Matenda a Parkinson (PD) ndi matenda ovuta a ubongo omwe amachititsa kuti asiye kusuntha koma amathandizidwanso ndi zizindikiro zina zomwe sizimagalimoto monga kugona, kukhumudwa, kudzimbidwa komanso kutaya fungo. Kuwonjezera pa zovuta zake ndikuti njira zamakono zamakono za PD zimakhala ndi zotsatira zomwe zimachepetsa ntchito yawo.
Ngakhale asayansi athandizidwa kwambiri kuti amvetsetse chilengedwe cha PD ndipo akupanga njira zothandizira kuti azitha kuyang'anira bwino zizindikiro, pali mavuto ambiri omwe akuyandikira izi zowopsya komanso zofooketsa ("kufa kwa maselo a ubongo").
Potsirizira pake, tikufuna machiritso a Parkinson, ndipo njira yokhayo yopezera machiritso ndi kudzera mu kufufuza ndi kuzindikira. Ngakhale pali zifukwa zingapo zomwe zimalimbikitsa matenda a Parkinson, ndi zachilendo kufunsa kuti ndiwe uti uyenera kuganizira. Izi zanena, apa pali mndandanda wa maziko a Parkinson omwe amawoneka oyenerera kuthandizira kwanu.
Michael J. Fox Foundation
Wolemba nyimbo komanso wolimbikitsa Michael J. Fox akugawana nkhani yake ya kukhala ndi Parkinson pa webusaiti ya maziko. Amalimbikitsanso cholinga chake chachikulu (ndi maziko) kupeza chithandizo kwa PD.
Kafukufuku
Izi ndizokhazikitsidwa momveka bwino ponena za ntchito yake yofufuza ndi momwe ndalamazo zimathandizira ndalama zokwana madola 700 miliyoni zomwe zaperekedwa ku kafukufuku wa PD mpaka lero, kupanga mazikowo kukhala ndalama zopanda phindu padziko lonse la kafukufuku wa PD.
Iphatikizani
Njira imodzi yomwe mungapezere zambiri ndi Michael J. Fox Foundation ndi kukhala membala wa Team Fox. Team Fox ndi pulojekiti yomwe anthu akuyendetsera polojekiti yomwe anthu amapanga zochitika zosiyanasiyana zokopa ndalama, monga mapikisano a njinga zamoto ndi ma concerts, kuti apereke ndalama za kafukufuku wa PD.
Palinso gulu la Team Fox Young Professional (YP) lomwe lili mumzinda umodzi ku United States, komanso ku Toronto, Canada. Gululi liri ndi zaka 20 mpaka 30 omwe ali ndi maziko osiyanasiyana, ambiri mwa iwo ali ndi wokondedwa ndi Parkinson . Ophunzira awa amatenga gawo lapadera la utsogoleri ndikukhalabe odzipereka kuti apeze ndalama zofufuza.
Zida
Michael J. Fox Foundation amapereka chidziwitso chochuluka pa PD. Chida chimodzi chophunzitsira maphunziro omwe amachigwiritsa ntchito ndi vidiyo yakuti "Foxfeed Blog" yomwe ili ndi katswiri wa sayansi ya zamoyo ndi odwala matenda omwe amayenda pazinthu zomwe zimagwirizana ndi PD.
National Parkinson Foundation
Yakhazikitsidwa m'ma 1950, National Parkinson Foundation, kapena NPF, ikufuna kusintha miyoyo ya anthu okhala ndi matenda a Parkinson.
Kafukufuku
Phunziro limodzi lopambana lofufuza ndilo Pulogalamu ya Parkinson ya Project NPF yomwe ili ndi anthu pafupifupi 10,000. Cholinga cha phunziro lino ndi kufufuza zinthu zingapo zomwe zimakhudza momwe munthu amakhala ndi matendawa. Phunziroli likuphatikizapo zotsatirazi:
- Kumvetsa mapindu a masewera olimbitsa thupi mu PD
- Kuphunzira udindo wa kupsinjika maganizo ndi nkhawa mu umoyo wa munthu yemwe ali ndi PD
- Kufufuza chifukwa chake PD imasamalidwa mosiyana malinga ndi kumene munthu amasamaliridwa
Iphatikizani
Njira imodzi yothandizira National Parkinson Foundation kukweza ndalama ndi kuyamba Team Hope fundraiser, zomwe zikutanthauza kukonzekera zokhazokha kapena kuchita nawo mpikisano wopirira.
Inu ndi okondedwa anu mukhoza kutenga nawo mbali pa Tsiku la Moving, lomwe likuchitikira mumzinda wosiyanasiyana ku United States. Chochitika ichi cholimbikitsa ndalama chimalimbikitsa mtundu uliwonse wa "kayendedwe" monga yoga, tai, pilates, ndi kuyenda.
Zida
Chinthu chamtengo wapatali choperekedwa kudzera mu NPF ndi mitu yawo ya NPF yomwe imapereka mwayi wopezera magulu othandizira komanso zochita zolimbitsa thupi m'mudzi mwawo.
Kuphatikiza apo, kudzera mu webusaiti yawo, mukhoza kupeza NPF Centers of Excellence zomwe ziri m'dziko lonselo. Malo awa ndi zipatala zamaphunziro zomwe zimapereka chisamaliro kwa iwo omwe ali ndi Parkinson. Amachita nawo kafukufuku wokhudzana ndi Parkinson.
Ndipotu ena mwa malowa amapereka mayesero omwe munthu amene ali ndi matenda a Parkinson angalowemo, ngati akuyenera. Komanso, malo ena amapereka mankhwala ochiritsira a Parkinson, monga mankhwala opatsirana, mankhwala othandizira, ntchito ya kulankhula, ndi uphungu. Malo ena amaperekanso chithandizo cha PD, monga kukakamiza ubongo kwambiri, ndi njira yomwe imaphatikizapo kutulutsa gelopa / levodopa (Duopa) kudzera mu chubu m'matumbo aang'ono.
Association of American Parkinson Disease Association
Bungwe la American Parkinson Disease Association, kapena APDA, linakhazikitsidwa mu 1961 ndipo lapitirira ndalama zokwana madola 170 miliyoni popereka maphunziro, kulimbikitsa chidziwitso, kuthandizira kufufuza, ndi kupereka ntchito kwa anthu okhala ndi PD.
Kafukufuku
APDA idalipira ndalama zokwana madola 46 miliyoni pa kafukufuku mpaka lero ndipo pakalipano imakhala ndi malo asanu ndi atatu a kafukufuku wopititsa patsogolo omwe ali muzipatala zazikulu zamankhwala ku United States. Chaka chilichonse, amaperekanso zopereka zothandizira ndi maubwenzi kwa asayansi kuphunzira matenda a Parkinson.
Iphatikizani
ADPA imapereka Optimism Walk, fundraiser yomwe imalimbikitsa kuyenda (pakati pa mamita atatu ndi atatu) m'malo osiyanasiyana m'dziko lonselo.
Mukhozanso kuyendetsa webusaiti yawo kuti muwerenge Nkhani za anthu zokhumba. Nkhanizi ndi nkhani zosuntha za anthu za momwe adaphunzilira kukhala ndi moyo ndi kukhala ndi moyo wabwino ndi PD. Mwalandiridwa kuti mugawane nthano yanu yomwe ingakhale yachilendo kwa anthu ena.
Zida
Monga maziko ena, zipangizo za maphunziro ndi zambiri ndipo zimaphatikizapo:
- Mitu ya dziko lonse lapansi ndi malo othandizira (& I) R & I (R & I)
- Makapu oposa 30 a maphunziro ndi makalata omwe ali mfulu ndipo akhoza kutumizidwa kunyumba kwanu kapena kuwerengera pa kompyuta
- Mndandanda wamakalata
- Hotline yaulere (888-606-1688) yomwe imayang'aniridwa ndi wodwalayo wothandizira amene amadziwitsa zambiri za masewera olimbitsa thupi mu PD.
Matenda a Parkinson Foundation
Parkinson's Disease Foundation, kapena PDF, imatchula ntchito yawo yaikulu ngati imodzi mwa kudziwa chomwe chimayambitsa matenda a Parkinson.
Kafukufuku
Pulogalamuyi ikuthandizira pulogalamu ya sayansi yoposa 40 ndi mapulojekiti oposa $ 5 miliyoni. Makamaka, amathandizira kafukufuku pazipatala zitatu zochititsa chidwi zamaphunziro:
- University University of Columbia ku New York, NY)
- Rush University Medical Center (Chicago, IL)
- Weill Cornell Medical Center (New York, NY)
Iwo amaperekanso kafukufuku wopereka ndalama ndi zopereka za ntchito yopititsa patsogolo ntchito kuti asankhe asayansi ndi anthu ena azachipatala amene ali ndi chidwi ndi PD.
Iphatikizani
Njira imodzi yogwirizanirana ndi Parkinson's Disease Foundation ndi kuwonetsa mbali za Project Quilt ya Parkinson. Chombochi chinapangidwa ndi anthu oposa 600 omwe adagawana nawo PD kudzera zithunzi, zithunzi, mawu, ndi zizindikiro. Tsopano, mutha kubwereka mapepala a quilt kuti adziwitse kumudzi wanu.
Njira ina yowonjezereka yogwirizanitsa nkhani yanu ngati muli ndi PD kapena mukukweza ndalama monga Champion PDF.
Zida
Pulogalamuyi imapereka zinthu zambiri zoganizira kwa anthu omwe ali ndi PD komanso achibale awo, abwenzi, ndi / kapena osamalira. Ena mwa awa ndi awa:
- Luso lothandizira lothandizidwa ndi akatswiri a Parkinson omwe alipo kwa onse omwe ali ndi vutoli ndi okondedwa awo
- A "kuphunzitsa pulogalamu" kwa anamwino ndi odwala kuti athe kusamalira anthu omwe ali ndi Parkinson
- Kuchita seminala pa intaneti kwa aliyense yemwe akufuna kuphunzira za Parkinson
Mawu Ochokera
Inde, pali zambiri zothandizira, mabungwe, magulu othandizira, ndi mabungwe omwe amathandiza matenda a Parkinson kuposa omwe atchulidwa pano. Koma, mukuchita khama lanu poyang'ana maziko omwe akugwirizana ndi zomwe mukuyembekezera. (Ngati izi sizikuchitika, chonde pitirizani kufufuza.)
Kumbukirani, kusankha kugwira ntchito ndi maziko enieni ndi njira ziwiri. Pamene mupereka nthawi yanu yamtengo wapatali, ndalama, ndi mphamvu ku bungwe, mutsimikizidwe kuti mudzapeza phindu linalake-mwinamwake chidziwitso, chibwenzi chatsopano, kukumbukira bwino, kapena kungokhala mwamtendere.
> Chitsime:
> Schrag A, Horsfall L, Walters K, Noyce A, Petersen I. Ndondomeko zowonongeka za matenda a Parkinson pa chisamaliro choyambirira: Kufufuza kwa kafukufuku. Lancet Neurol. 2015 Jan; 14 (1): 57-64.