Zomwe mungakhulupirire
Monga mmodzi wa anthu 450 omwe anapezeka pa msonkhano wa 2016 Wamoyo wa Beyond Breast Cancer (LBBC), womwe unachitikira ku Philadelphia, ndinakondwera kukhala gawo la zochitika zodziwika bwino zomwe zakhala zikudziwika zokhudzana ndi kafukufuku, chithandizo, ndi zothandizira aliyense amene wakhala akudwala khansa ya m'mawere.
Msonkhano wa LBBC unayamba Lachisanu madzulo pa 23 Septembala ndi zochitika ziwiri zomwe zathandiza kuti anthu omwe adasonkhana pamodzi azikhala limodzi ndi tsiku limodzi lokha lisanadze tsiku la Loweruka, lomwe linachitikira ku Pennsylvania Convention Centre mumzinda wa Philadelphia.
Loweruka linayamba ndi chakudya cham'mawa cham'mawa komanso mwayi woyamba tsiku lomwelo kuti mukumane ndi anthu ena omwe mumakhala nawo.
Msonkhano waukulu, "Zakudya Zakudya Zakudya Zamasiku Onse," pambuyo padzutsa chakudya cham'mbuyo ndikuphatikizapo maulendo awiri:
- "Chifukwa Chakudya Chakudya Chakudya," ndi Pallav K. Mehta, MD
- "Mungathe Kuchita: Kuchotsa Njirazo Kuti Zidye Zakudya Zabwino," ndi Dr.Ro, America's Nutrition Coach
Nyumba yautali, kunja kwa zipinda zapadera, inali malo abwino kwambiri kuti matebulo a exhibitor akhale. Panali owonetsa 40+ omwe amaimira mabungwe a odwala khansa ya m'mawere, makampani opanga mankhwala omwe amapanga mankhwala a khansa ya m'mawere, ndi makampani omwe ali ndi zinthu monga zodzoladzola, mawere a prosthesis , ndi manja opondereza. Masamba owonetserako maofesi anali ogwiritsidwa ntchito tsiku lonse kuti afotokoze ntchito bungwe lawo kapena kampani yawo amachita, kuyankha mafunso, ndi kufalitsa uthenga.
Kusokoneza zochitika zomwe zimaloledwa kukayendera ndi owonetsa, zotsitsimutsa, ndi kuyanjana kwa ena za khansa ya m'mawere ndi ena.
Chakudya chamadzulo chinali mwayi wina wogawana ndi anthu ophatikizana, ndikukambirana magawo a m'mawa.
Kupita ku msonkhano wa khansa ya m'mawere, monga msonkhano wa LBBC, ndikofunikira chifukwa ungakupatseni mwayi wokhudzana ndi khansa ya m'mawere yomwe imaperekedwa ndi akatswiri m'madera awo.
Magawo kawirikawiri amakhala ndi funso lachifundo ndi nthawi yankho kutsatila zowonjezera, pamene mungapeze mayankho a mafunso omwe mumaphunzira ndikuphunzira kuchokera ku mafunso omwe ena akufunsa.
Kupita ku msonkhano wa khansa ya m'mawere ndi njira yabwino yobweretsera pamodzi ndi anthu ambiri opulumuka, kugawane zomwe akumana nazo, ndikupatsana kumvetsetsa, chithandizo, ndi chiyembekezo kuti opulumuka okha ndiwo angapereke. Ambiri opulumuka angadziwe zomwe zimachitika mu kansa ya m'mawere, monga mankhwala ndi zotsatira. Kugawana ndi ena omwe angagwirizane kumathandiza kuchepetsa kudzimva komwe anthu ambiri amamva polimbana ndi momwe khansa ya m'mawere imakhudzira moyo wawo. Izi ndizowona makamaka kwa omwe amapezeka kuti ali ndi khansa yochepa kwambiri, monga khansa ya m'mimba yotupa , ndi khansa ya m'mawere itatu yomwe imapweteka kwambiri omwe samakumana ndi ena ndi mtundu wawo wa khansa ya m'mawere.
Popeza khansa ya m'mawere si matenda okha, imakhudza mbali zosiyanasiyana za moyo, osati nthawi yokhayokha, koma ngati mankhwala atha ndipo ndi nthawi yopitirira ndi moyo. Palibe amene angadziwe kuti ndibwino kuposa wopulumuka wina.
Khansara ya m'mimba si matenda amodzi ; sipangakhale kukula kamodzi kamene kakugwirizana ndi njira yonse yosamalira.
Msonkhano wa LBBC unapereka mwayi wopita kumisonkhano yomwe inatsogoleredwa ndi akatswiri omwe anapeza zofukufuku zaposachedwapa, njira zothandizira munthu aliyense, komanso kulongosola bwino za moyo wake panthawi ya chithandizo komanso wopulumuka. Nkhani zawo sizinangokhala zokondweretsa, iwo ankagwiritsa ntchito ziwonetsero ndi mawu omwe anali omvera.
Mitu ya Gawo
Zojambula zamakono ndi mafotokozedwe kuchokera kumasankhidwe osankhidwa pa mndandanda womwe uli pansipa, udzakhalapo posachedwa ku LBBC.ORG.
- "Chithandizo Chachidokotala Chokha Chokha: Mmodzi Wopatsa Hormone Receptor Positive & HER2 Wathanzi Labwino wa Khansa," ndi Jennifer L. Armstrong, MD, Paoli Hematology / OncologyAssociates
- "Chithandizo cha Zamankhwala Kwa Inu: Khansara Yoyamba Yosautsa Amatu," ndi Melinda Telli, MD, Stamford University School of Medicine
- "Chithandizo Chachidokotala Kwambiri Kwa Inu: Khansa Yamatenda a M'thupi," ndi Elizabeth Comen, MD, Medical Oncologist, Memorial Sloan
- "Mayeso a Zachibadwa Masiku Ano: Kodi Ndi Zomwe Zingatiuze," ndi Kara N. Maxwell, MD, PhD, Mlangizi wa Mankhwala, Yunivesite ya Pennsylvania
- "Kusankha Zochita Ponena za Mankhwala a Hormona Ali Mnyamata: Zotsatira Zachimake, Mtengo ndi Kuchiza Zosankha," ndi Marisa Gefen, MD, Mkulu wa Zamankhwala, CityLife Neighborhood Clinics, ndi Lori B. Ranallo, MSN, ARNP, Namwino Wachikulire wa Oncology, University of Kansas Cancer Center
- "Kusamalira Inu: Kusamalira Othandiza," ndi Gregory D. Garber, MSW, LCSW, Dir. Mapulogalamu othandizira ovomerezeka ku Oncology, Sidney Kimmel Cancer Center ku Thomas Jefferson University
- "Kupulumuka: Kukhala ndi Moyo Wanu Wapamwamba," ndi Jacci Thompson-Dodd, MA, MSSS, LASW, OSW-C, Woyambitsa & CEO WeSpeakLoudly, LLC
- "Mankhwala Ochepetsa Matenda a Matupi Amtundu Wachiwiri: Mphindi Yokambirana," Melinda Telli, MD, Stamford University School of Medicine
- "Tiyeni tiyankhule: Kukhala ndi khansa ya m'mawere yosawerengeka," ndi Allison Nilsen, MSW, LCSW, Medical Social Worker, Celtic Healthcare
- Maganizo a Panel: Kubwezeretsa Matenda, "ndi R. Brannon Claytor, MD, FACS, Dokotala Wopaleshoni Yapulasitiki, Claytor / Noone Plastic Surgery Institute, William L. Scarlett, DO, ACS, ACOS, FAACS, Chipatala cha Plastiki ndi Kukonzanso, Chigawo cha Bucks County Aesthetic Center, Panelists: Charmaine Chan, DO, Helen Cooke ndi Jackie Roth
- "Patsiku la Tsiku Lililonse: Zotsatira za Khansa ya M'mawere pa Ndalama Zanu," ndi Joanna L Fawzy Moralez, ESQ., CEO Triage Cancer
- "Kupulumuka: Kusamalira Zotsatira Zambiri za M'thupi," ndi Lori B. Ranallo, MSN, ARNP, Namwino Wachikulire wa Oncology, University of Kansas Cancer Center
- "Kusamalira Maganizo ndi Maganizo Kusinkhasinkha," ndi Caroline Peterson, ATR-BC, LCP, Mtsogoleri, Sprimgboard Studio, Thandizo, Team, Abramson Cancer Center ku chipatala cha Pennsylvania, Penn Medicine
- "Kuchokera ku Babu kupita ku chipatala: Zimene Mukuyenera Kudziwa Ponena za Chivomerezo cha FDA," Joe Reynolds, PhD, Clinical Science ndi Kukula Mankhwala, Merrimack, Nickolas K. Tonks, PhD, FRS, Cold Spring Harbor Laboratory
Loweruka litsekedwa ndi mfundo yaikulu ndi funso ndi yankho loyankha, mkati mkati: Kumanga Bwinobwino Thupi Lomwe, lomwe linaperekedwa ndi Sabitha Pillai-Friedman, PhD, LCSW, CST. Anatsatiridwa ndi kutha kwa phwando la tsiku ndi mwayi wina wolankhula ndi anthu ena opulumuka, owonetsa, komanso owonetsa.
Lamlungu, tsiku lachitatu la msonkhanowu, linayamba ndi kadzutsa kanyumba kanyumba ndikumapeto kwa mutu waukulu wotsiriza, "Kumanga ndi Kubwezeretsa Kugonjetsa Pambuyo pa Khansa ya M'mimba," ndi Joni Miller, PT, DPT, CLT ndi Brianna Obert, MSPT, CLT, RYT.
Kwa omwe amasangalala ndi yoga, gulu limodzi la ola limodzi linatsatira Keynote. Chikumbutso chotseka chatsekedwa. Ambiri mwa iwo omwe adasonkhana pamodzi ngati alendo, tsopano akukonzekera kuti azilankhulana wina ndi mzake atabwerera kwawo.
Zamoyo Zopitirira Khansa ya M'baibulo ndi Mission
Mabuku a LBBC amanena kuti, "Mu 1991, chuma chochepa chinalipo kwa amayi omwe adatsiriza mankhwala oyamba a khansa ya m'mawere. Kuti athetse izi, bungwe linalengedwa. Kukhala Pambuyo pa Khansa ya Breast (LBBC) ndi bungwe lopanda ntchito zopanda phindu lomwe lili ku Philadelphia, kumene amayi omwe ali ndi khansa ya m'mawere, angathe kugwirizana kuti athe kufotokozera mfundo zolondola komanso zosavuta kumvetsetsa. Kuchokera nthawi imeneyo, LBBC yakula kukhala bungwe lodalirika kwambiri la dziko lomwe likukhuza zosowa za anthu onse amene apezeka ndi gawo lililonse la khansa ya m'mawere.
Ntchito ya LBBC ndiyo kugwirizanitsa anthu omwe ali ndi khansa yodalirika ya m'mawere komanso gulu lothandizira. Chaka chilichonse amagwirizanitsa ndi anthu 500,000+ kuchokera kwa omwe amapezeka kumene, kwa omwe amachiritsidwa, omwe amakhala ndi khansa ya m'mawere komanso amayi ndi amuna omwe ali ndi mbiri ya khansa ya m'mawere.
Kukhala Patsogolo pa Khansa ya Breast kumagwira ntchito ndi akatswiri apamwamba a zamankhwala padziko lonse kuti apitirize kufufuza momwe kusintha kosalekeza kwa khansa ya m'mawere ndi chisamaliro. Zomwe taphunzira kuchokera ku mgwirizanowu zimalongosola zatsopano ndi zomwe zilipo kuti zithandize anthu kuti adziwe matenda awo. "
Mawu Ochokera
Msonkhanowo unapulumutsa othawa kwawo kuchokera ku mayiko ena apafupi ndi kutali kwambiri ndi Washington State. Zinali zabwino kukomana ndikuyankhula ndi opulumuka khansa ya m'mawere. Kuphatikiza pa zokambirana zomwe zingakhale zosangalatsa kwa opezekapo ambiri, panali magawo omwe anafotokoza zapadera zomwe zapezeka ndi khansa ya m'mawere itatu, komanso amayi ndi abambo omwe ali ndi kansa ya m'mawere.
Ndinalankhula ndi amayi ambiri komanso amuna ena pa msonkhano. Ambiri anali opulumuka, ena anali osamalira opulumuka. Onse adagawana kuti adakondwera adabwera chifukwa cha zomwe anali kuphunzira komanso mwayi wakuyankhula ndi ena ambiri omwe adakhudzidwa ndi khansa ya m'mawere.
LBBC imakhala ndi misonkhano 2 pachaka:
- Khansa ya m'mawere Masiku ano: Kuchiza kwa munthu payekha, Zochitika zogawidwa kwa mitundu yonse ndi magawo a khansa ya m'mawere
- Pamodzi Pamodzi: Phunziro pa Khansara ya Breast Metastatic
Ma webusaiti a LBBC amanyamula zochitika zawo zambiri, mapulogalamu a maphunziro, ndi ntchito zothandizira zomwe zimaperekedwa chaka chonse. Thandizo liripo payekha, pa intaneti, pa foni, komanso m'mabuku awo ochulukirapo okhudzana ndi zinthu zonse za khansa ya m'mawere kuchokera ku matenda odwala matenda a khansa mpaka kumoyo monga wopulumuka.
Ngakhale pambuyo pa zaka zonse kuchokera ku khansa yanga yoyamba ndi yachiwiri ya khansa, ndinkasangalala kuti ndikhale gulu la anthu omwe anali ofunitsitsa kufotokozera momwe adasinthira moyo, monga odwala khansa ya m'mawere, ndi kusintha kumene kumabwera ndi moyo wawo watsopano .
Mmodzi wa okwatirana a pa chakudya chamasana adalongosola zomwe msonkhanowo umatanthauza kwa iye, akuti, "Ndili mu chemotherapy komanso sindikumva bwino. Ndinakayikira kuti ndikubwera lero, koma ndiri wokondwa kwambiri. Ndondomekoyi ikundipatsa zomwe ndikufunikira kuti ndikhale wotetezeka pokhala mnzanga ndikusamalira. Kusonkhana ndi kuyankhula ndi amayi ambiri omwe akupita patsogolo kuposa ine kulimbikitsa chidaliro changa pokhudzana ndi kuchipatala ndikukonzekera kusintha konse komwe kansa ya m'mawere ikupangidwira pamoyo wanga. "
Ngati mwapezeka ndi khansa ya m'mawere, pitani ku http://www.lbbc.org/. Mudzapeza mapulogalamu omwe ali oyenerera zosowa zanu, kaya ndinu mtundu wanji komanso gawo la khansa ya m'mawere. Zomwe zilipo pa webusaiti yomweyi, mu bukhu laulere la LBBC, ndi ma webinema adzakuthandizani kumvetsa za khansa yanu ya m'mawere ndikuonjezera chitetezo chanu pamene mukufunsa mafunso a gulu lanu la chisamaliro. Mudzapeza chithandizo chomwe mukuchigwiritsa ntchito kudzera muzithandizo zothandizira foni, ndi / kapena magulu othandizira pa intaneti komanso magulu a anthu.
> Chitsime:
> Kukhala Pambuyo pa Msonkhano wa Khansa ya Breast, Pennsylvania Convention Center, pa 24 September, 2016