Fibromyalgia ili ndi njira yochuluka yopitira pa kafufuzidwe, mankhwala , matenda , ndi kuzindikira kwa anthu. Ngakhale mabungwe ofufuza, onse payekha ndi apadera, ndi ofunikira kuti tipite patsogolo, sikuti ndiwo okhawo omwe ali nawo pamunda.
Mabungwe opereka chithandizo akugwira ntchito mwakhama pamasewero ndipo pagulu kuti ayambe kufufuza ndi kuzindikira. Zolinga zawo zapamwamba ndi zothandizira tonsefe ndi vutoli ndi zovuta kuti titsogolere moyo wabwino. Mndandanda wapamwamba wothandizira wa fibromyalgia ku US ndi ena ochokera kuzungulira mndandanda uli pano kuti muthe kuphunzira zambiri za magulu ofunikira awa ndi ntchito yovuta yomwe amachitira ife.
Association Fibromyalgia Association
Bungwe la National Fibromyalgia (NFA) ndilo lodziwika bwino kwambiri la fibromyalgia chikondi ku US. Lakhala lolimbikitsira kwambiri zochitika za tsiku la May 12 za fibromyalgia zochitika padziko lonse kwazaka zoposa 20. Inatulutsanso magazini Fibromyalgia AWARE komanso kuchititsa misonkhano yophunzitsa.
Malinga ndi webusaiti ya NFA, bungwe "lathandiza kusintha maganizo ndi kumvetsetsa zomwe zimakhala kukhala ndi FM." Webusaiti yake imapereka chidziwitso chokwanira pa matendawa komanso pulogalamu yopitiliza maphunziro azachipatala kwa madokotala ndi ena othandizira zaumoyo omwe amachititsa fibromyalgia.
Mfundo zofulumira pa NFA:
- Yakhazikitsidwa: 1997
- Chikondi: 501 (c) 3 osapindula
- Malo: Orange, California
Zothandiza kwa inu:
- Ufulu waumulungu ukuphatikizapo eNewsletters, mauthenga a pa Intaneti, zosintha pa kufufuza, zokhudzana ndi maphunziro akuyang'ana ophunzira, ndi kutaya zinthu zina mu sitolo ya NFA pa intaneti
Njira zopereka:
- Perekani ndalama kudzera pa PayPal
- Gulani zinthu zophunzitsa ndi zodziŵika pa sitolo ya intaneti
- Pangani fundraiser
- Thandizo polipira ndalama ndi kuyesa, kuphatikizapo Kupatsa Lachiwiri msonkhano ndi zochitika za tsiku
- Sankhani NFA ku Amazon Smile
Fibromyalgia Coalition International
Pa webusaiti yathu, Fibromyalgia Coalition International (FCI) ikunena kuti ikufuna kukhala "chizindikiro cha chiyembekezo kwa odwala mamiliyoni ambiri a FM / CFS padziko lonse lapansi." Amapereka misonkhano ndi zochitika zina zamaphunziro ku Kansas City ndipo amamvetsera kwambiri njira zopanda mankhwala, monga zakudya, zomwe zimathandizidwa ndi kafukufuku wamankhwala.
Mfundo zofulumira pa FCI:
- Yakhazikitsidwa: 2000
- Chikondi: 501 (c) 3 osapindula
- Malo: Mission, Kansas
Mawu aumishonale:
Ntchito ya FCI ndi kupereka chiyembekezo kwa aliyense amene akudwala Fibromyalgia ndi Chronicle Fatigue Syndrome kudzera mufukufuku wambiri ndi kufotokoza za mankhwala achilengedwe, otsimikiziridwa, komanso othandiza omwe amayang'ana pazifukwa.
Zothandiza kwa inu:
- Mndandanda wa magulu othandizira a fibromyalgia
- Mndandanda wa odwala matenda a fibromyalgia
Njira zopereka:
- Sungani mabuku, ma CD, ndi malonda ozindikira kudzera mu sitolo ya intaneti
- Ndalama yamodzi kapena yopita patsogolo
- Kupatsa Malo Kumalo
- Sankhani FCI ku Amazon Smile
National Fibromyalgia & Chronic Pain Association
Nyuzipepala ya National Fibromyalgia & Chronic Pain Association (NFMCPA) imati cholinga chake ndi kulimbikitsa anthu kuti ayambe kupeza mankhwala, kuyendetsa kafukufuku wa sayansi kuti athe kuchiritsa, komanso kuyambitsa kafukufuku wogwiritsira ntchito mankhwala othandizira, opezeka, komanso opindulitsa. Ikukonzekera ndikulimbikitsanso zochitika za tsiku lachidziwitso cha tsiku la May 12 komanso zimapereka ulemu ndi khoma lachikondwerero komanso zikumbukiro pa webusaiti yathu.
Mfundo zofulumira pa NFMCPA:
- Yakhazikitsidwa: 2008 (monga CURE FM, inakhala NFMCPA mu 2010)
- Chikondi: 501 (c) 3 osapindula
- Malo: Logan, Utah
Mawu aumishonale:
Bungwe la National Fibromyalgia & Chronic Pain Association limagwirizanitsa odwala, opanga ndondomeko, ndi thanzi labwino, zamankhwala, ndi zasayansi kuti asinthe moyo mwa kuwathandiza kuona, kulimbikitsa, kufufuza, ndi maphunziro a matenda a fibromyalgia ndi matenda aakulu. Limaperekanso ndondomeko yamakalata atsopano pa kafukufuku watsopano.
Zothandiza kwa inu:
- Mndandanda wa zofunikira pazolema ndi ntchito
- Mndandanda wazinthu zothandizira akuluakulu
- Kulemba mndandanda wa ndalama kwa odwaladwala
- Articulos en Espanol
Njira zopereka:
- Perekani ndalama
- Gulani t-shirts kapena Chalk kuchokera ku shopu la intaneti
- Sankhani NFMCPA pa Amazon Smile
National Fibromyalgia Partnership, Inc.
Cholinga cha National Fibromyalgia Partnership (NFP) ndi kufalitsa uthenga ndi kuzindikira za fibromyalgia komanso kugwirizanitsa anthu ndi vutoli kuti akhale ndi malamulo, ndalama, ndi zina zothandizira. Imasindikiza magazini ya pachaka yotchedwa Fibromyalgia Frontiers komanso imapereka zambiri zokhudza maphunziro amene akufuna ophunzira.
Mfundo zokhudzana ndi NFP:
- Yakhazikitsidwa: 1992
- Chikondi: 501 (c) 3 osapindula
- Malo: Linden, Virginia
Mawu aumishonale:
Kuti mudziwe zolondola, zokhudzana ndi khalidwe labwino pa fibromyalgia zimapezeka kwa mamembala athu, ogwira ntchito zachipatala, ndi anthu ammudzi.
Zothandiza kwa inu:
- Chidziwitso pa matenda a myofascial (vuto lofala lofala)
- Zambiri pazinthu zachuma ndi zachikhalidwe
- Mndandanda wa zofunikira kwa amuna ndi ana omwe ali ndi fibromyalgia
- Articulos en Espanol
American Chronic Pain Association
American Chronic Pain Association (ACPA) imapereka "thandizo la anzako ndi maphunziro mu luso lakumvetsa kupweteka kwa anthu omwe ali ndi ululu, abwenzi ndi abwenzi, komanso akatswiri azaumoyo." Yathandiza kukhazikitsa magulu mazana ambiri othandizira ACPA ku US, Canada, Great Britain, ndi mayiko ena.
Ngakhale kuti sizinagwiritsidwe ntchito mwachindunji bungwe la fibromyalgia, anthu omwe ali ndi fibromyalgia angapindule ndi magulu othandizira, mauthenga, ndi ulaliki omwe amapereka. Ilinso ndi ndondomeko yamakalata yotchedwa The Chronicle.
Mfundo zowonjezera pa ACPA:
- Yakhazikitsidwa: 1980
- Chikondi: 501 (c) 3 osapindula
- Malo: Pittsburgh, Pennsylvania
Zothandiza kwa inu:
- Mndandanda wa magulu othandizira opweteka kwambiri
- Yambani gulu lothandizira m'deralo
- Zambiri pa zowawa zambiri, mankhwala, ndi zipangizo zothandizira kupweteka
Njira zopereka:
- Perekani ndalama kudzera pa PayPal
Mayiko Akunja
Kunja kwa US, mabungwe ambiri othandizira akugwira ntchito mwakhama kuti athe kusintha miyoyo ya anthu omwe ali ndi vutoli. Ena mwa iwo ndi awa:
- Bungwe la International Myopain Society
- European Network of Fibromyalgia Associations
- Fundacio pa Fibromialgia I la Fatiga Cronica (Spain)
- AFIBROM (Spain)
- Fibromyalgia Action UK
Mawu Ochokera
Kwa iwo amene angathe kupereka, mungapeze oyenerera kulandira kwanu. Kwa iwo omwe sangakwanitse, mwinamwake mungapeze njira zina zothandizira kapena kulimbikitsa mabungwe awa. Ziribe kanthu, mutha kupindula mwachindunji ndizodziwitso ndi mautumiki omwe amapereka, kuwonjezera pa zopindulitsa zachindunji ife tonse timapeza kuchokera ku zoyesayesa zawo.
Komanso, zopereka kwa mabungwe othandiza monga awa zingapereke mphatso zabwino kwa anthu omwe ali ndi matenda aakulu kapena angakhale njira yakukumbukila munthu amene anamenyana ndi fibromyalgia pa moyo wake. Mukhozanso kulemba zopereka zothandizira ku chifuniro chanu. Koma, musanapereke ku bungwe lirilonse lachifundo, onetsetsani kuti mufufuze kuti mudziwe kuti ndalama zanu zikugwiritsidwa ntchito momwe mukufunira.