho lake kwa ine limandichititsa mantha mpaka lero, "Zimene muli nazo n'zosavuta, palibe amene angadziwe za izo kuposa ineyo."
Ngati chirichonse chindichititsa ine kuti ndiyambe kukumba mozama, izo zinali. Tsopano ndinali "wodwala" ndi kukwiya!
Patatha masiku owerengeka, ndinadya chakudya ndi mabwenzi ena amalonda, ndipo palibe amene adadziwa chilichonse chokhudza matenda anga. Magalasi ochepa a vinyo anamasula milomo yanga - ndinagawana nawo matendawa, ndipo, ndithudi, iwo ankakondwera. Koma bwenzi lina linali loposa. Anacheza ndi mnzake wa oncologist ndipo anandiitana tsiku lotsatira kuti andiuze mnzangayo pakali pano akuchitira wina ndi SPTCL ndipo amandipatsa nthawi ngati ndikufuna kukonzekera.
Uthenga wochepa wa uthenga wabwino unayatsa moto pansi pa ine. Ndinapangana kuti ndikaonane ndi dokotala wake sabata yotsatira, kenako ndinakumananso ndi olembapo anga oyambirira kuti ndiperekeko ma CD anga kuti ndipite nawo. Ndinalemba, ndikuyamba kufufuza pa intaneti kuti ndifotokoze mawu omwe sindinamvetsetse ngati ndikudziwa zambiri.
Ngati ndiyenera kufotokoza nthawi yeniyeni pamene ntchito yowunikira ndi kuleza mtima kwa odwalayi inayamba, nthawi imeneyo ndiyo.
Zotsatira za labu sizinalengezedwe. Ndipotu palibe lipoti lomwe linatsimikizira kuti matendawa ndi SPTCL. Mmodzi wa iwo adanena kuti "amakayikira kwambiri," ndipo winayo adati, "zogwirizana kwambiri ndi". Komabe chitsimikizo china cha matendawa osamvetsetseka omwe ndimaganiza kuti sichikuthandizidwa anapezeka.
Kuwonjezera apo, lipoti lachiwiri labu linanena kuti phokoso lachakudya linali kutumizidwa kwa mayesero ena omwe amatchedwa "clonality" - komabe palibe zotsatira za mayesero omwe anaphatikizidwa mu zolemba za faxed kwa ine.
Ndinadabwa kuti ndi chiani, ndipo chifukwa chiyani zotsatirazi sizinalembedwe mu zolemba zanga.
Ndinawunikira ofesi yanga yakale ya oncologist ndikudabwitsa, iwo analibe mbiri ya mayeso a clonality. Kotero, pamene iwo adathamangira kuti apeze izo, ine ndinayang'ana ndendende chomwe mayeso awa ali.
Chikhalidwe, chimatha, chimatsimikizira ngati maselo onse osadziwika akuchokera ku chingwe chimodzi .
Mwachidule, ngati chitsimikizo, mayeserowa amatsutsa kwambiri khansa, monga lymphoma.
Pamene ine potsiriza ndinalandira kopi ya lipoti la lemba lotsiriza, ine ndinaphunzira kuti izo zinali zoipa.
Pamene ndikudikira kukawona dokotala wanga watsopano, ndinayamba kufufuza zotsatira. Ndinayang'ana mmwamba zosiyanasiyana (kumbukirani gentian violet kuchokera ku sayansi ya sekondale?), Makalata achi Greek ndi mankhwala. Potsutsana ndi zotsatira zake, zinakhala zomveka bwino kwa ine kuti sindinakhale ndi khansa, ziribe kanthu zomwe mabala awo ndi a oncologist amaganiza.
Panthawi yomwe ndinapita kukacheza, ndinapatsidwa mphamvu ndikuthamangitsidwa. Ndinali wotsimikiza za zotsatira zanga, ndipo ndinamuuza zonse zomwe ndaphunzira. Anandifunsa, adakatengera mabuku angapo pamasamu ake, ndipo anandithandiza kuphunzira zambiri. Podziwa kuti SPTCL inali ndi zaka zosachepera 100 zomwe zinaperekedwa kwa zaka khumi zapitazo kuti ndiuzidwe kuti ngakhale nditakhala ndi SPTCL, ndibwino kuti ndizitsatiridwa ndi dzuwa kusiyana ndi chemo.
Kenaka dokotala wanga watsopano adalangiza kuti chithunzithunzi changa chizitumizidwa kwa katswiri ku National Institutes of Health, mbali ya boma la US, kuti awonenso. Patapita masabata atatu, kumapeto kwa September, ndinapatsidwa chitsimikiziro chakuti, kwenikweni, ndinalibe khansa .
Chidziwitso chokonzedweratu chinali cha panniculitis, kutupa kwa maselo ambiri. Sizinayambitse vuto limodzi kuyambira pamenepo.
Mpumulo? Ndithudi. Koma choyamba changa chinali ngati mkwiyo.
Ndipotu, ndikadakhala ndi chemo ndikupulumuka, akanandiuza kuti ndachiritsidwa ndi matenda omwe sindinayambe nawo. Ndipo mochititsa mantha, ndinapeza milandu pa intaneti ya anthu omwe adapezeka kuti ali ndi SPTCL ndipo amachiritsidwa ndi chemo yemwe adamwalira panthawi yachipatala; Ma autopsies adasonyeza kuti sanayambe nawo SPTCL. Milandu inali itapambana.
Zomwe zinachitikirazi zasintha moyo wanga m'njira zambiri . Chifukwa chimodzi, ndakhala ndikukhulupirira kuti zonse zimachitika chifukwa.
Kotero matenda osokoneza bongo awa anandikakamiza ine kukayikira - nchiyani chomwe chikanakhoza kukhala chomwe chachitikira?
Zimenezi zinanditsogolera ku chinthu chofunika kwambiri chimene ndachita m'moyo wanga. Mu 2006, ndinasintha ntchito kuti ndiyambe kuthandiza ena kuti adzithandize okha kuti ayende mumsasa wa America . Ndilemba zolemba zothandizira odwala pano pa About.com. Ndinalemba mabuku anayi. Ndimalankhula ku dziko lonse lapansi ndi ku Canada pa nkhani zothandizira odwala.Ndipo ndinakhazikitsidwa ndikuyendetsa bungwe la odwala omwe ali odziimira okha - anthu omwe ali kunja akuthandiza anthu ena - monga inu - tsiku ndi tsiku kuti mupite kuntchito yaumoyo kuti apeze zomwe iwo zosowa. (Fufuzani zambiri za zinthu izi zonse zanga.)
Zikafika poti chinthu choipitsitsa chomwe chandichitikira ine (ndikudziwitsidwa molakwa), m'kupita kwanthawi, chinthu chabwino kwambiri chimene chinandichitikira, nanenso.
Chidziwitso ndi chinthu champhamvu, ndipo makamaka pamene mutagawana.
........ Zosintha: 2011 .........
Kugwa kwa 2010, ndinawerenga buku lakuti Immortal Life la Henrietta Lacks , lolembedwa ndi Rebecca Skloot, zomwe zinandichititsa kuyamba kudzifunsa chomwe chinachitika ku "mtanda" wanga - chifuwacho chinachotsedwa kwa ine mu 2004 chomwe chinasokonezedwa.
Ndipo zomwe ndinaphunzira! Kuyambira yosungirako kupita ku zopindulitsa, pali zambiri zomwe zikuchitika ndi matupi athu omwe achotsedwa kwa ife. Phunzirani zambiri apa zomwe zimachitika ku magazi, maselo ndi zina zowonongeka za thupi , kenaka werengani nkhani za zomwe ndaphunzira zokhudzana ndi chotupa changa komanso komwe kuli lero.
........ Zosintha: 2013 .........
Patatha zaka zisanu ndi zitatu ndondomeko yanga yapachiyambi ndi zotsatira zake zolakwika, bulu latsopano linawonekera ...
Ndinalemba ulendowu chifukwa ndinazindikira mwamsanga kuti kukhala wodwala wamphamvu ndi wolimba mtima anasintha zonsezi.
Ndilowereni ine paulendo! Zaka zisanu ndi zitatu pambuyo pake - Mutu Wachiŵiri umatsimikizira kuti Mphamvu Zosintha Zonse