Pitirizani Kudzipereka Kupyolera Mwa Kudziwa, Kusamalira, ndi Kudzisamalira
Kutaya thupi kwa mthupi ndi matenda a minofu yofooketsa ndi imfa yomwe imaipiraipira patapita nthawi. Ngakhale palibe mankhwala, palinso chithandizo chothandizira kuthetsa matendawa-ndipo apa ndi kumene kusamalirako kumabwera.
Kaya ndinu kholo kapena wokondedwa, kusamalira munthu amene akudwala matenda otupa thupi kumafuna mphamvu, thupi, ndi maganizo. Koma pamene mukuyamba (kapena kupitiriza) ulendo wanu wothandizira, dziwani kuti simuli nokha.
Ena ali pa ulendowu, ndipo ena akulolera kuyenda nawe.
Izi zanena, apa pali mafotokozedwe atatu omwe mungaganizire pamene mukuyenda bwino.
Tidbit # 1: Pezani Chidziwitso
Kudziwa kudwala matenda ozunguza thupi kumakupatsani mphamvu zowonetsera udindo wanu wosamalidwa komanso wovuta. Mudzatha kufotokoza ndi kuyankha mosavuta zovuta za wokondedwa wanu.
Ndicho, pano pali mfundo zochepa zomwe zimapangitsa kuti maganizo anu ayambe.
Pali Mitundu Yambiri ya Muscular Dystrophy
Mu mitsempha yotchedwa muscular dystrophy, imodzi kapena ma jini ambiri omwe amachititsa kuti thupi liziyenda bwino zimasintha (kusintha kwa DNA kumasintha). Popeza mitundu yambiri ya majeremusi ingasinthe, pali mitundu yosiyanasiyana ya ma dystrophies.
Mwachitsanzo, mu Duchenne muscular dystrophy (mtundu wamba), dystrophin gene imasinthidwa. Tsoka ilo, chifukwa cha ma dystrophies ena amtundu, majini kapena majini okhudzidwa omwe sanakhudzidwepo asanakhalepo.
Muscular Dystrophy Ndilo Cholowa
Genetic mutation yomwe imayambitsa mitsempha ya mimba imachokera kwa kholo limodzi kapena onse awiri kwa mwana. Njira yeniyeni ya cholowa (momwe jini imapitsidwira kwa mwana) zimadalira malo a jini. Mwachitsanzo, jini losinthika lomwe limayambitsa Duchenne muscular dystrophy lili pa chimodzi mwa ma X chromosomes omwe amanyamula mayiyo.
Ndondomekoyi yowonjezera imatchedwa X-linked recessive.
Dystrophy Muscular Amayambitsa Misampha Kufooka
Chizindikiro chachikulu cha mitsempha ya mitsempha ndi yofooketsa minofu. Mitundu ina ya ma dystrophies amachititsanso zizindikiritso zina, monga mavuto a mtima kapena mavuto a malingaliro.
Kuwopsa kwa zizindikiro kumasiyana, kutanthauza kuti anthu ena amayamba kulumala kwambiri, akusowa olumala kuti azitha kuyenda komanso kuthandizira kupuma, pamene ena ali ndi zofooka zochepa chabe.
Pomalizira pake, nthawi yoyamba yofooketsa minofu imayamba kusiyana-ena amayamba atabadwa pamene ena amayamba ali ana, akukula, kapena ngakhale akuluakulu.
Tidbit # 2: Pezani thandizo
Ngati mukusamalira mwana kapena wamkulu yemwe ali ndi matenda ozunguza thupi, onetsetsani kuti mukuyesetsa kupeza thandizo.
Banja ndi Anzanga
Aliyense amafunikira mpumulo, kaya ndinu kholo kusamalira mwana wokhala ndi matenda ozunguza thupi kapena wokondedwa akusamalira munthu wamkulu. Ndipotu, abambo, abwenzi, komanso ngakhale odzipereka m'deralo, nthawi zambiri amafuna kuthandiza koma samadziwa momwe angakhalire.
Lankhulani momveka bwino, konzekerani ndondomeko, ndipo musamadzimve mlandu. Aliyense amafunika nthawi yoti asangalale ndi kudziletsa.
Thandizo Lokha
Ganizirani kupeza wothandizira wathanzi (kunja) kapena wothandizira amene angathandize kusamba, kupita kuchimbudzi, kulowa ndi kugona pabedi, kuvala, ndi kuphika.
Mungaganizirenso ntchito yolemba namwino (kapena kukonzekera odzipereka) usiku kuti awone mwana wanu kapena wokondedwa wanu, kotero mutha kupeza tulo losasokonezeka.
Kawirikawiri, anthu amapeza kuti kunja kumathandiza kulimbikitsa ufulu kumbali zonse ziwiri-mwana wanu kapena wokondedwa wanu angayamikire kusinthaku.
Gulu la Zamankhwala
Malingana ndi mtundu wa matenda ozunguza thupi omwe mwana wanu kapena okondedwa anu ali nawo, padzakhala kusowa kwa kusamalidwa kwaumoyo, nthawi zambiri.
Mwachitsanzo, mwana wanu kapena wokondedwa wanu angakhale ndi nthawi yothandizidwa ndi mankhwala , kaya kuchipatala kapena m'nyumba mwanu.
Zina zothandizira anthu omwe angapange chithandizo chamankhwala zingakhale monga:
- Maulendo oyendera dokotala (mwachitsanzo, dokotala wa ana, katswiri wa chipatala , opaleshoni ya mafupa , ndi katswiri wa zamoyo)
- Kuyesera mayesero osiyanasiyana (mwachitsanzo, mapapo a kuyesa ntchito, mayeso a minofu ya minofu, ndi x-ray ya msana kuti ayang'anire scoliosis)
- Kupeza katemera (mwachitsanzo, chaka chonse chimfine ndi katemera wa pneumococcal)
- Chakudya chabwino ndi uphungu wokhudzana ndi majini
- Wogwira ntchito za anthu akuyendera kutsegula zipangizo zothandizira monga mipando ya olumala, mpweya wabwino, ndi kukweza
Pogwiritsa ntchito, khalani omasuka kukambirana za nkhawa ndi kufunsa mafunso. Kufikira gulu lachipatala la wokondedwa wanu kuti mulandire chithandizo ndi chitsogozo. Pamapeto pake, kulankhulana momasuka pakati pa maphwando onse kudzakwaniritsa chisamaliro ndi khalidwe la moyo.
Muscular Dystrophy Association
Gulu la Muscular Dystrophy (MDA) ndi bungwe lapadera lomwe limapereka zinthu zingapo kwa osamalira, kuphatikizapo nkhani za pa intaneti ndi magulu a zokambirana, mapulogalamu othandizira, ndi ndandanda yowerengera yowerengera.
Kuphatikiza pa zosamalira zosamalira, amapereka mapulogalamu monga msasa wa MDA wa chilimwe, kumene ana omwe ali ndi vuto lopweteka kwambiri amatha kusangalala sabata imodzi. Mphatso iyi yaulere (yochirikizidwa ndi omutsatira a MDA) imaperekanso makolo (ndi ena osowa chithandizo) kupumula kwakukulu.
Tidbit # 3: Dzisamalirani Nokha
Kudzikonda ndikofunika kwambiri monga wosamalira. Choyamba, ndikofunika kusamalira thupi lanu. Izi zikutanthauza kuonetsetsa kuti mukuchita masewera olimbitsa thupi, kudya zakudya zowonjezera, ndikuwona dokotala wanu kuti azifufuza nthawi zonse.
Ngati mukuvutika kupeza nthawi yochita masewera olimbitsa thupi kapena kutopa kumapeto kwa tsiku, yesetsani kuchita zolimbitsa thupi m'moyo wanu wa tsiku ndi tsiku. Mwachitsanzo, mungayese ntchito zogwiritsa ntchito pa TV pakhomo kapena kupita maulendo aatali tsiku ndi tsiku ku chilengedwe kapena pakhomo lapanyumba ndi wokondedwa wanu, ngati n'kotheka.
Kuwonjezera pa kupezeka pa thanzi lanu, onetsetsani kuti mukusamalira bwino maganizo anu. Kuvutika maganizo kumafala pakati pa osamalira, kotero yang'anani zizindikiro za kupsinjika monga kusasinthasintha maganizo, mavuto ogona, kutayika kapena kupindula ndi njala, kapena kusowa chiyembekezo ndi kudziimba mlandu. Ngati mukudandaula za kuvutika maganizo, onani dokotala kapena katswiri wa zamaganizo.
Polimbana ndi nkhawa ndi kufunika kokhala wothandizira, komanso kugawa mbali yopindulitsa, ganizirani kulowetsa gulu lothandizira osowa. Mungaganizirenso kukhala ndi mankhwala opangidwa ndi maganizo omwe angalimbikitse kumasuka ndi kupuma, monga yoga kapena kusinkhasinkha.
Mawu Ochokera
Kusamalira wokondedwa ndi matenda osokoneza thupi si kophweka, koma ambiri amapeza ndalama zowonjezera, kaya ndizowona moyo wathanzi, wathanzi pa moyo, kukhala wochuluka mwauzimu, kapena kungofuna kukongola mu zosangalatsa zazing'ono za tsiku ndi tsiku.
Khalani olimba mtima ndikudzipereka paulendo wanu wothandizira, kumbukirani kusamalira zosowa zanu, ndikufikira ena kuthandiza.
> Zotsatira:
> Darras BT. (2017). Zochitika zachipatala ndi matenda a Duchenne ndi Becker muscular dystrophy. Patterson MC, Firth HV, eds. Zaposachedwa. Waltham, MA: UpToDate Inc.
> Landfeldt E et al. Kuyeza zolemetsa zothandizira ku Duchenne muscular dystophy. J Neurol . 2016 May; 263 (5): 906-15.
> Muscular Dystrophy Association. (nd). Owasamalira.
> National Institute of Neurological Disorders ndi Stroke. (2018). Tsamba la Muscular Dystrophy Page.