Kodi mungakonzekere bwanji chithandizo ndi chithandizo chakumayi ngati muli ndi cystic fibrosis
Ngati muli ndi cystic fibrosis (CF) ndipo mukuyang'ana kuti mukhale ndi pakati, nkofunika kudziŵa kuti pali amayi omwe amakhala ndi CF omwe ali ndi pakati movuta komanso amapereka ana abwino. Poonjezera mwayi wanu wokhala ndi pakati, ndikofunika kukonzekera mimba yanu ndikugwira ntchito ndi dokotala kuti akuyang'anitseni thanzi la mwana wanu.
Musanayambe kutenga mimba , muyenera kukhala ndi thanzi labwino, khalani pa zolemetsa zanu, ndikukhala ndi maperesenti oposa 40 peresenti. Musanayambe kutenga mimba, mnzanuyo ayenera kuyesedwa kuti aone ngati ali ndi jini la cystic fibrosis . Ngati mnzanuyo ali ndi jini, muli ndi mwayi wokhala ndi mwana wa cystic fibrosis. Ngati mnzanuyo alibe kachilombo, mwana wanu sangakhale ndi vutoli.
Poonetsetsa kuti mimba yanu ndi yosavuta komanso yopanda nkhawa, madokotala amalimbikitsa kuchita izi:
1. Sungani Zakudya Zokwanira
Chakudya cha thupi lanu chikufuna kuwonjezeka pa nthawi ya mimba. Kuti mukwaniritse zofunazi, mukufunikira kutenga zakudya zowonjezereka, monga zakudya zopatsa thanzi, kuti thupi lanu lipeze calories yomwe ikufunikira. Ngati simungathe kupeza zakudya zomwe mumafunikira kuchokera ku zakudya ndi zowonjezereka, muyenera kupita kuchipatala kukapeza zakudya zowonjezera, zomwe zimatchedwa kuti parenteral nutrition (TPN).
2. Menyana ndi Matenda Opatsirana Pang'onopang'ono
Matenda opatsirana ayenera kupatsiridwa ndi maantibayotiki pokhapokha chizindikiro choyamba chikuwonekera. Matenda amatha kutuluka mwamsanga ngati muli ndi CF ndipo mukhoza kuchepetsa kuchuluka kwa mpweya woperekedwa ku thupi lanu. Oksijeni si vuto chabe kwa inu, zingathe kuvulaza mwana wanuyo popeza akukuwerengerani kuti akwaniritse zosowa zawo za okosijeni.
3. Pitirizani Chifuwa Physiotherapy (CPT)
Chifuwa cha physiotherapy ndi mbali yofunikira pa chithandizo chanu cha tsiku ndi tsiku ndipo chiyenera kuchitidwa ngakhale mutakhala ndi pakati. Mukamachita bwino, sizingapweteke mwana wanu.
4. Pitirizani mankhwala anu a CF
Mankhwala ambiri okhudzana ndi mankhwala a CF ndi oyenera kulandira panthawi yoyembekezera. Kambiranani za mankhwala omwe mungakhale nawo ndi CF dokotala wanu. Poyang'ana mndandanda wa mankhwala anu ndi gulu lanu lachipatala, madokotala anu angathe kudziwa ngati kusintha kuli kofunikira.
5. Konzekerani Kuloledwa kwa Chipatala
Mungafunike kukhala m'chipatala kwa kanthawi pamene mukuyembekezera chithandizo kapena kuona. Izi zikhoza kuchitika mu miyezi itatu yapitayi ya mimba yanu pamene mukufunira thupi lanu ndilopamwamba kwambiri.
6. Sankhani Kaya Mukufuna Kuberekera
Ngati mukufuna kuyamwa mwana wanu ndi mkaka wanu muli mapuloteni okwanira ndi sodium, ndiye mungathe. Ngati mwasankha kuyamwitsa, mudzafunika kukumana ndi katswiri wanu wamakono kuti mupange ndondomeko yomwe idzakupatseni makilogalamu okwanira kwa inu ndi mwana wanu.
7. Konzani za Tsogolo
Ngakhale kupita patsogolo, mankhwala a cystic fibrosis akhoza kuchepetsa moyo wanu. Kawirikawiri kuyembekezera kwa moyo kwa anthu okhala ndi CF ku United States ndi zaka pafupifupi 40.
N'zosangalatsa kulingalira za kuthekera kosakhoza kulera mwana wanu kuti akhale wamkulu, koma ndizotheka muyenera kulingalira. Muyenera kukambirana zomwe zingatheke ndi mnzanuyo ndipo muyambe kukonzekera kusamalira mwana wanu mwamsanga.
Kuwonjezera pa kugwiritsa ntchito mankhwala ndi mankhwala ochiza matenda anu, mungathe kuganiziranso kupeza kupuma kwa mapapo. Sikuti aliyense amene ali ndi CF amalephera kufikako, koma zomwe zimachita zingathe kuchepetsa miyoyo yawo. Kuika mapapo kumakhala koopsa, koma kungakupatseni mwayi woti mukhale ndi thanzi labwino komanso kuti muwonjezere moyo wanu. Pakalipano, oposa 1600 CF odwala alandira mapuloteni a mapapu.
Pafupifupi anthu 150 mpaka 200 omwe ali ndi cystic fibrosis adalandira kupatsa mapapu chaka chilichonse kuchokera mu 2007. Ambiri mwa iwo anali adakali ndi moyo chaka chimodzi ndipo pafupifupi theka la iwo anali akuyenda bwino zaka zisanu mutatha.
Zotsatira
- Calderwood, C. ndi Nelson-Piercy, C. "Nthenda ya Phumu ndi Cystic Fibrosis mu Mimba". Mankhwala a zaumoyo a amayi. 2005. 2: 29-32
- Cheng EY, Goss CH, McKone, EF, Galic V., Debley CK, Tonelli, MR ndi Aitken ML "Chisamaliro Chokhalitsa Pakati pa Zotsatira Zotsatira Zopambana Zotsatira za Fetal Results mu CF Women." 2006 Journal of Cystic Fibrosis 5:85 - 91.
- Cystic Fibrosis Foundation. About Cystic Fibrosis. 2016.