Pali makolo ndi apongozi omwe amadzigudubuza kuti amvetse autism ndikupanga moyo ndi wosangalatsa kwa ana awo ndi zidzukulu zawo. Pali alongo ndi abale omwe amamvetsa bwino kuti moyo ndi autism ukhoza kukhala wovuta komanso wovuta - ndipo omwe mosangalala amapereka kubysitting, respite care, ndi chithandizo chenicheni.
Ndiye, pali mabanja enanso omwe ali ...
osati "zonsezo."
Ziri zovuta kumvetsa chifukwa chake banja lina likhoza kukhala ndi nthawi yovuta ndi autism, makamaka ngati sanagonepopo kale. Mwachitsanzo --
- Ambiri omwe ali achikulire savutikanso ndi kusiyana kwakukulu pakati pa anthu. Ife taphunzitsidwa bwino kuti tiyembekezere mayankho enieni, ndipo pamene sitiwapeza timasokonezeka. Kusiyanitsa kofunika kwambiri (mwana yemwe sali mawu, mwachitsanzo) akhoza kupanga nkhawa yeniyeni.
- Zikhulupiriro zabodza ndi zolakwika zokhudzana ndi autism zingakhale zopweteka. Anthu ena ali pansi pa kusazindikira kuti anthu omwe ali ndi autism akuwopsyeza, sangathe kuphunzira, ndi zina zotero.
- Ana ovomerezeka omwe ali okhwima angathe kuopseza achibale ambiri, omwe amaopa chitetezo chawo komanso chitetezo cha ana awo.
- Achibale ena am'banja amachititsidwa manyazi chifukwa chokhala ndi munthu wolumala m'banja. Izi zikhoza kukhala "zolakwika," koma si zachilendo. Kulemala kwaumwini ndi matenda aumphawi mwachizoloŵezi (ngati molakwika) amawoneka kuti ndi "zofooka," ndipo anthu okhala ndi autism angakhale ndi kulephera kwa luntha ndipo nthawi zambiri (molakwika) amakhulupirira kuti ali odwala m'maganizo.
- Nthawi zina, achibale ambiri amamva kuti "amavala" atafunsidwa kuti apange malo ogona a anthu olumala. Iwo ali ndi njira zawo, ndi miyambo yawo, n_ndibwino kapena molakwika - sakufuna kuti asinthe.
Ndi bwino kunena "chabwino, iwo akulakwitsa: mwana wanga ali ndi autism ndi munthu woopsa ndipo ayenera kuwona zimenezo, makamaka popeza akuyenera kuti akhale achibale!" Koma kunena kuti chinachake sichikupanga icho.
Ngati mukufunadi kuti banja lanu lizithandiza mwana wanu ndi autism, kapena kuti mukhale omasuka pozungulira iwo, muyenera kuyika zothandizira m'malo - onse kwa mwana wanu ndi banja lanu. Muyeneranso kupanga zosankha zovuta zokhudzana ndi ntchito yomwe mukufuna kuti muyike.
Nazi mfundo zochepa zomwe muyenera kukumbukira:
- Taganizirani za momwe mukulowera . Kodi ndikofunikira kupweteka kubweretsa mwana ndi autism ku ukwati wa banja kapena manda? Ngati mwana wanu atha kuchitapo kanthu, asungunuke , asangalatse , kapena asapangitse chidwi chosavomerezeka, izi sizingakhale malo abwino ophatikizidwa. Inde, iye ndi membala wa banja, ndipo ndi ufulu ayenera kulandiridwa ndi onse - koma podziwa kuti sizichitika, mungasankhe kukana zovuta zomwe zingatheke.
- Perekani maphunziro autism . Osati wamkulu aliyense m'banja lanu amasamala kuuzidwa kalikonse za zomwe autism kapena zomwe mwana wanu amafunikira. Ochepa, angakhale othokoza chifukwa cha thandizo lililonse lomwe mungapereke pazomwe amagwirizanirana ntchito, zomwe sizitani, momwe angayankhire ndi kupirira, ndi zina zotero. Kwa anthu omwe ali ofunitsitsa kuphunzira, ndi bwino kupatula nthawi yophunzitsa .
- Dziwani banja lanu nokha kusankha zosankha . Mayi anu angayesere kukukakamizani kuti mukhale naye pa maholide, koma mukudziwa kuti adzatuluka ngati mwana wanu akuchita chilichonse chimene sakuyembekezera. Pokhala ndi chidziwitso chimenecho, mungafunikire kukhala ku hotelo pafupi - ndi kuchepetsa kugwirizana pakati pa mayi ndi mwana wanu. Mwina sangakonde, koma ndibwino kuposa kukuonani konse!
- Ganizirani za kuthawa mwamsanga, kokoma mtima . Anthu ambiri omwe ali ndi autism akudwalitsidwa mwamsanga ndi phokoso lambiri, magetsi, kununkhira, ndi zofuna zogwirizana. Podziwa izi, ndizomveka kukhazikitsa malo othawa padera pamene mwana wanu akuwonetsa zizindikiro za nkhawa. Inde, bwerani kumalo osungira nyama - koma lolani mamembala adziwe "tingafunikire kuchoka msanga." Ngati zinthu zikuyenda bwino kuposa momwe mukuyembekezera mungathe "kusintha ndondomeko" ndi kumamatira.
- Dziwani momwe mungagwiritsire ntchito mphindi yovuta . Mukuyendera limodzi ndi achibale anu kwa maholide, ndipo mwana wanu wa autistic akuwonetsa zizindikiro zomwe akufuna kusungunuka. Kodi mumatani? Tikukhulupirira, mwalankhulana ndi mnzanuyo pasadakhale za malo opanda phokoso omwe mungagwiritse ntchito pa vutoli. Mwanjira imeneyo, inu ndi mwana wanu mungathe kuthamanga ngati mukufunika - ndipo mubwerere mukakonzeka.
- Khalani ndi chithandizo pa dzanja . Pali zochitika monga kubwereza ku malo odyera, paki yosungiramo zinthu, ndi zina zotero, zomwe sizingatheke kuthandizira mwana wa autistic kupirira vutoli komanso pokhala "mwana wabwino", mwana, mlongo, mbale, kapena kholo kwa abale ake . Podziwa kuti ndi choncho, ndi kwanzeru kukhala ndi wina wamkulu wamkulu amene angathe kutenga, mwina pothandiza mwana wanu autistic kapena kuyang'anira ana ena (kapena akuluakulu ovuta) m'gulu lanu.
- Mukhale ndi ndondomeko yochepetsera nkhawa yanu. Ngati muli ngati anthu ambiri, mukufuna kuti achibale anu akhale osangalala ndi inu, amanyadira inu, komanso akhale omasuka ndi inu ndi mnzanu komanso ana. Mukakhala ndi mwana ndi autism, sizingatheke. Mungakhumudwe, kukhumudwa, kapena kukhumudwa monga zotsatira. Kodi mungapewe bwanji nthunzi? Kudziwa kuti muli ndi malo oti mupite ndi maganizo anu osakhala osangalala akhoza kupanga kapena kusokoneza banja.