Magulu Okulankhulira Omwe Amakhudzidwa ndi Khansa ya m'magazi, Lymphoma & Myeloma
Magazi a khansa ya khansa ya m'magazi, a lymphoma ndi a myeloma sangafanane ndi mitundu ina ya khansa. Komabe, palinso magulu othandizira ndi othandizira omwe amathandiza kansanga ya magazi pokhapokha. Kuphatikizanso, mabungwe ena omwe amagwira ntchito yolimbikitsa khansa, monga American Cancer Society, ali ndi zigawo zabwino kwambiri zomwe zimayambitsa khansa ya m'magazi ndi lymphoma.
Leukemia & Lymphoma Society
Leukemia & Lymphoma Society, kapena LLS, ikhoza kukhala gulu lodziwika kwambiri la leukemia ndi lymphoma lobungwe padziko lonse. Yakhazikitsidwa mu 1949, LLS imapereka kafukufuku wa khansa ya magazi, maphunziro ndi odwala, ndipo ikupezeka pa List Forbes ya 100 zopambana za United States.
Ngakhale anthu omwe sagwirizana nawo m'midzi ya khansa yamagazi akhoza kuzindikira chochitika cha pachaka cha fundraiser chomwe chimayikidwa ndi machaputala osiyanasiyana a LLS, omwe amadziwika kuti "Kuwala usiku." Kuwala usiku ndi chochitika chomwe chimapezeka nthawi zosiyana za chaka m'madera osiyanasiyana.
Komabe, kawirikawiri, akukonzekera kuyambira September mpaka November ku North America ndipo nthawi yake imagwirizana ndi madzulo oyambirira omwe akugwiritsidwa ntchito m'nyengo ya kugwa. Ophunzira akukweza ndalama za LLS kutsogolera ku Kuunika kwausiku komwe amanyamula nyali zosiyana kuti ziwonetsere kupulumuka ndi / kapena kutayika kwa wokondedwa.
Gulu la Leukemia & Lymphoma Society in Training, kapena TNT, ndi njira ina yofufuzira pobwezera, makamaka ngati kupirira kwa chikondi kumakukhudzani. Pokhudzana ndi kuphunzitsidwa zamwambo, ambiri a ife tikufunika kuti tilowe muzinthu zonse zomwe tingachite.
Mwina ndichifukwa chake Team In Training ndi LLS ndi pulogalamu yotereyi. Sikuti muli ndi chilango chokhazikika cha pulogalamu yamaphunziro olimbitsa thupi, koma muli ndi chinachake chomwe chimafunika kupereka kwa ena osowa. Pali chinachake kwa aliyense, kaya kuthamanga, kuyenda, njinga, kukwera, kapena kupikisana mu triathlon.
LLS ikuwonetseratu zotsatira zake motere: "Mpaka pano, LLS yapeza ndalama zoposa $ 1 biliyoni mu kafukufuku wopititsa patsogolo chithandizo ndi kupulumutsa miyoyo. Ndalama zopangira LLS zapindula zambiri zomwe zikupita patsogolo kwambiri, kuphatikizapo chithandizo chamakono ndi ma immunotherapies. Kusungidwa kwafukufuku wotsitsimutsa kukuyambitsa kupasuka kwa sayansi yatsopano ndi kupambana kwachipatala. Mankhwala atsopano otetezeka komanso othandiza, omwe sanaganizire, akusunga miyoyo lero. "
Chipatala cha ana a St. Jude's Research Research
Khansa ya m'magazi ndi yofala kwambiri pakati pa ana. Ngati khansara yachinyamata yayandikira ndipo ikukondeka kwambiri, ndiye kuti chipatala cha St. Jude's Children's Research Research, chiyenera kukhala chimodzi mwazinthu zomwe mukuganiza kuti zikuthandizira. Bungwe ili lapatsidwa zilembo za stellar kuti ziwonekere ndi kuwonetsetsa, ndipo ndalama zake zowonjezera ndalama zinali pamwamba pa pafupifupi, monga Charity Navigator.
Ntchito ya St. Jude Children's Research Hospital ndi kupeza machiritso kwa ana omwe ali ndi khansa ndi matenda ena owopsa kudzera mu kafukufuku ndi mankhwala.
Chimodzi mwa zochitika zokondweretsa kwambiri pa khansara chithandizo cha ndalama zophatikizapo zimaphatikizapo zazing'ono zochepa zokha komanso zokwiya. Ngati muli ndi ana m'zaka zam'mbuyomu, St. Jude Trike-A-Thon ndizochitika zomwe zimabweretsa ndalama chifukwa cha vutoli, komanso zimalola ana kusangalala ndikuphatikizira kuthandiza ena m'zaka zawo gulu. Ngati muli ndi chidwi chokonzekera katatu pa tchalitchi cha mwana wanu kapena kusamalira tsiku, pitani ku St. Jude pa Webusaiti ndipo mungapeze mauthenga kuti mudziwe.
Leukemia Research Foundation
Ngati chidwi chanu chiri kupititsa patsogolo kafukufuku wa khansa ya magazi ndi kuthandiza odwala lero ndi mabanja awo, chikondi chimodzi cholingalira ndi Leukemia Research Foundation. Chikondi chimenechi chinaperekedwa ku kuthana ndi khansa yamagazi pogwiritsa ntchito kafufuzidwe pa zomwe zimayambitsa ndi kuchiza ndi kupangitsa miyoyo ya anthu omwe adakhudzidwa ndi matendawa. Leukemia Research Foundation imathandizira kafukufuku wa khansa ya m'magazi kwa akuluakulu ndi ana.
Ndipotu, Leukemia Research Foundation posachedwapa inalandira "nyenyezi zinayi," chiwerengero chapamwamba kwambiri chotheka kuchokera kwa Charity Navigator. Gululi linali ndi mphamvu yowonekera, yopereka udindo, komanso maphunziro a ndalama.
Leukemia Research Foundation ili ndi odzipereka oposa 1,500 omwe akupezeka m'mitu 24 yophunzitsa ndalama. Amapereka odwala zinthu zophunzitsa, kuthandizira maganizo, komanso thandizo lachuma. Amathandizanso kufufuza padziko lonse lapansi. Komanso, Leukemia Research Foundation yakhala ikudzipatulira kupeza chithandizo, ndikukweza ndalama zoposa $ 70 miliyoni pothandizira ntchito yake.
Lymphoma Research Foundation
Lymphoma Research Foundation ndi bungwe lopanda bungwe lalikulu lomwe limapereka ndalama zowonjezereka kuti azipeza kafukufuku wopanga lymphoma. Zimaperekanso zambiri zokhudza khansa imeneyi kwa anthu omwe ali ndi lymphoma komanso ogwira ntchito zachipatala.
Ntchito ya Lymphoma Research Foundation ndiyo kuthetsa lymphoma ndikuthandiza anthu omwe agwidwa ndi matendawa. Amathandizanso odwala omwe ali ndi lymphoma kuyenda mdziko losaoneka bwino la khansa subtypes, mayesero a chipatala, mankhwala ochiritsira, komanso nkhani m'munda.
Multiple Myeloma Research Foundation
Mitundu yambiri ya myeloma , kapena nthawi zina "myeloma," ndiyo mtundu wachitatu wa kansa yamagazi, kuphatikizapo khansa ya m'magazi ndi lymphoma. Mwina chifukwa chakuti ndizochepa kwambiri pa khansa zamagazi zitatu, zimakhala zosawerengeka-kupatulapo zakale za NBC news zimalimbikitsa buku la Tom Brokaw za zomwe zinamuchitikira ndi myeloma. Komabe, myeloma amapeza bwino kwambiri malo ambiri pa Multiple Myeloma Research Foundation, kapena MMRF. Kotero, ngati mukuyang'ana chithandizo ndi stellar accountability, kuonekera, ndi ndalama, MMRF ndi bet.
American Cancer Society
Ngakhale kuti cholinga chake sichidziwika bwino cha khansa ya m'magazi, lymphoma, kapena myeloma, The American Cancer Society (ACS) komabe amapereka zambiri kwa anthu omwe miyoyo yawo yakhudzidwa ndi khansa ya magazi. Zowonjezera zake zingakhale zothandiza kwambiri kwa iwo amene akufunafuna zambiri zokhudza maphunziro pazosiyana zosiyanasiyana za khansa.
Imeneyi ndi imodzi mwazimene ziwerengero zochokera ku zida zothandizira zothandizira zikhoza kukhala zonyenga. ACS sungakhale bungwe losakanikirana bwino komanso lodziŵika bwino pansi pa dzuwa, makamaka pamene likupezeka ngati magawo ambiri a magawo ambiri. Koma, kukhalapo kwake pa intaneti-komanso makamaka kuthekera kwake kufikira anthu omwe ali ndi chidziwitso choleza mtima cha malingaliro omwe amadziwika ndi khansa zosiyanasiyana-amaimira khalidwe ndi mtengo womwe ndi wovuta kuwombera mu chart chart.
Pali njira zambiri zoperekera chikondi monga ACS. Kubwereza Kwa Moyo ndi signature fundraiser ya bungwe, chochitika chomwe mamembala amatha kutembenuka akuyendayenda pamsewu kapena njira yosankhidwa. Malingana ndi okonza zochitika, chochitika chilichonse ndi maola 6 mpaka 24 m'litali ndipo gulu lirilonse limafunsidwa kukhala ndi mamembala pamtunda nthawi zonse kusonyeza kuti khansa sagona konse. Pamene akunena, "Odwala khansa samaima chifukwa atopa, ndipo usiku umodzi, sitinatero. "
Gulu lirilonse limakhazikitsa misasa yawo pazochitikazo ndikupitiriza ntchito yawo yothandizira ndalama polemba zopereka za chakudya, katundu, masewera, ndi ntchito. Zimakhala zowerengera ku cholinga chawo chonse cha kagulu ka ndalama.
Makolo am'sukulu apakati akudziwanso bwino ntchito za tsiku ndi tsiku:
Pulogalamu Yathu Yowonongeka kwa Munda kumabweretsa Relay For Life ku masukulu apakati kumayiko onse. Amapatsa ophunzira, aphunzitsi ndi otsogolera mwayi wokhala nawo mwapadera pochita nawo zikondwerero za anthu omwe agwidwa ndi khansa, kukumbukira okondedwa awo omwe ataya komanso akuthandizira ndalama zothandizira pulogalamu ya khansa komanso ntchito zapakati pa dziko lonse lapansi. Zimathandiza ophunzira kuti achoke m'kalasi ndikusangalala ndi zosangalatsa ndi zochitika zomwe zimayambitsa maphunziro a khansa ndikukhala ndi makhalidwe abwino omwe angachepetse chiopsezo cha khansa.
Zina Zazikulu Zambiri
Magulu ena ambiri amalimbikitsa chidziwitso ndi kupereka chithandizo ndi ntchito zabwino kwa iwo amene miyoyo yawo yakhudzidwa ndi khansa ya magazi. Nazi zina zochepa chabe kuti muwonjezere kundandanda:
Khalani ofanana
Mwinamwake munamvapo za mafupa a mafupa , omwe amatchedwanso kuti hematopoietic stem cell transplants. Kwa odwala ena omwe ali ndi matenda enaake a khansa ya m'magazi ndi lymphoma, kupatsirana kwa maselo, kapena kuponyera mafupa, ndiye chiyembekezo chokha chochiza.
Ndiko komwe Kufananako kumabweramo-ndiko kulembetsa kumene kumafufuza anthu onse okonzeka kupereka maselo awo omwe ali ndi chiyembekezo chofuna kupeza masewero kwa wina amene akusowa kuperekera mafupa.
National Comprehensive Cancer Network (NCCN)
Kwa madokotala, malangizo ochokera ku National Comprehensive Cancer Network (NCCN) amadziwika bwino ndipo amapezeka kawirikawiri. Pokhala ndi zosintha zowonongeka pa kayendetsedwe ka khansa yokondedwa, malangizidwe a mankhwalawa amayesetsanso kuti asamalire mchitidwe wamankhwala pa nthawi yapadera pa malo osiyanasiyana a khansa.
NCCN yakhala ikugwira ntchito yopereka malangizo ofanana kwa odwala, ndi mawu a zachipatala omwe amafotokozedwa ndikuwathandiza anthu omwe ali ndi khansa ya m'magazi, lymphoma, ndi myeloma. Ndalama ndi zosamalira zothandizira ndi NCCN tsopano zikuphatikizapo mndandanda wa mitundu yosiyanasiyana ya khansa ya m'magazi komanso Hodgkin lymphoma ndi mitundu yosiyanasiyana ya lymphoma yomwe si ya Hodgkin .
Kugwirizana kwa Zothandizira Zothandizira Zambiri mu Hematology (ARCH)
Kugwirizana kumeneku kumapatsa mphamvu anthu omwe ali ndi lymphoma kuti azitha kugwira nawo ntchito komanso kuwathandiza kuti asamangokhala okhaokha paulendo wawo. Poyendera webusaiti yawo, anthu amatha kulumikizana ndi mabungwe osiyanasiyana kuti aphunzire za mitundu yosiyanasiyana ya lymphoma, kufufuza njira zamankhwala, komanso kupeza zambiri zokhudza akatswiri ndi thandizo la ndalama.
Masiku ano, malo otchuka a khansa amalengezedwa pa TV. Mwinanso mungazindikire mayina akulu monga Memorial Sloan Kettering Cancer Center ku New York ndi University of Texas MD Anderson Kansala ku Houston. Komabe, kudutsa mtunduwo, pafupifupi 15 peresenti ya odwala khansa ya ku United States amachiritsidwa ku malo akuluakulu a khansa yophunzira. Ambiri amalandira chisamaliro pa mapulogalamu a kansa kapena pafupi ndi mudzi wawo kumene chuma chingakhale chochepa.
Mwa kusonkhanitsa magulu a mapulojekiti ammudzi ndi ubwino woperekedwa ndi mabungwe awa, ARCH imafuna kuti pakhale kuthandizira kwadzidzidzi kupeza mwayi wopezeka kwa odwala lymphoma kumene kukufunika thandizo.
Mawu Ochokera
Monga mukuonera, ngakhale mutapereka malire ku mabungwe othandizira komanso mabungwe omwe ali ofunika kwambiri ku khansa ya magazi, palinso njira zambiri zowonjezera zomwe zimafuna kupereka zopereka. Zaka zaposachedwapa, zopereka zachifundo zakhala zikuyang'anitsitsa. Anthu omwe amapereka ndalama zawo molimbika kwambiri, amafuna kukhala ndi chidaliro chakuti zopereka zawo zikugwiritsidwa ntchito bwino. Zoterezi, zipangizo zosiyanasiyana zowunikira zowonjezera zakhazikitsidwa ndipo zikupezeka pa intaneti.
Anthu amawunika ndi kuyang'ana zinthu zosiyana mu zosowa zawo zothandizira. Kotero, mukulimbikitsidwa kuti muwone momwe mabungwe omwe atchulidwa pamwambawa akuwonetsera malingaliro anu ndi zofuna zanu. Mwachitsanzo, anthu ena samafuna kupereka mabungwe akuluakulu othandizira omwe ali ndi ma CEO omwe amalandira ndalama zambiri, pamene ena ali okonzeka kunyalanyaza zinthu ngati gulu likudziwika kuti likugwira ntchito yabwino.
Mofananamo, ngati ndalama zapadera zili zofunika kwa inu, mapulogalamu ena opereka chithandizo amalemba mndandanda monga momwe ndalama zambiri zimathandizira kuti ndalama zowonjezera zimaperekedwa kwa othandizira. Misewu iyi ikhoza kufanizidwa kuchokera ku bungwe kupita ku bungwe.
> Zotsatira:
> American Cancer Society
> Charity Navigator
> National Comprehensive Cancer Network (NCCN). Odwala ndi Osamalira Resources.