Mukamaganizira za wosamalira, mungaganize kuti mnzanuyo akugwira dzanja la wokondedwa wake, kapena wachikulire akuthandiza kholo lomwe ali ndi mankhwala.
Ngakhale kuti kusamalidwa kawirikawiri ndi ulendo wa mgwirizano ndi kudzipatulira, ndi panthawi imodzimodziyo, ndikudzazidwa ndi zodabwitsa komanso zowonongeka. Kulingalira kotereku kumakhala koona makamaka ngati mukusamalira munthu wodwala matenda ovuta komanso osadziwika monga multiple sclerosis.
Koma uthenga wabwino ndi wakuti, malingaliro abwino, machitidwe abwino othandizira, ndi zizoloŵezi za moyo wathanzi, zakuthupi zakuthupi ndi zamaganizo zosamalidwa zingathe kusamalidwa (ngakhale kuvomerezedwa) bwino.
Nazi malingaliro oyenera kukumbukira monga inu (kapena munthu wina amene mumamudziwa) mukuyamba ntchito yapadera yokhala wosamalira munthu yemwe ali ndi MS.
Dzisamalire Wekha
Zofunikira zenizeni zakuthupi zosamalira wokondedwa ndi MS zidzakhala zosiyana, koma zikhoza kuphatikizapo kusamba, kuvala, kukweza, kudyetsa, kuthandizira ntchito zochizira, kuyendetsa galimoto, ndi kukwaniritsa ntchito zapakhomo.
Ntchito zina zikhoza kukhala zochepa kwambiri, koma zimafuna kukhala ndi maganizo monga:
- Akuitana makampani a inshuwalansi
- Kukonzekera dokotala ndi olemba chithandizo
- Kutenga ndi kupereka mankhwala
- Kusamalira ndalama
Ndicho, kuti muthe kulimbana ndi chiwerengero cha tsiku ndi tsiku cha kusamalidwa ndi kupewa kutengeka, ndikofunika kusamalira thupi lanu ndi malingaliro anu.
Izi zikutanthauza kuonetsetsa kuti mwakhala mukupita kukaonana ndi adokotala anu, komanso kuwonetsa kansa ndi katemera wanu.
Pitirizani kugwira ntchito mwakhama, kugona bwino, ndi kudya zakudya zowonjezera, kotero mumamva bwino ndikukhala ndi mphamvu zogwira ntchito zanu zovuta.
Potsirizira pake, khalani ndi malingaliro anu a thanzi mwa kutenga nthawi yopuma tsiku lonse kuti muzichita zinthu zosangalatsa, zosangalatsa.
Yesani kuwerenga mutu wa bukhu, kuyitana mnzanu pa foni, kapena kuyenda paulendo pamene mnzanu kapena wosamalira wina amasamalira wokondedwa wanu.
Pezani Thandizo
Kusungulumwa ndi vuto lalikulu kwa osamalira ndipo lingayambe kupanikizika kwina, komanso mantha omwe amachititsa kuti azikhala ndi nkhawa. Pofuna kupewa vutoli, ganizirani kuyanjana ndi gulu lothandizira kapena kusamalira mnzanu kapena mnzako. Ndizodabwitsa kuti maminiti khumi a kuseka, kulankhulana bwino, ndi kusokonezeka kungakhoze kuchitira moyo wanu.
Pakati paokha, dziwani zizindikiro za kupsinjika maganizo monga kusintha kwa njala yanu, mavuto ogona, ndi kusangalala ndi zomwe mukuchita kale.
Inde, onetsetsani kuti mukalankhule ndi dokotala ngati mukukumana ndi zizindikiro zirizonse za kupsinjika maganizo, popeza pali njira zabwino zothetsera malingaliro anu.
Dziwani Wokondedwa Wanu
Kulingalira kumvetsetsa kwa MS n'kofunika kwambiri kuti muzisamalira wokondedwa wanu, makamaka pankhani yodziwa zizindikiro zawo, nkhawa, ndi zokhumudwitsa.
Mwachitsanzo, ngakhale munthu amene mukumuyang'anira angakhale wogwira ntchito mwakuthupi, akhoza kukhumudwa kupezeka pamsonkhano chifukwa cha mavuto omwe amalankhulidwa ndi MS kapena chifukwa cha mavuto ndi maganizo .
Pankhaniyi, ndikofunika kulemekeza nkhawa zawo, kupereka chifundo (mwachitsanzo, "ndikupepesa kuti mukuda nkhawa kulankhula pamaso pa abwenzi anu.") Ndipo palimodzi mukugwiritsa ntchito njira yothetsera vutoli.
Chitsanzo china ndi chakuti munthu yemwe ali ndi MS amagwiritsa ntchito njinga ya olumala kapena chipangizo china chothandizira , angathe kukhumudwa (zomveka) ndi malo ogona. Ichi ndi chitsimikizo kwa inu monga wotsogolera akuyang'ana patsogolo ndi / kapena kukhala ndi ndondomeko yobwezeretsera pamene akupita kunja kwa nyumba.
Momwemonso, munthu amene mumamusamalira angasankhe kuti alankhulana ndi adokotala yekha kapena kuti muyankhulana ndi achibale anu za kusintha kwakukulu kwa thanzi kapena zosankha.
Yesetsani kulemekeza izi, ngakhale simukumvetsa bwino kapena kuvomereza nawo.
Dziwani Zosatheka Zanu
Ndikofunika kuti mudzipereke nokha nokha za zomwe maluso anu ndi chitonthozo chanu mukusamalira wokondedwa wanu. Ngati kusamba ndi kuvala wokondedwa wanu m'mawa uliwonse ndikutentha kwambiri, ganizirani kufunsa wachibale wina kuti athandize ndi ntchito imeneyo. Mwinanso, mungathe kukonzekera namwino wothandizira kunyumba kapena kuthandizira kuti muthandizireni maola angapo mmawa uliwonse.
Kumbukirani, nthawi ina, munthu yemwe ali ndi MS angafunike chisamaliro chokwanira kuposa momwe wosamalirayo angapereke. Izi sizili kulephera pa mbali yanu, koma ndi ntchito ya matenda.
Pezani Makhalidwe Abwino
Mu MS, zizindikiro zimakhala zovuta kwambiri ndipo zimayenda mofulumira kuchokera tsiku limodzi kupita kwina. Pochita "kuyenda ndi maganizo", mukhoza kuthandiza wokondedwa wanu ndi MS kumverera bwino (ndi inunso). Izi zimati, kukhalabe wodalirika pamaso pa wokondedwa wanu sivuta. Onetsetsani kuti muli ndi wina yemwe mungathe kuvutikirapo ndikufotokozera malingaliro anu, kaya ndi mnzanu, mnzanu, membala wanu, kapena wothandizira.
Tengani Zopuma
Aliyense amafunika kupuma kuchokera kuchipatala, mosasamala kanthu kuti mukusamalira wachibale kapena ngati mukulipidwa kuti musamalire. Kuwonjezera pa zopuma zazing'ono za tsiku ndi tsiku, nkofunika kutenga nthawi yayitali, monga tchuthi kapena usiku.
Njira imodzi ndikutetezera-mungaganize kukambirana ndi mutu wanu wa National MS Society kuti mupeze zina zowonjezera pa Pulogalamu Yowonongeka Kwawo.
Mawu Ochokera
Chisamaliro ndi ntchito yapadera, ndipo ngakhale nthawi zina zimakhala zovuta mwakuthupi komanso mwamaganizo, zingakhalenso zokhutiritsa, makamaka ndi zipangizo zoyenera ndi zothandizira. Pamapeto pake, khalani okoma mtima mwa kusamalira zosowa zanu ndikutsitsimutsa maganizo anu ndi moyo tsiku ndi tsiku.
Pomaliza, kumbukirani, kukhalapo kwanu ndi chisamaliro chanu ndikwanira. Palibe amene akuyembekeza kuti ukhale wangwiro kapena kuchita zozizwitsa. Choncho khalani otsimikiza kuti dzanja lanu likugwirizanitsa, kukukumbatira kwanu, chiyankhulo chanu, chisangalalo chanu, ntchito yanu mwakhama, ndi khutu lanu lomvetsera limatanthauza dziko kwa wokondedwa wanu.
> Zotsatira:
> Buchanan RJ, Radin D, Huang C. Kusamalira katundu pakati pa osamala osathandiza omwe akuthandiza anthu omwe ali ndi matenda osiyanasiyana. Int J MS Care . 2011 Chilimwe; 13 (2): 76-83.
> Radford T. (2015). National MS Society: A Guide for Caregivers.