Wopulumuka Sandi Nkhani Yogonjetsa Khansa Yamtundu Wopweteka

Mulole zinthu zazing'ono zizipita, ndi kuwauza kuti mumawakonda!

Sandi Johnson anapita kwa mammogram ndipo anatulukira ndi matenda a Chifuwa cha Khansa Yamtundu. Anapirira mankhwala osiyanasiyana: chemotherapy, opaleshoni, ma radiation. Iye ali ndi masewera olimbitsa thupi ndipo ali woyenera, ndipo wakhala akutumikira monga purezidenti wa komiti yake ya sukulu. Sandi ndi gulu lake lothandizira linapangitsa kuti lidutsitse vutoli, ndipo tsopano akukhala mosasunthika. Pano pali nkhani yachisamaliro cha khansa ya Sandi Johnson.

Kuteteza Khansa Yamtundu Wopweteka

Sandi Johnson wakhala akuyang'aniridwa ndi nyundo yotchedwa Inflammatory Breast Cancer . Pothandizidwa ndi banja lake ndi abwenzi ake, mamembala a sukulu, ndi gulu lachipatala, wapulumuka mankhwala ovuta, komanso chiwonongeko cha metastasis. Kupyolera mu zonsezi, iye adasunga magazini, ndipo anakhalabe wolimbikira komanso wotsimikiza. Nkhani yake imayamba ndi katswiri wokhudzidwa ndi chifundo komanso wokhudzidwa ndi ammogram , amene analimbikitsa Sandi ndipo anayamba kuyendetsa mpira.

Sandi anakwatiwa ndi mwamuna wake Gary ali ndi ana awiri, Jake ndi Jordan. Sandi ndi Gary eni ake ndipo amagwiritsira ntchito The Asylum Gym ku Machesney Park, Illinois, ndipo Sandi wakhala Purezidenti wa Bungwe la Sukulu ya komweko kwazaka khumi zapitazo. Ulendo wake umapezeka pa intaneti pa webusaiti yake ya Caring Bridge.

Kufufuza kwa khansa ya Sandi

Zaka zakubadwa: 50
Mitundu ya khansa ya m'mawere: Kutupa Khansa ya m'mimba (3 "ndi 5" chisa / pepala) ndi Infiltrating Ductal Carcinoma (zilonda zitatu = 2 0 zazikulu pafupifupi 3 cm)
Mmene thupi lilililili: 5 mwa khumi ndi awiri abwino
Kutanthauzira kumatupa: Gawo la IV, Gawo 3
Kuchita Opaleshoni: Kugonana kwachilendo koopsa kwambiri komanso kutumiza mitsempha yotchedwa sentinel lymph node biopsy
Kuchiza: Chemotherapy ndi ACT ( Adriamycin , Cytoxan , Taxotere), jekeseni wa Neulasta - miyezi isanu. Kutsekemera kwa malo opaleshoni - masabata 7.
Katemera wotsatira Hormone: Femara .
Kuchiza Kwachidule Metastasis: Mazira - milungu 5 yowonjezera, mlingo wa mwezi uliwonse wa Zometa woperekedwa mwakabisira (onani chithunzi).
Kupezeka pa: 13 August, 2007
Mbiri ya Banja ya khansa ya m'mimba: Palibe

Chinachake chaphwanyika ndipo Chinachake Cholakwika

Ndinadziwa kuti chinachake chinali cholakwika. Ndinali ndi vuto la m'mawere lopweteka (saline) lomwe ndinalifuna , potsiriza pamene ndinali ndi nthawi, ndalowa m'malo. Pakalipano, ndinkatha kunena pang'onopang'ono, kuti chinachake sichinali bwino kupatula kupuma. Mwamwayi, madokotala atapeza kuti akuphwanyidwa, iwo analibe chidwi chofuna kufufuza. Pempho langa la MRI linaletsedwa ndi kampani yanga ya inshuwalansi, ndikukhulupirira, chifukwa iwo ankaganiza kuti ndikuyesera kuwasokoneza mwa kupeza ndalama zowonongeka m'malo mwake. Sindinathe kupeza chithandizo nthawi zonse ndipo zinali zokhumudwitsa.

Mamemogram yochititsa mantha

Pomalizira pake, panthawi yomwe mayi wanga anali ndi zaka zam'mbuyomu , amisiri amatha kunena kuti ndikudwala kwambiri. Pasanapite maola 16, ndinali pa tebulo lachidziwitso ndi chipinda chodzaza ndi anthu omwe anali, poonekeratu, akuwona chinthu chomwe palibe aliyense adachiwona kale. Iyo inali nthawi yoopsya kwa ine. Kuchokera kumeneko, ndinaswedwa ndi chidziwitso, madokotala, matenda, ndi kusimidwa. Zinatsimikiziridwa kuti ndinali ndi matenda opatsirana a khansa ya m'mimba komanso munda wanu wotchedwa Infiltrating Ductal Carcinoma. Khansara yanga inali itafalikira ku nthiti yanga yachisanu ndichisanu ndi chimodzi kumbali yanga ya kumanzere, mchiuno wanga wamanja ndi thumba langa, thoracic, cervical ndi lumbar msana. Awa anali khansara ya Stage IV.

Yachotsedwapo

Njira yothandizira zanga inachitikira mwachangu mofulumira komanso mofulumira. Ndinayamba chithandizo chamankhwala chamakono kwa miyezi isanu, ndipo kenako ndondomeko zogwirizanitsa, zomwe zinatsatiridwa ndi masabata asanu ndi awiri a mankhwala opatsirana. Kuchita opaleshoni kuchotsa mawere ndi khansa kunandichititsa kuchipatala kwa masiku 11. Koma ndinatsala pang'ono kutaya moyo wanga paziwiri zina pa miyezi iwiri. Ndinadwala m'chipatala kwa masiku asanu ndi limodzi ndi matenda otchedwa neutropenia omwe magazi anga anali atagwa pansi mosavuta kuti ndikhale ndi matenda onse omwe ndingagwiritse ntchito. Ndinasungidwa m'dera linalake kuchipatala komwe sindinkawonepo wina aliyense kupatula anamwino ndi madokotala omwe anali oyenerera pazovala zowonekera.

Magazi a Magazi

Nthawi ina yomwe ndinatsala pang'ono kufa ndi pamene ndinapanga magazi mu mitsempha yanga yambiri. Ndinadwala m'chipatala cha December 23, 24, 25, 26 ndi 27. Khirisimasi sikunali. Izi zinali zoopsa ... gehena yopanda malire. Nthawi zambiri ndimamverera kuti imfa ndiyo njira yowonjezera. Ndinakhala miyezi isanu ndi umodzi, nthawi yochuluka, ndikulephera kugwiritsira ntchito mankhwala osokoneza bongo akuyesetsa kulimbana ndi khansa komanso zotsatira zake.

Anapatsidwa Chidule Chachidule

Ndikudziwa kuti chiwerengero cha IBC pachigawo chino ndi 25% kuchipanga kwa zaka zisanu. Ndinayamba kupanga mabwenzi ndi amayi ena atatu omwe ali ndi IBC omwe adamwalira kale pamene ndinapezeka. Ine, inenso, ndinauzidwa kuti ndikhoza kukhala ndi moyo kwa miyezi 6. Miyezi isanu ndi umodzi! Izi sizikanakhoza basi! Ndili wathanzi, ndine wathanzi, ndine woyenera ... ndingakhale bwanji wodwala? Kodi ndingayang'ane bwanji pagalasi ndikuwona mkazi yemwe amawoneka wathanzi ... nthawi zina amakhala wachigololo ... Mkazi yemweyo yemwe madokotala amati sangathenso kuyenda pakati pa amoyo masiku 180 okha. Sizingatheke. Sindikukhulupirira ...

Kupita Kukaona Wizard

Ndikusonkhanitsa banja langa ndipo timapita ku yunivesite ya Wisconsin ku Breast Cancer Clinic ku Madison, Wisconsin. Akatswiri ... kapena mmalo mwanga, maganizo odzichepetsa, a Wizard of Oz. Iwo adzandiwuza ine bizinesi iyi yokhala ndi miyezi isanu ndi umodzi yotsala pa moyo wanga ndi yopusa. Iwo adzandikonza ine. Pambuyo maola awiri ndi gulu la akatswiri ku UW / Madison, ndatumizidwa kunyumba ndikupempha chipembedzero ... sakanakhoza kundichitira kanthu. Nyumba yoyendetsa galimoto ya mphindi 45 inali yopweteka kwambiri pamene kuyendetsa galimotoyo kunali chiyembekezo chodalirika.

Kusintha - Nthawi Yosankha

Paulendo wopita kunyumba, ndinaganiza zobwerera kwathu ku Rockford, kukafika kumudzi wokhala ndi maganizo abwino kwambiri omwe ndinakumana nawo. Sipadzakhalanso kufunafuna malingaliro achiwiri kapena achitatu ... Mzimu wanga ukanatha ngati ndikupempherera wina. Zimakhala zoopsa! Ndikulemba, kuyambira chiyambi cha vuto ili, muwongolera malemba pa webusaiti yanga ya Caring Bridge tsiku ndi tsiku lomwe limapereka anthu omwe amandisamalira maganizo anga pa moyo wanga ngati wodwala khansara. Ndadalitsidwa chifukwa cha zomwe zatchulidwa kuti "zakuda, pamaso panu, zoona" polemba. Ndikunyadira izi. Webusaiti yanga ya Caring Bridge yatenga pafupifupi 190,000 miyezi 16.

Thandizani Network

Thandizo limene ndakhala nalo kuchokera kwa abwenzi ndi abwenzi (ndi gulu lonse) lasuntha kwambiri ndipo chinachake sindingathe kupulumuka mpaka pano. Ndili ndi mwamuna, Gary, ndi ana awiri (Jake, 21 ndi Jordan, 17) omwe akhala akudabwitsa; iwo achita nawo gawo lawo la zowawa. Ine ndi Gary tili ndi masewera olimbitsa thupi, ngakhale kuti ndimathamanga pamene akugwira ntchito muutumiki wa Blue Cross Blue Shield, komanso wothandizira inshuwalansi yanga. (Yikes!) Zakhala zovuta. Ndakhala pulezidenti wa pulezidenti wa sukulu wa chigawo chathu cha sukulu kwa zaka khumi zapitazo ndipo ndakhala ndi anzanga ambiri omwe abwera kudzandithandiza.

Khalani Wovomerezeka Wanu Woposa

Sindingathe kudandaula mokwanira kufunika koyezetsa matenda oyambirira. Chofunika kwambiri, khalani woyang'anira bwino kwambiri. Ngati muwona kuti chinachake chili cholakwika, muyenera PUSHANI njira yanu kuti muyankhe. Ngati ndikanatha kubwerera, sindingathe kukhazikika kuti madokotala atsimikizire kuti 'zonse ziri bwino' chifukwa chakuti ali anzeru kuposa ine ... ali ndi maphunziro ambiri - ayenera kudziwa zomwe akunena ... ayenera kudziwa bwino kuposa ine chitani. Ngati simukukondwera, pitirizani kupita, pitirizani kukankhira. Muli ndi ufulu ku mammogram, ngakhale si nthawi ya chaka chanu. Ngati simukumva chisoni, funsani ultrasound. Ngati simukumva chisoni, funsani MRI. Ngati kufunsa sikugwira ntchito, PEZANI. Muli ndi ufulu wokhutira ndi mayankho omwe mumalandira kuchokera kwa madokotala anu.

Chivumbulutso cha Metastatic

Patapita miyezi inayi, mankhwala anga atatha, ndinapeza kuti khansara yanga yafalikira m'chiuno changa ndi pakhosi. Ndinkangomva kuti ndawonongekadi. Kufalikira? Kale? Ndinayenda mozungulira kwa masiku angapo ndisanazindikire, potsiriza, ndikulimbana ndi moyo wanga. Ndikufuna kukhala ndi moyo. Ndikufuna kuwona wophunzira wanga wazaka 11 kuchokera kusukulu ya sekondale. Sindili wokonzeka kuthetsa maubwenzi omwe ndili nawo ndi ana anga awiri chifukwa cha khansa. Malingaliro anga onse, mphamvu zanga zonse ... zonse zanga zonse zikanatha kupita ku zoyesayesa zonse, ngakhale zodzikonda, kukhala ndi moyo. Icho chinali vumbulutso loona.

Kusunga Molimbika

Miyezi isanu yapitayi, ndinatsiriza maulendo ofunika kwambiri kuti tithetse malo atsopano a khansa. Kuchokera nthawi imeneyo, mayesero a ma diagnostic awonetsa pamene ndili ndi khansara yogwira ntchito mu nthiti yanga yachisanu ndichisanu ndi chimodzi ya mbali yanga ya kumanzere, mnofu wanga wamtundu, wamphongo ndi wachiberekero, mchiuno kumanja ndi kumanzere ndi pakhosi, sikusunthira nthawi. Ine ndikuganiza za izi ngati nkhondo ya chifuniro ... kodi khansara ya khwangwala ikuganiza chiani tsopano? ... kodi ikukonzekera chiani? Ndiyenera kutsogolo patsogolo pa moyo wanga wonse.

Zipangidwe Zatsopano

Ndinakhala miyezi inayi ndikulandira katemera wa saline milungu itatu iliyonse ndikukhala opaleshoni yomwe inayikidwa panthawi ya opaleshoni yanga. Mavavu awa amamangiriridwa ku "zikopa za khungu" zomwe, mwachiwonekere, zidzatambasula khungu langa lachifuwa pachifuwa panga ndikukhulupirira, malo okwanira angapangidwe kuti azikhala ndi ma implants.

Vuto Latsopano: Lymphedema

Panthawi imeneyi, ndinakhalanso ndi vuto losachiritsika lotchedwa lymphedema . Ndikusokonezeka kwa thupi langa lamanjenje, dzanja langa lamanzere linatha kuthetsa madzi. Palibe yemwe akanatha kundikonzera ine kuopsa kwa matendawa ndi kufooka komwe kumagwirizana nawo. Nthaŵi zina, mkono wanga wamanzere ndi mainchesi 7 mpaka 8 kuposa mkono wanga wamanja. Nthawi zambiri ndimazimva chisoni komanso ndikudzimvera chifundo, ndikudziyesa ngati mtanda pakati pa Popeye ndi Frankenstein.

Kuchita Opaleshoni Yowonjezereka, Kuthira Kwambiri

Mlungu watha, ndinachitidwa opaleshoni yomwe inaphatikizapo 1) kuchotsa zipangizo zomwe zinayambika pa opaleshoni yoyamba, 2) kuchotsa zikopa zamkati, 3) zakumwa zamkati zamkati / minofu, 4) kuika implants gel ndi 5) kuchotsa 2 "ndi khungu lachisanu ndi chitatu cha khungu kumbuyo kwanga komwe kunachiritsidwa mosayenera kuchokera ku opaleshoni yoyambirira yokhudza kuphatikiza khungu. Ndikuyembekezeranso inshuwalansi yanga kuti ndivomereze kulipira madola 8,000 pa makina a lymphedema omwe angathandize kuchepa pansi mdzanja langa.

Malangizo Okhudza Inshuwalansi Zaumoyo

Khansa. Izo zandigwira kwanthawizonse ine mwathupi ndi mwamaganizo, osatchula, zachuma. Moyo ndi wovuta kwambiri kuposa ndalama zomwe sindingayembekezere ... makamaka kukhala ndi inshuwalansi yabwino. Ndikuganiza kuti ndizosalungama kuti odwala khansa amayenera kuvutika mu mbali imeneyi. KOMA ... Ine ndidzatenga moyo muzochitika zirizonse zachuma, osati kukhala moyo nkomwe. Ndiloleni, ndikhale wosauka, ndiroleni ine ndikhale moyo. Malangizo omwe ndingapereke kwa onse omwe amagula inshuwalansi ndi kudzifunsa nokha funso losavuta: Kodi izi ndi inshuwalansi yomwe ndikanafuna kukhala nayo, ngati ndikanakhala ndi khansa?

Ali Pano, Kupulumuka

Ndatsatira ulendo wa odwala 15 a IBC kuyambira pamene ndinayamba ulendo wanga. Monga sabata yatha, zomvetsa chisoni koma mozizwitsa, ndine ndekha mwa iwo omwe adakali moyo. Ndimathokoza Mulungu tsiku lililonse chifukwa ndikudziwa kuti aliyense ndi mphatso. Ndikudzifunsa ndekha kuti, "Chifukwa chiyani?" Chifukwa chiyani ndikupitiriza kupulumuka pamene ambiri, ambiri samatero? Kenaka ndimakumbutsidwa kuti: "Ife sitidabwa chifukwa chake ..."

Mwamwayi, Kuyang'ana Pambuyo

Pambuyo pake, 2008 ili kumbuyo kwathu ndipo 2009 yatangoyamba ndi kutsopano kwa tsiku latsopano ... nthawi yokonzekera zinthu zabwino zomwe moyo udzapereka. Ndine wokondwa kukhala wamoyo. Moyo unasinthidwa kosatha ndi matenda anga a kansa koma ndikuthokoza chimodzimodzi. Ndikuyamika Mulungu, ndi banja langa ndi abwenzi ... makamaka onse omwe andipatsa chithandizo chochuluka pa msewu wautali, wovuta womwe ndakhala ndikuyenda ... ndikupangitsa kukhala kosavuta kupirira.