Ngati mukukhala ndi matenda otha mphamvu ( ME / CFS ), mwayi ndi wabwino kuti muthamangire anthu ambiri omwe amaganiza kuti akudziwa. Iwo akhoza kunena zinthu monga, "Eya, ndikuganiza kuti ndili nazo, ndikungokhala wotanganidwa kwambiri kuti ndisagone mokwanira."
Pamene anthu amva mawu akuti "matenda olemala," ndi zomveka kuti iwo aganizire kuti ndikutopa kwambiri.
M'dziko lathu lamakono, anthu ambiri amamva kutopa nthawi ndi nthawi-kutopa ndi chimodzi mwa madandaulo apamwamba omwe amamva.
Koma zoona, timadziwa kuti ME / CFS ndi matenda ovuta komanso othetsa nzeru. Mukawafotokozera anthu, zimathandiza kuti zinthu zizikhala zosavuta komanso zisonyezerani zizindikiro zanu pazochitika zomwe zimagwirizana.
Mukhoza kukhala ndi kufotokoza mwachidule kwa anthu ambiri, ndi kwautali kwa anthu omwe ali pafupi kwambiri ndi inu.
Mwinanso njira yosavuta yofotokozera matenda otopa ndi awa: "Ndimamva ngati ndikudwala chimfine nthawi zonse."
Anthu ambiri amadziwika bwino ndi chimfine kuti atenge izi. Icho chimapereka, "Ine sindiri wotopa chabe, ine ndikudwala ."
Mukhoza kufotokozera mwachidule polemba mndandanda wa zizindikiro za matenda a chimfine, monga ziwalo za thupi, malungo apakati, nthawi ya pakhosi, komanso kutopa kwambiri.
Ngakhale kufanana kwa chimfine kumakwirira zizindikiro zingapo, muyenera kupeza njira zina zothandizira wina kumvetsa zinthu monga ubongo wa ubongo, post-exertional malaise, ndi flares / remissions.
Kufotokozera Utsi wa Ubongo
Kuti mufotokoze za ubongo wanu wa ubongo kapena kusokonezeka kwa chidziwitso, kumbukirani kugwiritsa ntchito zochitika zomwe zimagwirizana kuti muthandize.
Pafupi pafupifupi aliyense wapita kukapeza chinachake ndi kuiwala chomwe icho chinali, kapena kutayika galimoto yawo ya lingaliro pakati pa chiganizo. Mukhoza kugwiritsa ntchito zinthu monga choncho, fotokozani kuti zimakuchitikirani nthawi zonse.
Kugwiritsira ntchito mawu oti "ubongo wa ubongo" nthawi zonse kuzungulira abwenzi ndi achibale kudzawadziwitsa iwo. Ndilo mawu omveka bwino omwe amafotokozera okha, ndipo kufotokozera pang'ono (monga "Ubongo wanga walimbidwa lero") kungawathandize kumvetsa malingaliro anu.
Kufotokozera Post-Exertional Malaise
Chizindikiro ichi chingakhale chovuta kwambiri kwa anthu kuti amvetse. Kwa munthu wopanda ME / CFS, kuchita masewera olimbitsa thupi kumawonjezera mphamvu. Ndizodabwitsa kwambiri kuti anthu nthawi zambiri amauza munthu yemwe ali ndi matendawa kuti aphunzire zambiri kuti amve bwino.
Popeza kuti post-exertional malaise amatanthauza kuti mudzakhala ndi mphamvu zochepa , ndizomveka kuti anthu sazipeza.
Kachilinso, ikhoza kulipira kubwereza kufotokoza kwa chimfine, ndi zina monga: "Taganizirani nthawi yomaliza yomwe mukudwala ndi chimfine (kapena strep throat, kapena mono) ndi momwe zinakukhudzani kuti muyende pansi Masitepe Ndizo zomwe zimandivutitsa-zimandichulukitsa ndikuzizira zizindikiro zanga. "
Post-exertional malaise ndi chizindikiro cholimba kuti mukulunge mutu wanu, ngakhale pamene mukukumana nawo.
Ups ndi Downs
Ngati ME / CFS yanu ili ndi ziphuphu komanso zowonongeka, ndicho chinthu china chimene chingasokoneze anthu. Kawirikawiri, anthu amaganiza kuti matenda amakhala osasinthasintha, choncho nthawi zambiri samapeza momwe mungakhalire ndikuthamanga tsiku limodzi (kapena miniti) ndikugona potsatira.
Njira yabwino yomwe ndapeza kuti ndikufotokozera izi ndi: "Matenda otha mphamvu a kutopa amayamba kutuluka, amakhala ngati multiple sclerosis."
Mukhozanso kufanizitsa moto wanu pamoto, ndikufotokozera momwe simukudziwira nthawi imene dontho lotsatira likubwera, zomwe zimapangitsa kuti zikhale zovuta kukonzekera chirichonse. Komanso, adziwe kuti ndi zinthu zotani (kuyesayesa, kupanikizika, ndi zina zotero). Zimayambitsa malingaliro amodzidzidzimutsa kuti awone ngati mukudzidzimutsa kwambiri.
Kufotokozera Kwambiri Kwambiri
Nthaŵi zina, mungafunike wina kuti amvetse matenda anu m'mawu achipatala. Ndili ndi ME / CFS, zimakhala zovuta kufotokozera za maselo apadera a chitetezo cha mthupi ndi ntchito ya neurotransmitter yomwe, kwa wina koma dokotala, mwina ndi othandizira pang'ono.
Njira yosavuta kufotokozera zomwe zikuchitika m'thupi lanu ndi izi: "Ma chitetezo cha mthupi mwanga sichikulirakulira ngati akuyesera kulimbana ndi kachilombo koopsa, ndipo imayambitsa zowonjezera thupi langa. amachitira zinthu zosiyanasiyana. "
Mungathe kuwauzanso kuti ofufuza ambiri amandiitana ME / CFS matenda a "neuroimmune" kapena "neuroendocrine immune" chifukwa cha kuvuta kwake komanso kugwirizana kwa machitidwe osiyanasiyana.
Muli ndi zizindikiro zanu zosiyana, kotero muyenera kufotokozera zomwe mumaphunzira kuti mugwirizane ndi zomwe mukukumana nazo. Ndibwino kuganizira za izi pasanapite nthawi, kotero mutha kupereka yankho lolondola ngakhale ubongo wanu uli wovuta.