Zaka Zambiri Pambuyo Podziwa
Ngati inu kapena wokondedwa wanu mwapezeka kuti muli ndi amyotrophic lateral sclerosis (ALS), yomwe imatchedwanso matenda a Lou Gehrig, limodzi la mafunso anu ndiloloza matendawa. ALS imakhudza kwambiri chiyembekezo cha moyo koma palinso mankhwala omwe angachepetse kuwonongeka kwa thupi komanso akhoza kuwonjezera moyo.
ALS ndi chiyani?
ALS ndi matenda opatsirana pogonana omwe amakhudza maselo a mitsempha mu ubongo ndi msana.
Ndi matenda opitirirabe omwe amakhudza mphutsi zamoto zomwe zimachokera ku ubongo kupita ku msana. Matendawa amachititsa kuti thupi liziyenda bwino. Patapita nthaŵi, ubongo umalephera kuthetsa kuthamanga kwa minofu chifukwa cha imfa ya mphepo zamotozi.
ALS Moyo Wopitirira
Kawirikawiri kuyembekezera moyo wa munthu yemwe ali ndi ALS ndi zaka ziwiri kapena zisanu kuchokera nthawi yomwe amadziwa. Komabe, zimasiyana kwambiri:
- Anthu oposa 50 peresenti ya anthu omwe ali ndi ALS amakhala zaka zoposa zitatu.
- Azimayi makumi awiri aliwonse amakhala zaka zisanu kapena kuposerapo.
- Amitundu khumi amakhala zaka 10 kapena kuposa.
- Anthu asanu pa 100 alionse amakhala zaka zoposa 20.
Njira Zowonjezera Moyo Wotheka
Ngakhale kuti palibe mankhwala a ALS kapena njira zothetsera vutoli, pali zinthu zina zomwe mungachite kuti mukhale ndi moyo wabwino. Izi zikuphatikizapo:
- Mankhwala: Riluzole wakhala akugwiritsidwa ntchito kuyambira chaka cha 1995 ndipo wasonyezedwa m'mayesero am'chipatala omwe ali ndi maulendo awiri kuti apitirize kukhala ndi moyo kwa miyezi iwiri kapena itatu, ngakhale kuti maphunziro ena ochepa kwambiri omwe asonyeza kuti mankhwalawa ndi othandiza kwambiri. Kuonjezera apo, mankhwala ena amagwiritsidwa ntchito poyang'anira matenda omwe angathandize kusintha umoyo wa moyo ndi kupitiriza ntchito. Radicava (edaravone) inavomerezedwa mu 2017. Mu mayesero a zamankhwala, adachepetsanso kuchepa kwa thupi.
- Kupanda mpweya wosagwiritsidwa ntchito: Kusagwiritsidwa ntchito kwa mpweya wabwino (NEV) kunasonyezedwa kuti upitirize kupulumuka pakati pa miyezi isanu ndi iwiri ndi 11, malinga ndi nthawi yomwe idagwiritsidwa ntchito tsiku ndi tsiku komanso zosiyana siyana. Njira yoyamba ya NEV ndi yabwino-kupanikizika mpweya wabwino, umene ukupuma kupyolera mu chigoba chomwe chimagwera pakamwa ndi mphuno.
- Galamukani Yotchedwa Percutaneous Endoscopic (PEG): Thumba la kudya limayikidwa mmimba ndipo imatuluka kunja kwa thupi kudzera m'khoma la m'mimba. Ngakhale kuti maphunziro asalephera kusonyeza kuti nthawi yamoyo ikutha, American Academy of Neurology imalimbikitsa kuti PEG imagwiritsidwa ntchito kwa anthu okhala ndi ALS kuti thupi likhale lolimba. Madokotala osiyanasiyana ali ndi malingaliro osiyana pa nthawi yabwino yopanga njira ya PEG ndikuyamba kudyetsa njirayi.
Mawu Ochokera
Kupita patsogolo kwapangidwa m'zaka zaposachedwa mu chithandizo ndi chithandizo cha ALS. Kudziphunzitsa nokha pa chithandizo ndi chisamaliro cha ALS kungakuthandizeni kumvetsetsa zovuta izi ndi zovuta kudziwa. Lankhulani ndi dokotala wanu zomwe mungachite kuti muthandize munthu yemwe ali ndi ALS kukhala moyo wabwino kwambiri malinga ndi momwe angathere.
Zotsatira:
Mfundo Zofunika Kudziwa Zokhudza ALS. ALS Association. http://www.alsa.org/about-als/facts-you-should-know.html.
> Kawirikawiri Mafunso Okhudza Radicava (Edaravone). ALS Association. http://www.alsa.org/research/radicava/radicava-zimene-asked-questions.html.
> Miller RG, et. al. Gwiritsani ntchito ndondomeko ya Parameter: Chisamaliro cha wodwalayo ndi amyotrophic lateral sclerosis: Mankhwala osokoneza bongo, zakudya ndi kupuma (umboni wokhudzana ndi umboni): Lipoti la Quality Standards Subcommittee ya American Academy of Neurology. Neurology 2009; 73; 1218-1226.
> Pinto S, MD Carvalho. Kusintha moyo watsopano kukhala mankhwala opititsa patsogolo kupuma kwa amyotrophic lateral sclerosis odwala. Matenda a Neurodegenerative Management . 2014; 4 (1): 83-102. lembani: 10.2217 / nmt.13.74.