Magulu Okulimbikitsa Odwala Matenda a Crohn & Ulcerative Colitis
Matenda a kutupa matumbo (IBD) amabweretsa mafunso ndi mavuto osiyanasiyana. Ndipo odwala ambiri amayesetsa kuthandizira kumvetsa matenda awo ndi kugwirizana ndi odwala ena. Kwa anthu omwe ali ndi matenda a Crohn ndi zilonda zam'mimba, pali mabungwe ambiri othandizira komanso zopanda phindu omwe amapereka mautumiki osiyanasiyana kuti athandizidwe kuyenda ndi IBD.
Magulu oterewa amapereka chirichonse kuchokera ku chithandizo cha munthu, kumtundu wothandizira foni, kuthandiza ndi ndalama zamalonda ndi mafunso olemala. Kulumikizana ndi bungwe lothandizira a IBD komanso kulandira chidziwitso ndi thandizo loperekedwa ndi gawo lofunikira la ulendo wodwala komanso zomwe zingathandize kuchepetsa mavuto ena a IBD. Pansipa, pezani magulu othandizira odwala omwe ali ku United States, Canada, ndi Europe omwe apereka ndalama zawo kuthandiza odwala.
Crohn's & Colitis Foundation
Crohn's & Colitis Foundation (yemwenso amadziwika kuti Foundation) ndi gulu lalikulu lomwe silinapindulepo phindu loperekedwa kwa anthu omwe ali ndi IBD ku United States. Yakhazikitsidwa pachiyambi mu 1967 monga The National Foundation for Ileitis ndi Colitis, Foundation imathandizidwa kupyolera mu zopereka kuchokera kwa omutsatira ndi mafakitale. Crohn's & Colitis Foundation ili ndi makina ambiri, kuphatikizapo Tengani magawo ndi spin4 Crohn's & colitis.
Anthu omwe ali ndi IBD angagwiritse ntchito mwayi wa magulu omwe amathandizidwa kumudzi, komanso:
- Kampu ya chilimwe yoperekedwa kwa ana omwe ali ndi IBD
- Bungwe lothandizira la IBD, kumene odwala ndi osamalira angagwirizane ndi katswiri wa IBD kudzera pa imelo kapena foni
- Community Crohn's & Colitis, gulu lothandizira pa Intaneti komwe odwala ndi osamalira angathe kulumikizana pafupifupi
- Zochitika zamakono zomwe zasankhidwa ndi Foundation ndi anzawo
- Zolinga za ulaliki zomwe zimapangitsa zofuna za odwala ndi ogwira ntchito zaumoyo m'maboma ndikupereka ndalama zowonjezera
- Nyuzipepala ya National Council of College Leaders (NCCL), gulu la achinyamata lomwe limayesetsa kuwonjezera maphunziro ndi chithandizo kwa anthu omwe ali ndi IBD kupyolera muzinthu zosiyanasiyana zoyendetsera polojekiti komanso zophunzitsa ndalama.
- Ubale ku Crohn's & Colitis Foundation kwa anthu omwe ali ndi IBD kapena aliyense amene akufuna kuthandiza omwe ali ndi IBD (chifukwa chopereka ndalama)
Crohn's ndi Colitis Canada
Crohn's ndi Colitis Canada inakhazikitsidwa mu 1974 ndi gulu la odwala 20 ndi osamalira odwala omwe anakhudzidwa ndi IBD. Mazikowa amapereka chithandizo chosiyanasiyana kwa omwe ali ndi IBD omwe akukhala ku Canada, omwe kwenikweni ndi amodzi mwa mayiko omwe akudwala kwambiri.
Kuchokera modzichepetsa poyamba mu chipinda chodzala ndi anthu omwe ankadandaula kuti panalibe zipangizo zamaphunziro kapena zofukufuku zomwe zathandizira anthu omwe ali ndi IBD kapena chithandizo, zakula kuti zikhale zowonjezera dziko lonse ndi mitu 45. Mpaka pano, yadzutsa $ 100 miliyoni.
Crohn's ndi Colitis Canada imathandizira njira zambiri zofufuzira zomwe sizikuphatikizapo chitukuko cha mankhwala atsopano, komanso zomwe zikuwongolera umoyo wa anthu omwe ali ndi IBD. Kafukufuku wina ndi GEM Project, yomwe imayesetsa kumvetsetsa zomwe zimayambitsa IBD pophunzira omwe ali pachiopsezo chotenga mawonekedwe a matendawa.
Anthu omwe ali ndi IBD akhoza kuthandizidwa ndi Crohn's ndi Colitis Canada kudzera m'mapulogalamu awo omwe akuphatikizapo:
- Kuyendayenda, kayendetsedwe ka ndalama zomwe zimathandizanso odwala kukhala oyenera
- Kampulu Got2Go (malo awiri ku Canada)
- Pulogalamu ya IBD yophunzitsa maphunziro yomwe imapereka mphoto 10 pokhapokha kwa ophunzira omwe ali ndi maphunziro apamwamba
- Gutsy Learning Series yomwe imapereka mavidiyo angapo omwe anthu omwe ali ndi IBD angagwiritse ntchito kuphunzira zambiri zokhudza matenda awo
Crohn's & Colitis UK
Crohn & Colitis UK ndi chikondi chomwe chimaperekedwa ku United Kingdom chomwe chimapereka chithandizo ndi chidziwitso kwa omwe amakhala ndi IBD. Kuphatikiza apo, imathandizira ndikupanga kafukufuku yemwe akuyesetsa "kusintha miyoyo ya anthu a mibadwo yonse ndi matenda a Crohn kapena ulcerative colitis."
Yakhazikitsidwa mu 1979, Crohn's & Colitis UK ili ndi mapulogalamu monga mu UK ndi Family Network omwe amapereka zochitika zosangalatsa ndi malangizo kwa makolo a ana omwe ali ndi vuto linalake, monga kuyendetsa sukulu ndi matenda aakulu.
Ubwino wina umene Crohn's & Colitis UK amapereka umaphatikizapo:
- Ndondomeko Yothandizira Odwala ndi Othandizira Angagwirizane ndi Anzawo kuti apereke ma vocha a maphunziro ndi zosowa za tsiku ndi tsiku
- Mapindu olepheretsa anthu omwe ali ndi UK ku United States angakwanitse kuyenda bwino ndi thandizo la Crohn's & Colitis UK
- Pulogalamu Yophunzitsa Odwala Amene amapereka mitu ya munthu kuti adziwe zambiri za matenda awo
- Yendani! zochitika ku UK zomwe zimapereka mwayi kwa odwala kuti azipeza ndalama za Crohn's & Colitis UK komanso kukumana ndi odwala ena ndi osamalira ena
Crohn & Colitis Australia
Crohn's & Colitis Australia (CCA) ndi bungwe lopanda ntchito lomwe limapereka "kupanga moyo wodalirika" kwa anthu okhala ndi IBD ku Australia. CCA inakhazikitsidwa zaka zoposa 30 zapitazo ndipo kale idadziwika ngati Crohn's and Colitis Association ya Australia.
CCA imachita nawo maphunziro pa kafukufuku ndipo imapereka kafukufuku wophunzira maphunziro apamwamba, koma cholinga chawo chachikulu ndi kuthandiza odwala IBD. Zopereka zothandizira pulogalamu zawo zikuphatikizapo zopereka komanso ndalama zopangira ndalama.
Anthu omwe amakhudzidwa ndi IBD akhoza kukhala mamembala ndikulandira ineyo Insight , magazini ya CCA, khadi "Sindiyembekezera", ndi kupeza gawo lokha la webusaitiyi. Zina mwa mapulogalamu ndi misonkhano zomwe Crohn's & Colitis Australia amapereka zikuphatikizapo:
- Magulu othandizira omwe ali mkati mwa Australia omwe ali otseguka kwa anthu omwe miyoyo yawo imakhudzidwa ndi IBD
- Maphwando apamwamba kuti athandizire ndalama zothandizira gulu la IBD
- Bungwe lothandizira la IBD (1-800-138-029) lomwe limapereka chithandizo chamumtima ndi kutumiza pa foni
- Kusintha Moyo Cholinga chimene ophunzira angathe kuthamanga, kusambira, kapena kukwera njinga kuti akweze ndalama zomwe zimathandiza pulogalamu ya CCA
Kulumikizana Kuchiritsa Crohn's ndi Colitis
Kuyanjanitsa Kuchiritsa Crohn's ndi Colitis (C mpaka C) ndi bungwe lopanda ntchito yopanda phindu lothandizira odwala ndi IBD. Yakhazikitsidwa ndi Stacy Dylan, mayi wa mwana yemwe ali ndi matenda a Crohn, ndi Dana Zatulove, mayi wa mwana yemwe ali ndi zilonda zam'mimba, amadzipereka kuti athandizidwe kuti adziwe zomwe zimayambitsa IBD komanso kupewa chiopsezo chachikulu chokhala ndi IBD.
C mpaka C imapereka ndalama pogwiritsa ntchito zopereka, gala pachaka, Rock the Night kuti adziritse Crohn's ndi Colitis, Chip pa masewera a golf a Crohn, ndi zoimba za ana a piano. Amagwirizananso ndi Cedars-Sinai Medical Center ku Los Angeles kuti apereke magulu othandiza anthu omwe akukhudzidwa ndi IBD, kuphatikizapo odwala, osamalira ana, ndi mabanja.
Atsikana Okhala ndi Magetsi
Atsikana Amene Ali ndi Guts (GWG) bungwe lopanda phindu lomwe linakhazikitsidwa ndi Jackie Zimmerman pambuyo poyankha mwatchutchutchu kwa sabata losavomerezeka la kugwirizanitsa ndi amayi ena omwe ali ndi IBD adasonyeza kusowa kwa chithandizo cha amayi. Atsikana Amene Ali ndi Magwiridwe Otsutsana Ndi omwe amasonkhana mlungu uliwonse omwe amathandiza amayi omwe ali ndi IBD kukhazikitsa mabwenzi amphamvu ndikuphunzira momwe angakhalire bwino ndi matenda awo.
GWG imapereka ndalama kudzera mu zopereka ndi zochitika zenizeni, monga 5k padziko lapansi. Amaperekanso gulu la IBD ndi gulu lachinsinsi la Facebook la amayi omwe athandizidwa ndi IBD, mavidiyo odziwa zambiri, ndi ndondomeko ya makalata olembera makina.
Kupititsa patsogoloCareNow
ImproveCareNow ndi gulu lopanda phindu limene lakhazikitsa odwala, mabanja, osamalira, komanso akatswiri a zaumoyo kuti apitirize kusamalira ana omwe ali ndi matenda a Crohn ndi matenda a zilonda zam'mimba. Amathandizira kufufuza komwe kwapangidwa ndikuphatikizapo odwala komanso mabanja omwe amakhudzidwa ndi IBD.
Mapindu operekedwa kwa odwala a IBD ndi ImproveCareNow amawagwiritsa ntchito kuti akhale ndi IBD, monga mabuku odziyang'anira okha, adokotala omwe amapita kuchipatala, ndi ImproveCareNow Exchange, malo omwe anthu amatha kugawa nawo. Misonkhano ya Community ImproveCareNow imachitikanso chaka chilichonse m'chaka ndi kugwa. Bungwe limalimbikitsa ndalama kudzera mu zopereka ndi mgwirizano mwachindunji ndi makampani ndi othandizana nawo.
Mawu Ochokera
Kupita ku matenda a IBD ndikovuta chifukwa chake odwala sayenera kupita okha. Madokotala ndi othandizira ena akhoza kukhala zothandiza, koma anthu omwe ali ndi matenda a Crohn ndi matenda a zilonda zam'mimba adzafuna thandizo lina muulendo wawo wa matenda.
Ichi ndichifukwa chake magulu ambiri othandizira odwala omwe adalimbikitsa odwala makamaka m'madera omwe IBD yakula kwambiri, monga United States, Canada, ndi Europe. Anthu omwe ali ndi IBD ayenera kupindula ndi zopereka zomwe bungwe la IBD likupereka kuti likhale ndi moyo wabwino.