METAvivor ndi Magulu Othandizira Odwala Matenda a Khansa ya M'thupi

METAvivor Peer Kuti Atsatire Magulu Othandizira ali konse ku United States. Amabweretsa chitonthozo, chithandizo, ndi ubale kwa amayi ndi abambo omwe amakhala ndi kansa ya m'mawere (MBC), yomwe imatchedwa khansa ya m'mawere ya Stage IV . Khansara yawo yafalikira pamtunda kwa ziwalo zakutali. Sizachira. Kuchiza, komwe kumapitirira, kukukupizani mwakuthupi, m'maganizo ndi m'mavuto.

Kufuna kuyang'ana magulu othandizira ali osowa kwambiri odwala matenda osagwira ntchito osati kokha ngati chitsimikizo chothandizira , koma kuchepetsa kudzipatula kawirikawiri ndi omwe ali ndi matenda oopsa.

Gwiritsani Magulu Othandizira Othandizira

Gulu lirilonse liri ndi mtsogoleri wophunzitsidwa yemwe ali ndi khansa ya m'mawere. Magulu a anthu amodzi amasonkhana pamodzi m'madera omwe akukhala mmudzimo , podziwa kuti aliyense wa gulu lawo amamvetsa zomwe zimatanthauza kukhala ndi matenda a metastatic. Pali chitsimikizo podziwa kuti, mu gulu ili, palibe chifukwa chofotokozera zomwe mukukumana nazo. Wembala aliyense akhoza kuzindikira ndi kuthandizira.

Gulu lirilonse limaphatikizana palimodzi zomwe siziri zachipatala monga masitolo a khofi, malo odyera, ndi malo ena omwe ali omasuka komanso opatsa mosavuta mamembala a gulu. Misonkhano ingakhale ndi wokamba nkhani, ndipo nthawi zina, chochitika chapadera chingakhale mbali ya gulu lothandizana ndi anzanga.

Palibe malire pa utali wa nthawi ya msonkhano uliwonse, ndipo misonkhano imakhala pafupifupi maola awiri.

METAvivor inakhazikitsidwa kwa anthu omwe ali ndi khansa ya m'mawere. Bungwe likuyang'ana pa kufufuza. Ntchito yawo, monga ikufotokozedwa m'mabuku awo, ndi:

1. Kuonjezera chidziwitso cha kusokonezeka kwa ndalama zomwe kusintha kochepa kafukufuku wa metastasis mu dziko la khansa, komanso kulongosola mwachindunji mtundu wa kafukufuku umene ukusoŵa.

1. Ndi cholinga chachikulu chokhalitsa moyo ndi kutha imfa kuchokera ku MBC, METAvivor mphoto malipiro a zopanga zomwe zingasinthe MBC ku matenda othetsera matenda kuti akhale ndi moyo wabwino.

Kufunika Kwambiri Kuyendera Magulu Othandizira

Odwala Matastastra nthawi zambiri amalankhula za mavuto omwe akupezekapo pakupezeka magulu othandizira khansa ya m'mawere omwe angakhalepo m'midzi mwawo. Iwo ali ndi zofunikira zothandizira kwambiri kusiyana ndi omwe amathandizidwa ku khansa ya m'mawere oyambirira.

Odwala azimayi sangamve olandiridwa m'magulu omwe makamaka amayi ndi abambo omwe amapezeka kuti ali ndi khansa ya m'mawere; iwo angaganize kuti matenda awo a metastatic amawopsyeza ena mu gululo. Iwo akhoza kukhala olondola; Ambiri aife timapezeka kuti tili ndi khansa ya msinkhu.

Azimayi ndi abambo omwe ali ndi matenda amtunduwu amamva kuti sangagwirizane ndi nkhani za omwe omwe ali ndi chithandizo ndi nthawi yochepa komanso omwe akudziwika kuti ndi osiyana kwambiri ndi awo. Angaganize kuti maguluwa sakwaniritsa zosowa zawo monga odwala khansa ya m'mawere.

Palibenso magulu othandizira omwe amaganizira kwambiri nkhani ndi nkhawa za omwe amakhala ndi khansa ya m'mawere.

Magulu awa akhoza kukhala ndi ndandanda ya kuyembekezera ndikukhala ndi malire. Iwo akhoza kuchitidwa mwa njira yomwe siimalola kuti mfulu apereke ndi kutenga uthenga umene uli wofunikira kwambiri kwa wina yemwe ali ndi matenda aakulu. Nkhani yaikulu ndi magulu ambiriwa ndikuti satsogoleredwa ndi munthu amene akulimbana ndi matenda omwewo. Zilibe kanthu kaya mtsogoleriyo ndi wovuta bwanji, sangathe kudziwa bwino kapena kumvetsa momwe akumvera ndi zochitika zomwe zili mbali ya matenda osachiritsika.

Watsopano amene adayambitsidwa kumene, gulu la anzanga likutsatiridwa pambuyo pa gulu lothandizira lomwe linayamba mu 2007, ku Annapolis, Maryland ndi "CJ" Corneliussen-James.

CJ anapezeka ndi khansa ya m'mawere m'chaka cha 2004. Khansara yake inawonongeka m'chaka cha 2006. Pamene ankafuna ndikufuna kupita ku gulu lothandizira anthu omwe ali ndi kansa ya m'mawere, sanathe kupeza gulu lomwe linakwaniritsa zosowa zake. Kotero, iye anayambitsa chimodzi.

Patatha zaka ziŵiri, iye ndi abwenzi atatu aakazi, omwe anali ndi kansa ya m'mawere, adasonkhana kuti apeze METAvisor, yomwe inakhala bungwe lopanda phindu mu 2009. CJ ndiye yekha amene adayambitsa. Iye akutumikira monga Purezidenti wa METAvivor; komanso monga Mtsogoleri wa Uvocali.

Pezerani Kuchita Maphunziro Otsogolera Otsogolera Otsogolera Otsogolera

Mu 2016, METAvivor anapereka ndalama kwa Avon, yomwe inathandizidwa kukhazikitsa pulogalamu yophunzitsira atsogoleri omwe angakonzekere kuyambitsa ndi kuyang'anira gulu m'dera lawo. Otsatira Otsatira Otsogolera Otsogolera Otsogolera Aphatikizapo pulogalamu yophunzitsa maphunziro a CJ ndipo akuphatikizapo: ndondomeko yophunzitsira yomwe ikhoza kutulutsidwa, fayilo yomwe ingagwiritsidwe ntchito kulengeza gulu, ndi mawonekedwe atsopano olembera. Gulu la Facebook lotseguka kwa atsogoleri a anzawo likuwapatsa malo oti agawane malingaliro ndi zovuta wina ndi mzake.

Buku lotsogolera limaphatikizapo uthenga wochokera kwa CJ wonena zifukwa zomwe zimapindula ndi magulu a anzawo pofuna kuthandiza anzawo, kuti:

"Monga aliyense amene ali ndi MBC amadziwa, anthu omwe sali odwala Stage IV sangathe kumvetsa, kapena amvapo za, metastasis ndi tanthauzo lake. Pamene tikufuna kulankhula za anthu ambiri, yankho lake ndi 'Mets? Chimenecho ndi chiyani?' kapena 'Huh?' Choncho, tikapeza odwala ena a MBC-mwina kudzera pamisonkhano, kulumikizana kuchokera kwa madokotala athu, kapena mwa njira zina-timapuma modzipereka kuti tapeza munthu womvetsa zomwe tikukumana nazo, ndi zomwe tikuyankhula za. Kukhala wokhoza kumvetsetsa kumeneko nthawi zonse ndizosangalatsa kwambiri -ndikofunika kwambiri. Ichi ndi chifukwa chake magulu othandizira a MBC ndi ofunika kwambiri. Kumeneko kumudzi wakwanu, kunja kwa malo owonetsera zachilengedwe, mungapeze anthu omwe amadziwa ngakhale metastasis?

Magulu othandizira anzanga ali ndi phindu lapadera. Amapereka mwayi waku:

1. Pangani bwalo la anzanu apamtunda omwe amamvetsetsa MBC ndipo angapereke malangizo othandiza komanso thandizo.
2. Pita, khalani chete ndikukambirana nkhani za MBC ndi omwe samvetsetsa koma amasangalala kukambirana nkhaniyo.
3. Sinthani zolakwika mwa kugwiritsa ntchito matenda anu kuti muthetse kusiyana kwa miyoyo ya ena ndi MBC.
4. Yankhulani za mankhwala a MBC, zotsatira zake, ndi zina zofunikira zachipatala popanda kuzifotokozera mobwerezabwereza ndi kufotokoza.
5. Lirani malingaliro osasamala a anthu, khalani ndi MBC yanu yosangalatsa nthabwala kuyamikira, ndi kuseka pa zinthu zomwe zingamudodometse munthu pamsewu podziwa mwamsanga. "

Atsogoleri a gulu ndi onse odzipereka, omwe ali ndi udindo wokonzekera msonkhano wokhazikika kwa mamembala, kuwapatsa mwayi wokhala pamodzi m'madera omwe ali omasuka ndi olandiridwa.

Pitani ku METAPopeni ngati mukufuna kulowa nawo gulu, pendani mndandanda wa malo omwe alipo tsopano ndi atsogoleri awo, kapena yesetsani kuphunzitsa atsogoleri a gulu.

_Chitsime:

_{"CJ" Corneliussen-James, Purezidenti ndi Mtsogoleri wa Advocacy, METAvivor, metavivor.org}