Ngakhale kumayambiriro kwa MS, tikhoza kuyenda mosiyana ndi ena.
Ndili ndi zaka zakubadwa, nthawi zambiri ndinkamuuza kuti "ndagwedeza" ndikuyamba kuyenda pang'ono. Ine mwina sindinayime, koma ndinafikira msinkhu kuti anthu omwe anali pafupi nane sakanamverekanso kuti afotokoze zolakwa zanga zonse. Kenaka ndangomva vidiyo kuchokera chaka chatha ndekha (pang'onopang'ono) ndikudutsa kumapeto kwa 5K kuthamanga. Pamene ndinali pamzere wotsiriza, ndinamva ngati Atalanta, mulungu wamkazi wa othamanga.
Nditayang'ana pa kanema, ndinadabwa kuona kuti ndikuwoneka ngati munthu wachikulire kwambiri, ndikudumpha mofulumira kuti ndichoke mu nyumba yoyaka moto.
Phunziro limodzi laling'ono lawonetsa kuti anthu omwe ali pachiyambi cha multiple sclerosis (MS) amakhala ndi minofu yochepa kwambiri kuposa anthu omwe alibe MS, zomwe zingawononge chikhalidwe chawo.
Poyerekeza gulu la anthu 52 ndi a MS oyambirira kwa 28 odzipereka wathanzi, ofufuza adapeza kuti anthu omwe ali ndi MS ali ndi 40 peresenti yocheperapo minofu kuposa omwe alibe MS.
Kuphatikizanso apo, anthu omwe ali ndi MS anali ndi zinthu zosafunikira, kuphatikizapo:
- kuyenda ndi chigawo chachikulu (miyendo patali) kuti mukhale bata
- anayenda pang'onopang'ono
- anayenda muyeso yosakanikirana
- anatenga zofupika
Ochita kafukufuku amanena kuti kuyambitsana ndi mankhwala komanso kuchita masewera olimbitsa thupi kungathandize kuti tipirire ndipo titha kuchepetsa mavuto ena omwe timatopa nawo.
Ndinapempha anthu omwe ali ndi MS kuti adziwe ngati ali ndi vuto lopweteka kwambiri.
Izi ndi zomwe adanena:
- Zovuta zachilendo komanso ataxia , komanso zofooka za minofu zamanzere, zinali zizindikiro zomwe zinandipangitsa kufufuza ndi kupeza za MS wanga chaka chatha. MRI inawonetsa zilonda zambiri mumtsempha wamtsempha zomwe zingathe kumayambitsa mavuto ammimba. Tsopano ndili ndi ma physiotherapy magawo awiri pa sabata kuti ndisinthe khalidwe langa, kuchepetsa mphamvu ndi minofu.
- Ndinazindikiridwa chaka chapitacho ndipo ndikuwona kusintha kwa kufooka kwanga ndikukula mmiyendo yanga. Zimakhumudwitsa chifukwa chaka ndi theka lapita, ndimakhala ndikuyenda makilomita asanu nthawi zonse. Tsopano ndikuvutika kuyenda kumsewu wapansi panthaka kuti ndikafike kuntchito. Ndimangokhalira kuthamanga nthawi ndi nthawi, koma m'maganizo ndimadzimvera chisoni.
- Ndapezeka kuti ndili ndi MS kwa zaka 28. Miyendo yanga ndi yofooka, yowongoka kwambiri imalephera kwambiri kuposa kumanzere. Ndikuyenda ndi limp koma palibe chipangizo chothandizira. Ndinali wosamala kwambiri kuti ndikhale ndi zaka ziwiri zaka zingapo zapitazo. Ndayesanso kuyambitsa magetsi komanso mankhwala opatsirana. Popeza sindinazindikirepo kupita patsogolo, ndinasiya zonsezi ndipo sindinachepe. Ndasankha ngati mitsempha sikugwira ntchito kuti palibe chomwe chingathandize anthu ena ngati ine.
- Ndangophunzira kuti ndine PPMS ndipo ndinali ndi chidwi kwambiri ndi nkhani yokhudzana ndi kupweteka kwa minofu. Ndicho chifukwa chachikulu chomwe ndikutumizira kwa katswiri wa zamagulu, pamodzi ndi kumverera kwanga m'chinenero changa. Izi zisanachitike, kunali maulendo ambiri kwa MD, physiotherapist, chiropractor popanda kusintha. Ndikuwona watsopano wa physiotherapist yemwe anandiyesa ndipo adalimbikitsa kugwira ntchito moyenera ndi zovuta "zofunikira" kuti mukhale bata. Ananenanso kuti mwina ndingapindule ndi ndodo, koma izi ndizovuta kuvomereza. Ananena zimenezi chifukwa cha mavuto anga, minofu yanga ikugwira ntchito mwakhama kuti ndikhale wolunjika komanso kuti ndodo ingandithandize kuti ndisatope kwambiri monga momwe tsikulo likusinthira. Cholinga changa chachikulu ndi kuyesa ndi kusunga ntchito yomwe ndiri nayo, koma zikuwoneka kuti zizindikiro zanga zikuwonjezeka. Ndinauzidwa kuti mtima ndizochita zolimbitsa thupi ndizo zokhazo zomwe anthu ammudzi angachite.
- Ndinakana kugwiritsa ntchito ndodo chifukwa ndinali wokalamba. Ndikufunika. Tsopano ndimagwiritsa ntchito woyenda. Chida chirichonse chomwe chimakuthandizani kuti mutulukemo ndi pafupi chiri choyenera. Ndili pa PT tsopano ndipo timagwira ntchito, ndikulimbitsa komanso kulimbitsa mphamvu yanga. Ndakhala ndi MS kwa zaka 15 tsopano. Ine sindiri pa mankhwala alionse chifukwa cha zotsatira. Ndikuchita bwino, ndikuyembekeza kuti ndikhale wamphamvu.
- Ndakhala ndifupipafupi kusiyana ndi kachitidwe ka gait. Nditaphunzira matendawa, ndakhala ndikuyang'aniridwa ndi katswiri pa kufufuza. Popanda kumuuza kuti ndinali ndi MS, iye anandiuza momwe ndimayendera komanso momwe ndinkakhalira wosakhazikika pamene ndikuyenda. Sizinatenge nthaŵi yaitali kuti katswiri adziwe zonsezi.
- Ndakhala ndi MS kwa zaka zoposa 20 ndipo tsopano ndikuvala mwendo kumanja kwanga. Zili zovuta kuti ndisunge bwino, koma zimathandiza. Ine ndikudzipeza ndekha ndikulephera kuchita zambiri chifukwa chowopsya kugwedeza ndi kugwa. Ine ndikuchedwa kwambiri, komabe, pitirizani kuyesera.
- Ndinawapeza ali ndi zaka 66 pambuyo pa zaka zambiri ndikudandaula za kufooka kwa minofu ndi kuvutika kuyenda. Ndinauza katswiri wa zamaganizo kuti ndimayenda ngati mayi wachikulire (ndinali ndi zaka 65 panthawiyo). Katswiriyu ananena kuti ndinayenda ngati mwana wa zaka 65 ali ndi nyamakazi. Katswiri wa sayansi ya ubongo anaphonya matenda a MS monga momwe anachitira radiologist, amene amanyalanyaza MRI yanga. Kuyenda kwanga kwapitirira kuchepa. Ndikuchita masewera olimbitsa thupi ndikukhalabe ndi mphamvu. Mwamwayi, minofu yanga sikutenga zowonjezera zomwe zimasowa m'mitsempha yanga yowonongeka kotero ine sindingakhoze kukweza bondo langa lakumanja ndikukhala ndi zovuta kuyenda. Ine ndiri pa "mndandanda" kuti mulandire Bioness L 300 Plus pamene potsiriza nkupezeka. Zowonjezera ndi chifuwa cha ntchafu chomwe chimapangitsa mwina hamstrings kapena quads kukweza bondo pamene akuyenda. Kuwonjezera pa L-300 zomwe zimalepheretsa dontho la mapazi lizigwirizana mozizwitsa zonse zokhudza kuyenda. Ndikuyembekeza kuti, ndikapeza zambiri, ndimatha kuyenda bwino ndikukwaniritsa kupirira kwanga. Ndikayesa kugwiritsa ntchito chipangizo chotsiriza, ndinapeza kuti ndiwothandiza kwambiri.
- Ndinazindikira kuti mu 2010 ndatha ku MS Can Do, koma kuyambira nthawi imeneyo, ndakhala ndi mavuto ambiri (anathyoledwa minofu, opaleshoni kukonzanso). Ndikukhulupirira kuti MS yapita patsogolo - kapena kodi kutopa kwakula, ndi / kapena kuti kupirira kwanga kumachepa, ndi / kapena kuti kuchepa kwanga kuli koipitsitsa kuposa kale? Mwinamwake zonse zitatu.
- Ndinazindikira kuti phazi langa "lidzamenya" nthaka pambuyo poyenda makilomita angapo zaka zapitazo. Icho chinali icho mpaka ine nditapezeka ndi MRI yachiwiri yapangidwe zaka 2 zapitazo.
- Popeza ndikudziŵa, ndapanga ndondomeko yowonjezera ntchitoyi ndi ntchito yotsutsa. Zapanga kusiyana. Ngakhale zaka zitatha zanga zowoneka, ndikuchita zambiri.
- Ndalandira Bioness L300 Plus ndipo ndikukondwera. Ndakhala ndi L300 kwa zaka zoposa ziwiri zokha. Zowonjezera zandichititsa patsogolo phindu langa polimbikitsanso mu minofu yambiri. Ndikuyesera kuti ndiyende mochulukira kuti ndikhale ndi chipiriro ndikuchepetsa kutopa. Mu nthawi yochepa yomwe ndakhala ndikugwiritsa ntchito zambiri, ndapeza kuti ndikufunitsitsa kutuluka komanso kuyenda. Ndikuyembekeza tsiku limene kuyenda kumadera kudzakhala gawo la madzulo.
- Kunena zoona, ndatopa mtima wanga. Nthawi zina ndimayang'ana bwino ndipo kenako pakangopita nthawi pang'ono ndimakhala ndikugwedezeka. Kusatsimikizika sikungatheke. Sindigwiritsa ntchito ndodo chifukwa sindikuwona kugwiritsa ntchito ndipo ndikuyang'ana KUGWIRITSA NTCHITO pamene ndikugwiritsa ntchito.
- Zochita zanga zimakula mofulumira. Ndinazindikira kuti ndinali ndi zaka 9 zapitazo, koma ndangomva kusintha kwakukulu chaka chapitacho. Neuro yanga imati sindikusowa chithandizo chamankhwala, ndikuyenera kuchita ndekha. Ndinayamba kugwiritsa ntchito njinga yamoto kuntchito chifukwa kuyenda kwanga kunali kovuta. Bondo langa lakumanzere limatuluka, ndipo mawondo anga akumanzere akungogwedezeka, ndikuwombera, ndipo wandichititsa ine kangapo.
Mfundo Yofunika Kwambiri: M'zaka zambiri kuchokera pamene ndatulukira matenda, ndapeza njira zosiyana pazinthu zokhudzana ndi momwe ndikuyendera zinthu. Ndikuganiza kuti ndili ndi zaka zakubadwa ndi MS, ndakhala wopanda pake ndipo ndine wokondwa kuti ndikutha kuyenda movutikira (masiku ambiri) osangalatsa kapena ayi. Ndimadziwanso kuti kupirira kwanga kukuchepa. Ndimayesetsa kukhala wokangalika, monga ndazindikira kuti pamene ndikudandaula kwambiri kuti ndigwiritse ntchito minofu yanga, yofooka yomwe imapeza, ndiye ndikuopa kwambiri kuzigwiritsa ntchito, ndi zina zotero.
Zotsatira:
Kalron A, Achiron A, Dvir Z. Kupweteka kwa magalimoto powonetsa matenda omwe amatha kudzipatula omwe amachititsa kuti matenda a multiple sclerosis awonongeke. NeuroRehabilitation . 2012; 31 (2): 147-55.