Zimavomerezedwa bwino kuti zojambula zimapereka zida zabwino zothandizira anthu kuthana ndi mavuto a moyo, kuphatikizapo matenda aakulu monga lupus. Susowa kuti uphunzitsidwe kapena makamaka luso la zojambulajambula mawonekedwe kuti upeze ubwino umene amisiri amapereka. Kudziwonetsera nokha kudzera mu luso lojambula kumakupatsani mwayi wofotokozera nkhani yanu komanso kufotokoza maganizo ovuta okhudzana ndi kukhala ndi lupus-monga mkwiyo, chisoni, chisoni, ndi kukhumudwa. Kapena mungagwiritse ntchito masewera kuti musonyeze zomwe zimachitika tsiku ndi tsiku pokhala ndi lupus ngati -kutopa kotani kapena kumverera, mwachitsanzo.
Kaya mumagwira ntchito yanu kapena kuisunga ili yoyenera kwa inu. Ntchito yopanga luso, yokha, ingakhale yokwanira.
Mzinda wa lupus uli wodzaza ndi anthu omwe agwiritsa ntchito maluso monga njira zolimbana ndi matendawa / kapena kuwalimbikitsa kuzindikira za zomwe zili ndi lupus kwenikweni.
Zithunzi
Pulogalamu yotchedwa Lupus kudzera mu Lens, imalola ophunzira kutenga zithunzi zamphamvu ndikuziphatikizira ndi ziganizo kuti afotokoze zomwe lupus zimawoneka-osati zizindikiro zake, koma kukhala ndi lupus tsiku ndi tsiku. Zithunzi izi sizithandiza kokha kuzindikira, koma ndondomeko yowatenga ndi kugawana nawo inapatsa ophunzira mawu ndi kuwapatsa mphamvu kuti afotokoze nkhani zawo.
Pali njira zambiri zomwe mungagwiritsire ntchito kujambula kuti mupirire kapena kukulitsa kuzindikira kwa lupus, komabe. Mwachitsanzo, wojambula zithunzi Michelle Diane Poindexter amagwiritsa ntchito kujambula kuti agawane nkhani yake ya lupus. Pa webusaiti yake, adafotokozera cholinga cha zithunzi zake, "Zithunzi zina zimaganizira za zinthu zazing'ono pamoyo wa anthu chifukwa zimawoneka zovuta kwa iwo omwe ali ndi SLE ndi zina ndizofotokozera momveka bwino zakumverera kwa mumtima."
Ndakatulo
Nthano zingathenso kugwiritsidwa ntchito m'magulu othandizira. Mawu, mizere, ndi zithunzi mu ndakatulo zingabweretse kumverera kapena kukumbukira, zomwe tingathe kumvetsa, kuphatikizapo kukhala ndi lupus. Maumboni monga Mphatso ya Czeslaw Milosz ndi Ulendo wa Mary Oliver angakhale ofunika kwambiri.
Powerenga ndakatulo, yang'anani mizere yomwe mumaikonda. Kodi iwo akunena chiyani kwa inu? Kodi akukukumbutsani za moyo wanu ndi lupus? Ngati ndi choncho, ndi njira ziti? Mwachitsanzo, mzere mu Mphatso,
"M'thupi langa sindinamva ululu /
Nditawongolera, ndinaona nyanja yamphepete ndi maulendo. "
akhoza kuyang'ana kwa munthu amene ali ndi ululu wosapweteka wa thupi wokhudzana ndi lupus. Ndakatuloyi ili pafupi tsiku langwiro. Kodi tsiku langwiro likanakhala lotani kwa munthu yemwe ali ndi lupus? Mwina ndi tsiku limene thupi lanu silikumva ululu. Kodi ululu umakhudza bwanji moyo wanu? Kodi zimachotsa tsiku lanu langwiro? Nthano ngati Mphatso zingakuthandizeni kugwiritsa ntchito malingaliro anu ndikufufuzira zomwe mwakumana nazo ndi lupus ndi moyo, kawirikawiri.
Kuwonjezera powerenga ndakatulo, ndakatulo zolemba zikhoza kupanikizika. Anthu ena amakhala ndi ma pepala a pepala kapena mapepala a pa Intaneti ndi ndakatulo zomwe amalemba zokhudza lupus. Iyi ndi njira yosonyezera ndi kuyendetsa malingaliro anu okhudzana ndi kukhala ndi matendawa.
Kuti mupeze zitsanzo za ndakatulo zokhudzana ndi lupus, yesetsani kufufuza mndandanda wa ndakatulo za lupus, kapena onani ndondomeko ya ndakatulo ya webusaitiyi yotchuka koma inu simukuyang'ana wodwala.
Sizingathandize kokha kulemba ndakatulo, koma kuwerenga ndakatulo zokhudza lupus yolembedwa ndi anthu okhala ndi lupus kungathandize owerenga kukhala osachepera komanso omvetsetsa. Kumathandizanso kudziwa za lupus ndi zomwe zimakhaladi ndi matendawa.
Ndipo kuwonjezera apo, ndakatulo sizongopeka chabe, koma palinso mawonekedwe a ndakatulo omwe amatchulidwa mawu, monga momwe ndakatulo Shanelle Gabriel akufotokozera za zina zomwe anazipeza ndi matenda a lupus.
Zithunzi Zojambula
Zoonadi, kujambula zithunzi monga kujambula ndi kujambula kungathandize anthu kuthana ndi lupus, nawonso. Mwinamwake mungamve kuti mukuuziridwa kuti mujambula chithunzi kuti mupite ndi ndakatulo yomwe imakukhudzani. Izi ndi zothandiza kwambiri kwa anthu amene adakonda kufotokozera okha kupyolera mu kujambula kapena kujambula zithunzi m'malo moyankhula.
Kujambula, kujambula, ndi kutenga nawo mbali muzojambula zingakhale zododometsa zabwino kuchokera ku ululu wa thupi ndi wam'mimba. Mwachitsanzo, "Kujambula zithunzi kunandithandiza kuti ndikhale ndi matenda a khansa," anatero Andrea Feldman, yemwe anali wojambula zithunzi. Iye analemba kuti: "Nditakhalabe maso, ndinali wosasangalala, koma kujambula kunandithandiza kuti ndisakhale ndi nkhawa. Kujambula panthawi yomwe ndikanatha kuchita zina zochepa. Zinakhala mwambo wopatulika kuti ukhale wotetezeka, wotetezeka wa mitundu yosiyanasiyana. "
Kuwonjezera apo, kujambula zithunzi kumatha kukhala chida champhamvu cholondolera. Regina Holliday adayambitsa gulu loyendetsera ntchito lotchedwa Walking Gallery. Odwala, alangizi, ndi opereka mankhwala amapanga nkhani za odwala kumbuyo kwa jekete zamasitolo. Pa webusaiti yake, analemba za kayendetsedwe ka gululi ndi ophunzira ake "Akupita kumsonkhano wa zachipatala komwe nthawi zambiri palibe wokamba nkhani wodwalayo panthawi kapena omvera. Akupereka mau odwala, ndipo pochita zimenezi akusintha kukambirana. "
Mafilimu
Kuwonera mafilimu kungakhale njira yamatsenga komanso njira yosangalatsa yopulumukira kwenikweni. Mafilimu angakhalenso mafilimu amphamvu omwe amathandiza kuti adziwitse za nkhani inayake, nkhani za chikhalidwe, matenda kapena kulemala, ndi zina zotero. Mafilimu ndi mbali yofunika kwambiri ya zikhalidwe zambiri kuti pali ngakhale Spoonie Film Club kumene anthu omwe ali ndi matenda aakulu amakumana palimodzi, pa intaneti, kuti ayang'ane ndikukambirana mafilimu.
Pali mafilimu osankhidwa ndi Oscar okhudza matenda ndi kulemala, ndipo ena a iwo amachita ntchito zabwino ndi ziwonetsero zawo. Ndiyeno pali nkhani zeniyeni, kuchokera ku gwero, kulangizidwa ndi kulengedwa ndi kuyang'ana anthu omwe ali ndi matenda aakulu.
Mwachitsanzo, zolemba, Priority Seating, zotsogoleredwa ndi Andrea Sorkin ndizofotokoza momwe moyo uliri ndi amayi omwe ali ndi matenda okhaokha. Mufilimuyi adalongosola cholinga chake chopanga pepalali, "Ndikuyembekeza kuti ndingathe kutuluka kumapeto kwa izi kuti anthu ngati ine akhale ndi zina zambiri. Kuti anthu ngati ine asalowe mu ngongole miyoyo yawo yonse chifukwa adadwala kwambiri kuti asagwire ntchito komanso kuti anthu ngati ine akhoza kukhala ndi maloto komanso osakhala ndi vuto losaoneka. "
Nyimbo
Mofanana ndi mafano ena, onse akumvetsera ndi kupanga nyimbo ali ndi ubwino wathanzi. Ndipo ndi zabwino bwanji kuti nyimbo zolembera zimagwirizanitsa nyimbo ndi ndakatulo-pafupifupi ngati mlingo wachiwiri wodziwonetsera nokha ndi kupumula kwa nkhawa.
Woimba Chris Joyner akufalitsa lupus kuzindikira kudzera mu rock n 'roll. Mlongo wake, Dawn, ali ndi lupus ndipo analemba nyimbo yake yotchedwa "Hold and Keep." Izi zikuwonetsa momwe simusowa kukhala ndi lupus kuti mutha kupindula ndi kukhudza ena ndi luso lanu.
Woimba wa Jazz Stephanie Moore, yemwe ali ndi lupus, adagawana za kufunika kwa nyimbo pamoyo wake, "Nyimbo ndizo mankhwala anga, ndi mankhwala anga, ndilo gawo langa labwino ndi madokotala. Mosasamala kanthu ngati muli ndi lupus kapena matenda ena aliwonse, mulibe nyimbo mkati mwanu yomwe imayenera kumvedwa, aliyense ali ndi nyimbo. "
Choncho kaya mukuimba nyimbo yanu kapena nyimbo ina, musaiwale kufunika kwa kuimba. Kuimba kumagwirizanitsidwa ndi ubwino wambiri wa thanzi komanso maganizo. Koma ndizosangalatsanso!
Ngati mwalemba nyimbo ndipo mukufuna kugawira ntchito yanu ndi ena mu chipusopus, YouTube ndi malo ena ochezera aubwenzi ndi malo abwino kwambiri. Luso la webusaiti ya Lupus Awareness Gallery, yomwe ili ndi mitundu yosiyanasiyana ya mafilimu, ili ndi pulogalamu ya Pulogalamu yomwe mungapereke ntchito yanu.
Kusangalatsa
Ndani safuna kuseka zambiri? Zikuoneka bwino kwambiri kuti kuseka ndi kwabwino kwa inu. Koma pali zenizeni, zolembedwa zothandiza zaumoyo kuseka. Komanso, ndicho chida chothandizira kuthandizira.
Anthu amachita zinthu zamtundu uliwonse kuti awonjezere kuseka mu miyoyo yawo. Mosiyana ndi zomwe anthu omwe sali kunja kwa gulu la lupus angaganize, kuseka kwakukulu kumachitika m'magulu othandizira a lupus chifukwa anthu amauza nkhani zachabechabe za lupus zomwe ena amachitira.
Koma bwanji ngati titatha kudziwa zambiri ndi chiyani ngati pali woimba komanso wokondweretsa yemwe analemba nyimbo zozizwitsa ponena za zomwe anakumana nazo ndi lupus ndi matenda aakulu? Pali! Carla Ulbrich, yemwe amadziwikanso kuti The Singing Patient, ndi wolemba, woimbira, ndi wokondweretsa yemwe amalemba nyimbo zotchedwa "Prednisone" ndi "Sittin" M'chipinda Choyembekezera. " Nyimbo zake zimapereka mwayi weniweni wa lupus koma zimakuchititsani kuseka.
Mwinamwake simukumva kuseka ndi lupus lero ndikusowa zabwino, koma zosokoneza. YouTube imakhala ndi makompyuta osasintha. Sangalalani.