Malangizo Atatu Oyenera Kuganizira Pamene Mukusamalira Wina Ali ndi ALS
Mosasamala kanthu kuti ndinu mnzanu, mwana, bwenzi, kapena wothandizira, kusamalira munthu ndi amyotrophic lateral sclerosis (ALS) ndi zovuta pa magulu ambiri.
Komabe, ndi malingaliro abwino, chithandizo kuchokera kwa ena, ndi zipangizo zabwino zothandizira, kusamalira munthu ali ndi ALS kungakhale kukwaniritsa. Nazi malingaliro ochepa omwe muyenera kukumbukira pamene mukuyenda ulendo wanu wothandizira.
Dzilimbikitseni Mwa Kudziwa
Zidziwitso pang'ono zimapita kutali kwambiri pakusamalira munthu ali ndi ALS. Pozindikira chifukwa chake munthu amene mukumuyang'anira sangathe kusuntha bwino, ali ndi minofu ndi zowawa, zowawa zomwe zimakumana nazo komanso kuwononga kwambiri (kutchedwa sialorrhea) ndipo kenako amavutika kudya ndi kupuma, mukhoza kukhala wothandizira komanso wothandizira.
Mwa kuyankhula kwina, pokhala ndi chidziwitso chachikulu cha ALS, mudzatha kulongosola bwino mavuto omwe wokondedwa wanu, wachibale wanu, mnzanu, kapena mnzanuyo ali nawo ndipo akhoza kukonzekera bwino kusintha kumeneku-njira yowonjezera njira yowonetsera yosamalidwa bwino.
Funani Thandizo
Zofuna zathu zakuthupi za munthu yemwe ali ndi ALS ndi zazikulu ndipo zimakhala ndi thandizo ndi ntchito za tsiku ndi tsiku monga kusamba, kugwiritsa ntchito chipinda chogona, kudya, ndi kuvala kuti azitha kuyendetsa zinthu zothandizira, ndipo potsirizira pake amadyetsa zipangizo ndi makina opuma, CPAP ndiyeno mpweya wabwino .
Kuphatikiza apo, wosamalira munthu yemwe ali ndi ALS nthawi zambiri amayenera kuyang'anira banja, makamaka ngati ali wokwatiwa kapena wachibale. Izi zikutanthauza kuyeretsa, kutsuka zovala, kulipira ngongole, kupanga dokotala malo, ndi kuyankhulana ndi achibale ena.
Gulu la Zaumoyo la ALS
Kufuna thandizo kuchokera kwa ena ndikofunikira kwambiri.
Muyenera kuyamba ndi gulu la odwala lanu la ALS, lomwe lili ndi:
- Katswiri wa zamaganizo
- Wodwala wa thupi komanso ntchito
- Kulankhula ndi kumeza wodwalayo
- Nutritionist
- Odwala opuma
Gululi la akatswiri a zaumoyo sangakuthandizeni kotheratu ndi njira yothandizira komanso kumathandiza kuchepetsa zizindikiro za ALS wokondedwa wanu.
Komanso, kudzera mu gulu la odwala la ALS, ogwira nawo ntchito angakuthandizeni kuti mudziwe zambiri zokhudza magulu othandizira odwala omwe ali m'dera mwanu, komanso njira zothandizira anthu odwala matendawa panthawi yomwe akudziwunikira, komanso kutsegula kuchipatala mu gawo lotsiriza la ALS.
Zida Zothandizira
Kufooka kwa misala ndi chizindikiro chachikulu cha ALS, ndipo ndizo zimakhala zovuta kuyenda, kudya, kugwiritsa ntchito bafa, kusamba, ndi kusunga mutu wowongoka (chifukwa cha minofu yofooka ya khosi).
Zipangizo zothandizira ngati zikwama za anthu olumala, zonyamulira zitsamba, zokweza mipando ya chimbudzi, zisoti zotsekemera, ndi zida zapadera zogwiritsa ntchito zimatha kusintha ntchito ndi umoyo wa munthu kwa ALS. Izi, zowonjezera, zingasinthe ubwino wa moyo wa wosamalira.
Zida zina zothandizira munthu amene ali ndi ALS zimaphatikizapo mateti apadera omwe angathe kuteteza kuwonongeka kwa khungu komanso ululu wamodzi.
Potsirizira pake, pali zipangizo zamagetsi monga chipangizo cholankhulira chimene chingasinthidwe pofuna kugwiritsa ntchito dzanja kapena maso pofuna kulolera kuyankhulana ndi kugwirizana.
Onetsetsani kuti muyankhule ndi gulu la odwala la ALS la wokondedwa wanu za momwe mungapitsidwire pofuna kupeza zipangizozi.
Kusamalira alendo
Monga wosamalira, muyenera kusamalira malingaliro anu ndi thupi lanu kuti muzisamalira bwino za wina. Mwa kuyankhula kwina, mukusowa mapulogalamu, ndipo apa ndipamene chisamaliro chimakhala chithandizo.
Kusamalira alendo kungatanthauze maola angapo kuti musangalale ndi kanema, kugona, kusangalala mumayenda, kapena kupita kukadya kapena khofi ndi mnzanu. Zingatanthauzenso kutenga tchuthi pa sabata, kotero mutha kutenga nthawi yopuma ndikuchita chinachake chapadera.
Pamene mukufunira chisamaliro, palinso zosankha zosiyana. Mwachitsanzo, mukhoza kuyang'ana ma bungwe a zaumoyo apanyumba omwe amapereka othandizira ophunzitsidwa bwino kapena malo okhala, monga malo osamalirako a nthawi yaitali, omwe amagwiritsa ntchito akatswiri a zamankhwala pa webusaiti. Pomalizira, mungathe kufunsa bwenzi lanu kapena bungwe lodzipereka kuti lipereke chisamaliro kwa maola angapo.
Anthu
Ndikofunika kukumbukira kuti anthu a m'deralo nthawi zambiri amavutika kuthandiza, koma sakudziwa momwe angakhalire. Zingakhale bwino kuti mulembe ntchito zomwe mukufuna kuthandizidwa ndikuzilembera kwa abwenzi, mamembala, kapena anzako.
Onetsetsani nanunso-ngati mukupeza kuti kuphika ndi kuyeretsa kumasokoneza ndi chithandizo chanu, funsani anthu ammudzi mwanu kuti akuthandizeni ndi chakudya kapena mupatseni ndalama zowonetsera nyumba.
Samalani Zizindikiro za Kuvutika Maganizo
Ngati mukusamalira munthu ali ndi ALS, zimakhala zovuta kumva maganizo osiyanasiyana, kuphatikizapo nkhawa, mantha, kusokonezeka, ndi / ngakhale mkwiyo. Amasamalidwe ambiri amadzimva kuti ndi olakwa, monga momwe ayenera kukhalira kapena akugwira ntchito yabwino, kapena kuti sakudziwa zam'tsogolo.
Nthawi zina maganizo amenewa akhoza kukhala amphamvu kwambiri moti amayamba kusintha moyo wa wosamalira. Ena osamaliranso amavutika maganizo. Ichi ndi chifukwa chake nkofunika kudziŵa za zizindikiro zoyambirira za kupsinjika maganizo ndikuonana ndi dokotala ngati muli ndi imodzi kapena ambiri.
Zizindikiro za kupsinjika zimapitirizabe, zimakhala pafupifupi tsiku lililonse kwa masabata awiri, ndipo zimaphatikizapo:
- Kumva wokhumudwa kapena wotsika
- Anasowa chidwi ndi ntchito zomwe mudakhala nazo kale
- Kukhala ndi mavuto (mwachitsanzo, kugona kwambiri kapena kukhala ndi vuto la kugona)
- Kusintha kwa njala
- Kumva wolakwa kapena wopanda chiyembekezo
Nkhani yabwino ndi yakuti kupweteka kumatha kuchiritsidwa, mwina ndi mankhwala osakaniza ndi mankhwala, kapena imodzi mwa mankhwalawa okha.
Mawu Ochokera
Kusamalira munthu ali ndi ALS ndi kovuta komanso kumagwiritsira ntchito mphamvu, mwakuthupi ndi m'maganizo. Koma pamene padzakhala ambiri akuyesa zovuta panjira, onetsetsani kuti padzakhalanso zolimbikitsa, zokondweretsa.
Pamapeto pake, chisamaliro chanu, chidwi chanu, ndi kupezeka kwanu ndikwanira. Choncho, khalani okoma mtima kwa inu nokha ndikumbukira kukumbukira zosowa zanu.
> Zotsatira:
> Galvin M et al. Kusamalidwa mu ALS - njira zosakanikirana ndikuyandikira kuphunzira kwa Burden. Bungwe la BMC Palliat . 2016; 15 (1): 81
> Karam CY, Paganoni S, Joyce N, Carter GT, Bedlack R. Zovuta zothandizira pa matenda a amyotrophic lateral sclerosis: Kuwongolera kumatsimikizirika. Am J Hosp Palliat Care . 2016 Feb; 33 (1): 84-92.
> Ng L, Khan F, Young CA, Galea M. Symptomatic mankhwala a amyotrophic lateral sclerosis / motor motor neuron. Cochrane Database Rev Rev 2017 Jan 10; > 1: CD011776 >.