Msonkhano wa Community Cancer Centers (ACCC) Project Metastatic Breast Cancer Project ndi njira yophunzitsira yomwe imayendera zosowa ndi zochitika za amayi ndi abambo omwe amakhala ndi khansa ya m'mawere. Cholinga chachikulu cha polojekitiyi ndikumapanga chithandizo ndi kasamalidwe ka kansa ya m'mawere m'thupi. Avon Breast Cancer Crusade, Cancer Support Community, ndi Metastatic Breast Cancer Alliance akugawana maluso awo monga ACCC omwe amagwira nawo ntchitoyi, ndi thandizo ndi thandizo loperekedwa ndi Pfizer Oncology.
"ACCC Metastatic Breast Cancer Project imakwaniritsa zofunikira zomwe zimadziwika ngati gawo la khansa ya pachifuwa: Nkhani Yomwe Tidaitchula -yomwe ikufunika kukambirana bwino pakati pa madokotala ndi odwala khansa ya m'mawere," anatero Julia Perkins Smith, MD, North American Medical Affairs Lead, Pfizer Oncology. "Pfizer wadzipereka kwambiri kuti athandizire zosowa zapadera za MBC, ndipo tili okondwa kugwira ntchito yatsopano ACCC ikugwira ntchitoyi. Monga ACCC, chiyembekezo chathu ndi chakuti polojekitiyi idzawathandiza odwala MBC kuti apindule kumvetsa za matenda awo komanso kukhala ndi liwu lolimba pa kupanga chisankho. "
Nkhani Zowankhulana
Kwa odwala: Kuzindikira kuti khansa ya m'mawere imakhala ndi nkhani zowonongeka; kawirikawiri samamvetsetsa. Nthawi zina, ngakhale odwala amavutika kumvetsetsa pamene ovomerezeka awo akuwauza za matenda awo, chifuwa cha chithandizo chamoyo wonse, zotsatira zoyembekezeredwa, ndi momwe matenda awo adzakhudzire moyo wawo ndi nthawi ya moyo wawo.
Poyamba, odwala ambiri amavutika ndi matenda awo komanso zomwe akuuzidwa; iwo akukayikira kufunsa mafunso. Ngakhale odwala akupitirizabe kuchipatala, odwala ena samagawana nawo mantha ndi gulu la gulu lawo lothandizira kapena amapempha chithandizo chomwe amachifuna. Nthawi zambiri amatha kukambirana ndi adokotala a zachipatala kuti athetse mavuto, komanso kuti athandizidwe.
Malingana ndi kafukufuku wa pa Intaneti omwe anachitidwa ndi Cancer Support Community, ambiri odwala khansa ya m'mawere adanena kuti akulankhulana bwino ndi gulu lawo la chisamaliro. Komabe odwala awiri pa asanu adanena kuti sadakambirane za nkhawa zawo, mankhwala, zizindikiro, ndi umoyo wawo.
"Chidziwitso cha munthu payekha zokhudza kansa ya m'mawere ndi chovuta kwambiri kuti athe kutenga nawo mbali pazochita kupanga chisankho. Chidziwitso chimathandizanso kuchepetsa nkhawa, kusowa mphamvu komanso kuvutika. Komabe, odwala ambiri salandira chidziwitso chokwanira kuchokera kwa magulu awo othandizira zaumoyo; kumvetsetsa kwawo kwa chikhalidwe cha matenda ndi zolinga zamankhwala nthawi zambiri ndizosauka; ambiri amakhulupirira kuti adzachiritsidwa. Kulephereka kwa nthawi ndi zowonjezereka muzochita zamakono zowonongeka kungapangitse odwala odwala-zokambirana, kuphatikizapo njira imodzi "kuyankhulana bwino ndi dokotala." Odwala amavomereza kuti asokonezeke chifukwa cha zowona zopezeka. " Katherine Crawford-Gray, Mtsogoleri wa Metastatic Breast Cancer Alliance.
Kwa anthu: Ngakhale kuti anthu ambiri akudziwa za kansa ya m'mawere chifukwa cha mauthenga omwe akuwonekera pa TV ndi pailesi, komanso m'masindikizidwe, mauthengawa nthawi zambiri amaganizira za khansa ya m'mawere , osati Gawo la IV, kansa ya m'mawere.
Komabe, chiwerengero chimaika chiwerengero cha odwala matenda a metastatic pakati pa 150,000 ndi 250,000 ku US Chaka chilichonse, odwala 40,000 amatha kufa ndi matendawa. Pafupifupi 6 mpaka 10 peresenti ya khansa yonse yatsopano ya khansa imapezeka. Pakati pa 20-30 peresenti ya khansa yonse ya m'mawere idzakhala metastatic, yomwe imachitika zaka 5, 10, 15+ pambuyo pochiza khansa ya m'mawere.
Kansera yamatenda a m'matumbo ndipamwamba kwambiri pa khansa ya m'mawere, ndipo khansara imafalikira pamtunda kwa ziwalo zakutali monga mapapo, chiwindi, ubongo ndi fupa. Ngakhale kuti ndi yochiritsidwa, siichirapa.
Sichigwirizana ndi "kumva bwino" mauthenga okhudza kansa ya m'mawere yomwe imakhala ikudziwitsidwa pa televizioni, pailesi komanso mu nyuzipepala.
Chifukwa chakuti odwala amtunduwu amakhala ndi chikhalidwe chomwe chimapangitsa kuti opulumuka asamangidwe, ambiri omwe ali ndi matenda amtunduwu amamva ngati kunja kwa khansa ya m'mawere. Nthawi zambiri amafunsidwa ndi achibale ndi abwenzi kuti afotokoze chifukwa chomwe akuyenera kukhalira moyo wawo wonse.
Malingana ndi Metastatic Breast Cancer (MBC) Alliance, uthenga wa anthu wonena za khansa ya m'mawere ndi "kupulumutsa" ukufala kwambiri moti anthu omwe amapezeka pa Gawo la IV ndi khansa ya m'mawere amatha kusokonezeka ndi maganizo oti sakulephera kusamalira enieni kapena kupenda chaka chilichonse.
Zambiri za Project Metastatic Breast Cancer Project
Marianne Gandee, Mphunzitsi Wothandizira, Maphunziro a Zopereka, ACCC, akulongosola Projectyo, "Pulogalamu Yathu Yophunzitsa Khansa ya Breast imayesetsa kulimbikitsa odwala MBC powapatsa zipangizo zawo zothandizira zaumoyo ndi zothandizira kuthana ndi mipata mu chisamaliro ndi kukonza mgwirizano pakati pa odwala ndi opereka. "
Ntchitoyi idzapereka:
- Malo oyendera maofesi omwe ali ndi mapulogalamu omwe amasonyeza njira zothandizira kuchipatala ndi kusamalira odwala.
- Kugawidwa kwa chidziwitso ponena za momwe zinthu zilili pakadali pano.
- Tsamba lamakono ndi pulogalamu
- Zipangizo zamaphunziro zoyenera kugwiritsidwa ntchito ndi mamembala onse a gulu la chisamaliro cha khansa.
- Buku lothandizira pazochita zogwira mtima pa odwala khansa ya m'mawere.
- Kufikira ku Registry Cancer Experience Community: Canast Metastatic Breast Cancer.
- Mu 2007, chitukuko cha ntchito zothandizira mapulogalamu a ACCC amachititsa chithandizo ndi kusamalira amayi ndi abambo omwe ali ndi kansa ya m'mawere.
Association of Community Cancer Centers, bungwe lolimbikitsa dziko ndi maphunziro kuyambira mu 1974, ndilo nkhani yothetsera mavuto omwe amakhudza mapulogalamu a khansa m'madera onse. Choncho, ACCC ikhoza kugwiritsira ntchito zofunikira zake komanso za omwe amagwira nawo ntchito ya Project Metastatic Breast Cancer Project kuti ifike ndi kuthandizira mamembala awo kuthana ndi zosowa zoyankhulana za odwala khansa ya m'mawere. Amaphatikizapo oposa 22,000 odziwa za khansa kuchokera kuzipatala 2,000 ndi machitidwe onse m'dziko lonse lapansi. Anthu odwala matenda a khansa amapereka oposa 75 peresenti ya odwala khansa.
Pulezidenti wa ACCC, Jennie R. Crews, MD, MMM, FACP adati, "Pamene tikuyesetsa kupereka chisamaliro chaumwini, chokhazika mtima pansi, tiyenera kulimbikitsa odwala kuti azitha kuchita nawo zokambirana ziwiri ndi opereka awo." Project Metastatic Breast Cancer Project Cholinga chake ndichokulitsa zokambirana za khansa ya m'mawere kuti athetse mipata yoyankhulana pakati pa matenda oyambirira ndi oopsa; ndikuwongolera mauthenga okhudza chithandizo ndi kasamalidwe ka khansa ya m'mawere m'matenda mumidzi yowonongeka.
Ntchito Yogwirizana ndi Mchitidwe wa Khansa ya M'thupi
"Avon Breast Cancer Crusade ndi amanyadira kuunikira kuunika kofunikira kwa odwala MBC ndi mabanja awo ndikupititsa patsogolo kansalu ya khansa ya m'mawere kwathunthu kuti akwaniritse zosowazi, "anatero Carolyn Ricci, Mtsogoleri wa Mapulogalamu, Avon Breast Cancer Crusade.
"Metastatic Breast Cancer Alliance imakhulupirira kuti mgwirizano, monga womwe tili nawo ndi Association of Community Cancer Centers kwa Maseti a Matastatal Breast Cancer, ndi ofunikira ngati tikufuna kusintha kusintha kwakukulu komwe kumatithandiza kuti tikhale ndi moyo wabwino komanso wambiri. Anthu omwe amakhala ndi khansa ya m'mawere. Udindo wathu pakugwira ntchito ndi ACCC ndi kubweretsa luso la mamembala athu kufukufuku ndi chitukuko cha zochitika. Chimodzi mwa ubwino wa mgwirizanowu ndikuti tidzamvetsa bwino zosowa zoyankhulirana za makanesi a khansa zapachilumba ndipo, mwachiyembekezo, tidzakhala ndi ntchito yogwira ntchito ndi malo kuti tikwaniritse zosowazi.
Alliance inalamula Dr. Corrine Ellsworth Beaumont kuti afufuze zopinga zoyankhulirana zomwe zilipo ndikukonzekera njira zatsopano zowonetsera. Chifukwa cha Gawo Loyamba la kafukufukuyu, tikuyesa Chida Cholankhulana Chokhazikitsidwa ndi zojambula ndi zochepa zolemba. Chiyanjano chathu ndi ACCC mu Project yawo ya Breast Cancer Project chimathandiza kuti amembala awo adziwitse komanso athandizidwe kuzinthu zatsopanozi, "anatero Katherine Crawford-Gray, Mtsogoleri wa Metastatic Breast Cancer Alliance.
Cancer Support Community's Cancer Experience Registry, yolembera yokha ya mtundu wake, imalola odwala ndi osamalira kugaŵana nawo zochitika zawo zodziwikiratu kuti athandize kusintha moyo wa anthu omwe ali ndi matenda a khansa. Gawo lapadera la Registry laperekedwa kuti lizindikire zosowa za anthu komanso zamaganizo za anthu omwe ali ndi khansa ya m'mawere. Zomwe zimachokera ku Registry zimapereka zogwirizana ndi zovuta zokhudzana ndi khansa ya m'mawere. Zotsatira izi zidzakuthandizira kuti pakhale chitukuko cha zipangizo ndi zipangizo komanso kuthandiza kuthandizira kusamalira odwala, "anatero Joanne Buzaglo, PhD, Senior Vice President, Research and Training Institute of the Cancer Support Community.
Mawu Ochokera
Ngati muli ndi khansa ya m'mawere, mumayenera ndipo mukuyenerera gulu la chisamaliro la khansa lomwe liri lotseguka kuyankha mafunso anu ndipo limatenga nthawi kuti mumvetsere momwe mumamvera. Ngati mwatengedwa kumene, kupatula ngati muli ndi chiyanjano chogwirizana ndi a oncologist amene adakwanitsa chithandizo chanu kwa khansa yapakati ya m'mawere, muyenera kupeza odwala matendawa. Ndibwino kuti mukambirane ndi akatswiri awiri oncologist musanasankhe omwe angasamalire chithandizo chanu.
Kuwonjezera pa kukambirana za dongosolo lanu la mankhwala, misonkhanoyi idzakupatsani mpata wozindikira mlingo wanu wotonthoza ndi aliyense wa atcologist monga iye adzakhala gawo lofunika kwambiri la chisamaliro chanu. Muyenera kumverera kuti mungathe kuyankhula ndi adokotala anu a zachipatala ndi ena a gulu lanu la chisamaliro za zovuta zilizonse zomwe zikukhudza moyo wanu.
Kulowa gulu lothandizira odwala khansa ya m'mawere kudzakuthandizani kuchepetsa kusungulumwa kumene mungakhale mukukumverera. Idzakupatsani mpata wogawana ndi ena omwe angagwirizane ndi zomwe mukukumana nazo.
Gawo la Gawo la Zolembera za Khansa kwa amayi ndi abambo omwe ali ndi matenda a chifuwa chachikulu ndi njira yabwino yogawana zomwe mukukumana nazo, zopindulitsa, ndikuphunzira kuchokera kwa ena ndi khansa ya m'mawere. Ndi ufulu, chinsinsi, ndipo munthu aliyense amene amapezeka ndi khansa kapena wothandizira odwala khansa.
> Zotsatira:
> ACCC-Launches-Initiative-kwa-Address-Mavuto-Mavuto a-Metastatic-Odwala Matenda a Kachiwerewere, News Release, June 2016
> MBC Alliance. Kusintha Mkhalidwe kwa Anthu Okhala ndi Matenda a Metastatic Breast Breast. Kusanthula kwa Khansa ya M'thupi Yopsa Khansa: Research Report, October 2014,
> In-Office Ethnographic Study, lothandizidwa ndi Pfizer Oncology, 2014