A J-Pouch Angakupatseni Mwayi Wopambana Umoyo Wabwino
Nthawi zambiri ndimafunsidwa za opaleshoni yanga ya j-pouch , yomwe ndinali nayo mu 1999 ndili ndi zaka 26. Ndisanachite opaleshoni yoyamba, ndinali ndi mantha ndipo ndinayankhula ndi odwala ena omwe anali ndi opaleshoni ya j-poch. Anthu ena angakhale ndi kusankha ngati ayi kapena ayi opaleshoni: kwa ine ndizofunikira kuchipatala. Kuchita opaleshoni ya J-poch nthawi zina kumachitidwa chimodzimodzi kapena masitepe atatu, koma kawirikawiri pamasitepe awiri, ndi opaleshoni yomwe ndinali nayo. Kuchita opaleshoni kunkachitika kuchipatala changa chakumidzi ndi dokotala wochita opaleshoni , yemwe anali atangopanga masikiti asanu okha patsogolo pa ine. M'munsimu muli nkhani yeniyeni ya zomwe ndakhala ndikuzichita ndi opaleshoni ya j-pouch, ngakhale kuti ndapanga zina ndi zina kuti ndikhale chitsimikizo kwa anthu omwe akulingalira kapena akuchitidwa opaleshoni kuti athe kuchiza matendawa.
Masiku Amene Sakhala Otalikira M'madzi Osambira
Ndimadzuka m'mawa ndikukumana ndi kukakamizidwa komanso kukhuta mu j-poch yanga. Nthawi zambiri m'mawa amayamba njirayi, koma ndikuzizoloŵera. Pali vuto linalake, koma silimodzimodzi ndi changu chomwe ndinachimva ndi ululu wodwala m'mimba. Ndikhoza kunyalanyaza kumverera kwazing'ono, ngati ndikanasankha, ngakhale kuti zikanakhala zovuta kwambiri mpaka nditapita ku bafa.
Masiku okhala ndi ulcerative colitis anayamba kukumbukira panthawiyi, pamene ndikukhazikika mu thupi langa latsopano. Opaleshoni yoyamba (yawiri) inali yovuta: Ndinali pansi pa anesthesia kwa maola ambiri ndikuwuka ndi ileostomy yaifupi. Kukhalanso kwanthawi yayitali, ndinalibe ntchito kwa masabata asanu ndi limodzi, koma zinali zosasokoneza ndipo ndinasintha tsiku lililonse.
Ndili ndi chivundi chachikulu chomwe chimachokera pamwamba pa mimba yanga mpaka kumapisipi anga, omwe sanachiritse monga momwe ndikanakondera, makamaka chifukwa cha prednisone yomwe ndinkatenga pamaso pa opaleshoni yanga.
Sindingathe kuchotsa prednisone musanayambe kutsogolo kwa j-pouch monga dokotala wanga anali kuyembekezera: nthawi zonse tikayesera kuchepetsa kutuluka kwa magazi kuchokera ku zilonda zam'mimba ndikuyambiranso. Chotsatira chake, ine potsiriza ndinatha kugwa pansi pokhapokha opaleshoni yanga. Sindikusangalala ndi chilonda chifukwa ndine wachinyamata, koma ndikuganiza kuti kutha kwa masiku anga a bikini ndi mtengo wapatali kulipira.
'Ostomy' Si Mawu Oyera
The ileostomy sizinali zonse zomwe ndinkayembekezera. Pambuyo pa zaka za ulcerative colitis ndikudabwa pamene kutsekula m'mimba kudzasokonekera ndipo pamene ndikufunikira kusambira mofulumira, ileostomy ili ngati kukhala ndi ufulu wanga kachiwiri. Ine ndinangopita ndi kutulutsa thumba langa la ostomy pamene linadzaza. Sindinasinthe zovala zanga zonse - Ndinkavala zovala zomwezo zomwe ndisanachite pamaso pa ileostomy yanga. Ndinayamba kuchulukitsa zakudya zanga , ngakhale kuti ndinali wosamala kutsatira malangizo anga opaleshoni ndikupewa kuthamanga ngati mtedza kapena makoswe. Ndinayamba ngakhale kulemera, kwa nthawi yoyamba pa moyo wanga wachikulire. Sindinapitepo kwa miyezi itatu yomwe ndinali ndi ileostomy. Sindikuganiza kuti ndinali ndi luso lapamwamba poyika chovala changa chamagetsi, komabe sindinakhale ndi zovuta kapena zochititsa manyazi.
Kusintha kachipangizo changa kachilendo kawiri pa sabata kunakhala gawo la chizoloŵezi changa. Stoma yanga inangokhala gawo lina la thupi langa. Zinkawoneka ngati zachilendo, ngati ndinkangoganizira zambiri. Ndipotu, stoma ndi gawo la matumbo anu, ndipo anali kunja kwa thupi langa! Koma, uwu unali opaleshoni yomwe inandithandiza kukhala ndi moyo, ndikuyembekeza kwa nthawi yaitali kwambiri. Popanda izo, dysplasia ndi mazana ambiri a mapuloteni omwe amapezeka mu coloni yanga mwina amachititsa khansa ya coloni ndi zotsatira zowopsa kwa ine.
Chithandizo changa cha enterostomal (ET) chinali chodabwitsa. Ndinakumana naye asanachitike opaleshoni yanga yoyamba, ndipo anandithandiza kudziwa momwe stoma yanga ikukhalira. Pazidzidzidzi, mimba ikhoza kuikidwa kumene dokotalayo akuganiza kuti zingakhale bwino, koma ndinali ndi mwayi wokhala ndi nthawi yokonzekera. My and nurse anandifunsa za moyo wanga ndi mtundu wa zovala zomwe ndinkabvala, ndipo tinasankha pamodzi kuti ndikaike stoma yanga. Anatomy imathandizanso kumalo osungirako ziweto - Ndinauzidwa kuti matupi ndi matupi a anthu ena anali osiyana ndipo nthawi zina stoma sichikanakhoza kuikidwa pamalo omwe wodwalayo ankakonda.
Kwa ine, zinthu zinayenda bwino, ndipo mayi wanga ndi namwino anagwiritsa ntchito Sharpie kuti azindikire malo abwino kwambiri pamimba panga pa stoma yanga.
Kupita "Mwachizolowezi" kachiwiri
Pamene ndinali wokonzeka kuchitidwa opaleshoni ya j-pouch (kutengedwa, kapena kusintha kwa ileostomy), ndinali ndi nkhaŵa yaikulu za kulowa opaleshoni kachiwiri. Ndinamva bwino! The ileostomy sizinali zambiri! Kodi ndikufunadi kupyola opaleshoni ina ndikuchira? Koma zoona, opaleshoni yachiwiri inalibe pafupi kwambiri ngati yoyamba, ndipo nthawi yochira inali yofupika. Ndinali pantchito kwa milungu iwiri yokha ndipo ndinali ndi zofunikira zochepetsera mankhwala opweteka. Chinthu chodabwitsa kwambiri chinali kugwiritsa ntchito j-pouch yatsopano. Inde, ndinayenera "kutaya" izo kangapo patsiku, koma izo sizinandivutitse nkomwe. Ndikudziwa kuti anthu ambiri ali ndi nkhaŵa zokhudzana ndi kupita ku bafa katatu pambuyo pochita opaleshoni kusiyana ndi m'mene akuchitira opaleshoni, koma kwa ine sindikanakhala vuto. Chilonda changa cha ulcerative colitis chinkaoneka ngati chowopsa, ndipo ngakhale pamene ndinachira opaleshoni yoyamba ndinkamverera bwino kuposa momwe ndinkachitira pamene matenda anga a colitis anali aakulu kwambiri.
Poyamba zinyama zanga kudzera mu j-poch wanga zinali zamadzi ndipo, zoona zanenedwa, zopweteka . Iwo anatentha. Koma ndinaphunzira mwamsanga zakudya zomwe ndiyenera kupewa: zakudya zokometsera zokometsera, zakudya zokazinga, mafuta ochuluka, mafuta ambiri a khofi. Ndinalinso ndi zizoloŵezi zina zambiri zomwe zimapangitsa kuti ululu ndi kuyaka zikhale zochepa: kugwiritsa ntchito zonyowa pamunsi panga, pogwiritsira ntchito zowonongeka m'malo mwa pepala lakumbudzi, ndikudya zakudya zomwe zingayambitse chophimba changa, monga peanut bata kapena mbatata. Dokotala wanga anandipatsa ine ndondomeko yochepa pazinthu izi, koma zina mwa izo ndinaphunzira mwa kuyesera ndi zolakwika, chifukwa aliyense ali osiyana pankhani ya zakudya. Zinatengera nthawi kuti khungu langa la perianal likhale lolimba komanso kuyaka kuima. Nditangomaliza kudya zakudya zanga, sitima yanga inayamba kukhazikika, ndipo ndinali mu bafa yoperewera. Ndipotu, ndikawona dokotala wanga akufunsapo kuchuluka kwa matumbo omwe ndili nawo tsiku, ndipo moona mtima sindimasunga.
Kusuntha kwa thupi kwanga kumakhala phokoso, koma ndakhala ndikuchita manyazi chifukwa cha iwo. Kuchita opaleshoni ine ndinali nditapulumutsa moyo wanga, ngakhale kuti unasintha maatomu anga kwamuyaya. Ngati ndasamala kwambiri ndi zakudya zanga, ndimatha kukhala ndi malo okhala, koma nthawi zambiri sindisamala ndi zakudya zanga. Ndinali ndi ulcerative kolitis kwa zaka 10, nthawi zina ndimakhala ndi gelatin komanso msuzi, (komanso pa sabata lachiwiri losakumbukira m'chipatala, palibe chilichonse, ngakhale madzi) ndipo tsopano ndikudya chakudya, chakudya chenicheni, kachiwiri, sindikufuna kuti ndidzipatse zakudya zowonongeka. Ndili ndi malire - sindingadye saladi ndi mtedza kuti ndizitsatiridwa ndi chimanga cha phokoso - koma ndikusangalala ndi zakudya zambiri lero zomwe sindikanaganiza kuti ndikudya m'magulu anga a zilonda zam'mimba.
Koma Kodi Ichi Ndi "Chithandizo"?
Anthu nthawi zambiri amalankhula za opaleshoni ya j-pouch monga "mankhwala" odwala ulcerative. Sindikumva ngati ichi ndikulongosola molondola. Kodi kuchotsedwa kwa chiwalo chachikulu chikhoza kuonedwa kuti ndi "mankhwala"? Kwa ine, mankhwala angakhale machiritso a matumbo ndi kutha kwa zizindikiro. Tsogolo la j-pouch langa silinadziwike kwa ine. Ndikhoza kukhala mmodzi wa iwo omwe amapanga pouchitis : vuto lomwe silingamvetsetse lomwe limayambitsa zizindikiro monga malungo ndi kutsekula m'mimba. Pouchitis nthawi zambiri amachiritsidwa ndi ma probiotics ndi maantibayotiki, koma amakhalanso akubwereranso. Dokotala wanga akudziwanso ngati ndikulephera kukhala ndi mavuto monga mapuloteni kapena zochitika zamkati za m'mimba zomwe zingayende limodzi ndi matenda opatsirana monga amthempha .
Epilogue
Ndikudziwa kuti msewu wanga wochokera ku ulcerative colitis mpaka j-pouch wakhala wosavuta kwambiri. Izi ndikuzidziwitsa luso langa lochita opaleshoni, komanso ndikufunitsitsa kutsatira malangizo a dokotala wanga kwa kalatayo. Ndakumana ndi anthu ena ambiri amene amasangalala ndi zikwama zawo, koma ndakhala ndikukumana ndi ena omwe ataya zikwama zawo kuti azikhala ndi pouchitis, kapenanso chifukwa chomwe chinapezeka ngati zilonda za ulcerative chinali chomalizira kukhala matenda a Crohn. Ndimadziwanso ena omwe adakumana ndi zovuta zowonjezereka monga matenda. Azimayi ena omwe ali ndi j-pochi amapeza kuti abereka . Ndizosatheka kudziwa momwe opaleshoni idzakhudzira munthu wina aliyense, koma kwa ine, zonse zakhala bwino.