VATER Syndrome (nthawi zina imatchedwa VATER kapena VACTERL gulu ) ndiyi ya zolepheretsa kubadwa zomwe nthawi zambiri zimachitika palimodzi. Zomwe zimayambitsa matenda a VATER zimatengera mbali zisanu zomwe mwana angakhale nazo zolakwika:
- V ertebrae
- Zosintha
- T rachea
- E sophagus
- R (impso)
Pakhoza kukhalanso ndi moyo wa mtima ndi miyendo, yomwe imasintha maina awo kwa VACTERL
Mwana amene amapezeka kuti ali ndi imodzi mwa syndromesyi sangakhale ndi vuto kumadera onse, koma kuwonongeka kwa zolepheretsa kubadwa kumadera ambiri.
VATER Syndrome Amazindikira
VATER si matenda osokonezeka kapena matenda, kotero palibe kuyezetsa magazi monga kuyezetsa magazi komwe kungathe kupeza vuto. Pofuna kupezeka ndi VATER Syndrome, mwana ayenera kukhala ndi mavuto atatu omwe tawatchula pamwambapa.
Ngakhale kuti matendawa ndi achilendo (omwe amachititsa ana a 10,000 mpaka 40,000), zizindikiro zimatha kusiyana kwambiri ndi mwana mmodzi. Chinthu chofunikira cha VATER ndi chakuti sizikuwoneka kuti zimakhudza chitukuko cha nzeru. Motero, ngati mwana ali ndi zizindikiro za VATER pamodzi ndi zovuta zowonjezera ndi / kapena zoganizira, vuto la VATER siloyenera.
Zifukwa za VATER Syndrome
Popeza VATER si nthenda yeniyeni, imatchulidwa kuti "mgwirizano wosagwirizana ndi zolepheretsa kubadwa." Mwachiyankhulo china, zolakwika za kubala zomwe zingakhale mbali ya VATER kapena VACTERL sizikudziwika kuti zimagwirizana.
M'malo mwake, zimapezeka pamodzi nthawi zambiri kuti zikhale zizindikiro zosawerengeka.
Palibe chifukwa chodziŵika pakali pano, koma vuto la jini limakhulupirira kuti likuphatikizidwa. Kafukufuku amasonyeza kuti mtundu wina wa zowonongeka ukhoza kuchitika musanafike mimba. Komanso, amayi a shuga amawoneka kuti amakhala ndi ana omwe ali ndi VATER.
Kuchiza kwa VATER Syndrome
Ngakhale ana ena omwe ali ndi VATER / VACTERL akhoza kukhala ndi mavuto aakulu kotero kuti amalephera kukula monga makanda, ambiri amakula ndi kukhala ndi moyo wathunthu.
Njira ya chithandizo imadalira kwathunthu pa zosowa za mwana aliyense. Mwachitsanzo, zina mwaziphuphu za ziwalo ndi miyendo zimatha kuchiritsidwa bwino ndi opaleshoni. Ena angafunike mankhwala othandizira, mankhwala opatsirana , mankhwala othandizira, ndi zina zotero.
Pamene ana omwe ali ndi VATER amakula ndikuyamba kupita ku sukulu, akhoza kukhala ndi zofunikira kapena zofunikira zomwe ziyenera kuthandizidwa. Mwachitsanzo, angakhale ndi zovuta kuyenda, ndi masewera olimbitsa thupi, kapena kuyendetsa galimoto yabwino.
Ndikofunika kuzindikira, komabe, kuti VATER si matenda a ubongo. Ana ambiri omwe ali ndi VATER ayenera kukwanitsa kusamalira chidziwitso cha luntha ndi kusamvetsetsa kusukulu popanda vuto lalikulu.
Makolo a ana omwe ali ndi VATER / VACTERL angakonde kupempha uphungu wokhudzana ndi majini pamene akuganiza kuti akhoza kukhala ndi ana ambiri. Matendawa ali ndi majini, ndipo chifukwa chake, kukhala ndi mwana wina ali ndi matenda ofanana ndi achibadwa omwe ndi ofanana.
VATER Syndrome Resources
Kuwonjezera pa kufunsa mafunso a dokotala, zidazi zingakhale zothandiza kumvetsetsa bwino matendawa.
- National Institute for Biotechnology Information
- Zolemba za Kunyumba za Genetics
Zipatala zambiri za ana m'dziko lonse lapansi zimagwiritsa ntchito mankhwala a VATER. Ena ndi akatswiri pankhani inayake ya matenda ovuta kwambiri.
- Chipatala cha Ana a Cincinnati