Anthu ena amalankhula momasuka za multiple sclerosis (MS) ndi aliyense yemwe amakumana naye, pamene ena akuganiza kuti izi ndizopadera zomwe ziyenera kuululidwa pa nthawi yoyenera . Izi zimapangidwa kukhala zovuta kwambiri pokhudza chibwenzi. Timafuna kukhala owona mtima ndikusunga pamene tikuyesera kuti tiwone momwe timamvera ndi munthu wina.
Kotero ndi nthawi yanji yabwino yowonetsera MS yanu mpaka tsiku?
Kuulula Mauthenga Anu
Mutha kukhala mmodzi mwa iwo omwe ali otseguka kwambiri pa udindo wawo wa MS. Komabe, anthu ambiri samaona ngati akukakamizidwa kufotokoza kuti ali ndi MS kwa aliyense amene akukumana nawo, makamaka mudziko lachilendo komanso lopanda pake la chibwenzi. Masautso awa amatsogolera ku nsomba-22: simukufuna kusokoneza anthu omwe angakhale osangalatsa pamaso pa tsiku lanu loyamba, koma kuyembekezera kanthawi kuti muone zomwe zikukula zingapangitse munthu yemwe ali ndi MS kumverera ngati akutsutsa mfundo munthu wina. Izi zingakhale zovuta makamaka ngati mumakonda munthu wina ndikuganiza kuti zingakhale zovuta kwambiri.
Nthawi Yabwino Yokamba za MS
Palibe lamulo lovuta komanso lofulumira pa nthawi yoyenera kufotokozera wanu MS kwa wina. Ngati simunatsegule za MS wanu, mungakhale womasuka kufikira tsiku lachiwiri.
Panthawiyi mwakhala mukuganiza kuti mukufuna kupitiriza kumuwona munthuyu, ndipo adzipeza kuti ndinu wamkulu bwanji. Mwachiwonekere, chidwi chomwecho chinali chokwanira kuti chitsogolere tsiku lachiwiri.
Tsiku lachiwiri limakhala nthawi zambiri pamene pali zambiri zokhudza wina ndi mzake, koma. Tsiku loyambirira ndi labwino komanso labwino kwambiri, koma tsiku lachiwiri ndilochepa pazomwe zikuchitika ndipo zimakupangitsani kukhala omasuka kukhala nokha.
Tsiku lachiwiri ndi pamene zinthu zina "zenizeni" zikhoza kutuluka. Palibe amene akuyembekeza kuti adziŵe za zolakwika za ngongole, kulephera kwa kuphunzira, kusagwirizana koyambirira, kapena chakudya chodabwitsa pa tsiku loyamba.
Palibe "nthawi" yoyenera kutsogolo pa MS yanu. Mukuyenera kusankha. Koma pa tsiku lachiwiri kapena lachitatu kapena lachinai, mumakhala womasuka kwambiri pazochitikazo ndikudziwongolera momveka bwino za nkhani zovuta; osati MS wanu basi.
Momwe Mungauzire Wina Amene Ali ndi MS
Palibe chifukwa chochitira manyazi kapena zovuta. Kuwuza munthu yemwe muli naye MS kumakhala kosavuta kumudziwitsa munthu yemwe muli naye MS. Komabe, kukonzekera pang'ono sikupweteka aliyense. Nazi zinthu zitatu zomwe muyenera kukumbukira.
Konzani zolankhula zanu. Khalani ochepa komanso okoma, koma konzekerani ndikuchita zomwe mukufuna kunena za MS. Kumbukirani, anthu ambiri samadziwa zambiri za MS, kotero muyenera kukhala wokonzeka kupereka kachilombo kakang'ono ka matendawa. Kufotokozera momveka bwino momwe mumaganizira komanso momwe mumaonera za MS kumapangitsa kuti tsiku lanu-kapena wina aliyense, pa nkhaniyi-omasuka kufunsa mafunso.
Konzekerani mawu "osalankhula". Kachiwiri, anthu ambiri samadziwa zambiri zokhudza MS, kupatula zomwe adawona pa West Wing kapena pakufunsana ndi anthu otchuka monga Montel Williams ndi Jamie-Lynn Sigler.
Tsiku lanu lingakhale ndi mafunso omwe mukuganiza kuti ndi osazindikira , koma khalani oleza mtima komanso omvetsetsa. Kumbukirani kuti pali kusiyana pakati pa kukhala wochepa-kuposa-kudziwika komanso osamvetsetseka.
Mwina simungafunikire kunena. Ngati simukukonda munthuyo palibe chifukwa chowawuzira. Mwachiwonekere, ngati tsiku lanu ndi losafuna kuti muwonenso, palibe chifukwa choti "zazikulu ziwululidwe."
Chifukwa Chimene Muyenera Kudikira
Ena akhoza kulimbikitsa kuyembekezera mpaka mutadziwa kuti mukufuna kukhala ndi tsogolo ndi munthuyu kuti mumuzeni za MS wanu. Ndiwo okha amene mumadziwa bwino za momwe mulili, kotero ngati mukufuna kudikirira, ndizo zabwino.
Mwinamwake mukutsatira pang'onopang'ono, kapena simunapezedwe mwatsatanetsatane ndi MS , kapena simukudziwa kuti mumakondadi munthu uyu. Izi ndi zifukwa zabwino zokhala ndi zinthu zokha mpaka nthawiyo ikuwoneka bwino.
Komabe, kuyembekezera motalika kwambiri kungapangitse kuwonjezereka kwina, makamaka ngati wina wa inu adagawana zambiri zaumwini. Kwa ena, zingawoneke kuti mwakhala mukubisala chinachake kapena kukhala osakhulupirika, koma palibe chimene sichikhoza kumvetsetsedwa ndi kufotokozedwa mosavuta. Yankhulani malingaliro anu poyembekezera kuyembekezera za MS mukamaulula "kulankhula."