Marianne Ehlert wa Maulendo Otetezedwa amagwira ntchito ndi mabanja a anthu pa autism spectrum kukonzekera kukhala ndi moyo wamkulu. Zomwe mungapeze kwa anthu pa autism spectrum zimasiyana kuchokera ku boma kupita ku boma komanso kwa munthu payekha. Zowonjezera zimakhala ndi ufulu wodzipereka kumoyo wadziko. Kuzindikira momwe munthu akufunikira, komwe angapeze, ndi momwe angagwiritsire ndalama, zingakhale zovuta.
Ehlert akulemba kuti ndikofunika kuyamba kuganizira za munthu wamkulu pamene mwana wanu ali ndi autism adakali wamng'ono. Chifukwa chake, chifukwa ana omwe ali ndi autism amakhala oyenerera zosowa zapadera komanso mapulogalamu otha kusintha masukulu awo , zomwe zikutanthauza kuti pulogalamu ya mwana wanu yophunzitsidwa ikhoza kugwiritsidwa ntchito pothandizira zolinga zanu zamtsogolo. Zimakhalanso chifukwa choti kuganizira, kukonzekera, ndi kukhazikitsa moyo wabwino kwa munthu pa autism zimatha kutenga nthawi yaitali.
Khwerero 1: Ganizirani Chokhazikitsira Choyenera kwa Mwana Wanu Wamkulu Ndi Autism
Makolo onse, Ehlert akuti, amafuna kuti ana awo akhale "otetezeka komanso osangalala" akakula. Koma kholo lirilonse liri ndi masomphenya osiyana a zomwe "zotetezeka ndi zosangalatsa" zingawonekere. Masomphenyawa, akuti, zimadalira kwambiri zomwe kholo limaphunzira komanso malingaliro monga momwe alili ndi malingaliro a mwanayo. Komabe, ndi kofunikira kuti makolo ayambe kuganizira za tsogolo lawo la mwanayo asanachite zochitika zina.
Kodi mwana wanu angakhale kuti? Mu mzinda? Pa famu? Yokha? Ndi gulu? Kunyumba ndi makolo? Ehlert akuti, pali zamoyo zisanu zomwe mungachite:
- Kunyumba ndi banja-Malo okhala ndi misonkhano yomwe imabwera ndikuyang'ana anthu okhalamo (onetsetsani kuti akulipira ngongole, kuyeretsa, ndi zina zotero) Izi ndizo zothandizira zokhudzana ndi moyo, ndipo zimatha kukhala padera kapena pothandizidwa ndi anthu.
- Pulogalamu ya anthu ogona nyumba / ogona nawo-anthu amakhala mu nyumba kapena nyumba yomwe ili gulu la gulu lothandizira; Wosamalira amaonetsetsa kuti aliyense ali bwino usiku, amayendetsa mapulogalamu, ndi zina zotero.
- Gulu lapanyumba (wothandizira okhudzana ndi moyo wothandizira) amakhala pa webusaiti
- "Dorm-style," malo akuluakulu (kukhazikitsidwa kwa malo, malo okhala otsika kwambiri)
Khwerero 2: Dziwani ngati Kukonzekera Kwanu Kukupezeka
Makolo akale (kapena makolo ndi ana awo achinyamata omwe ali ndi autism) adziwa kuti ali ndi moyo wabwino, sitepe yotsatira ndi kudziwa ngati kukhalako kulipo kapena ngati banja liyenera kukhazikitsa. Makolo ambiri odalirika akukhudzidwa ndi kugwirizana ndi kulenga malo okhala kwa mwana wawo ndi autism. Ena akuthandizira ndalama kapena kukhala ndi moyo wothandizira; ena akulingalira ndi kupanga zochitika zapanyumba / kunyumba m'matawuni, mizinda, ndi kumidzi.
Kawirikawiri, zambiri zokhudzana ndi moyo wachikulire m'dera lanu kapena chigawochi zimapezeka kudzera m'mayunivesite. Ngati sichoncho, mungafunikire kuyang'ana mu Dipatimenti Yokulemala Kwambiri, Dipatimenti ya Public Welfare, kapena bungwe lina loyenera. Chitani ntchito yanu ya kusukulu kuti mudziwe zomwe ziri kunja uko.
Khwerero 3: Dziwani Zomwe Ana Anu Amafunikira ndi Maluso Ake
Chinthu chotsatira ndicho kuzindikira nzeru za mwana wanu kuti apeze zomwe zingathandize kuti moyo wanu ukhale wogwira ntchito. Chinthu chachikulu pakati pa luso la achinyamata omwe amafunika kukhala ndi moyo wawokha ndi luso loyendetsa ndalama, kugulitsa, kuphika, kutsuka komanso kuyendetsa ukhondo. Komabe, kumbukirani kuti ochepa chabe omwe ali achichepere ali okonzekera moyo wokha. Kodi mungadandaule ngati mwana wanu wamwamuna wazaka 20 ankakhala pa pizza ndikudya chakudya, kapena kuvala jeans yomweyo kawiri musanamatsuke? Ngati sichoncho, mwinamwake musadere nkhawa kwambiri za mwana wanu wazaka 20 ndi autism zomwezo.
Ehlert akufotokoza bwino izi:
"Makolo angakhale ndi zofunikira kwambiri kwa ana a autistic kusiyana ndi ana omwe amadziwika chifukwa amadzimva kuti ali ndi udindo wopatsa mwana wawo chimwemwe. Zimakhala zovuta kuti ana a autistic alephere. Mwa njira zina zimakhala zosavuta kusamalira kulephera kwa ana awo chifukwa makolo amaona kuti ndi mbali ya njira yophunzirira - pamene makolo nthawi zambiri amafuna kuteteza ana awo ndi autism kulephera.ndizovuta kudziwa kutalikira kuti muteteze mwana wanu wamkulu ndi autism.zina nthawi zina kulephera kungayambe khalidwe, kapena zingakhale zovuta kuti mupeze Nthawi zambiri, makolo a mtsikana amadziwa zomwe mwanayo amafunikira. "
Khwerero 4: Pezani Malo Oyenera kwa Mwana Wanu
Malinga ndi kumene mukukhala, pali mabungwe osiyanasiyana omwe amasamalira malo okhala okhala ndi olumala. Kuwonjezera pa mabungwe omwe amayendetsedwa ndi boma, mungafunenso kufufuza malo osungirako okhazikika ndi boma, dera, kapena dera. Mwina mungafune kuyamba kafukufuku wanu ndi dera lanu la chigawo kapena sukulu. Kuwonjezerapo, komabe, mungafune kuyang'ana ndi magulu othandizira a autism komanso zofufuzira monga AutismLink kuti mupeze zosankha zambiri.
Ngati mutapyola bungwe la boma, akuti Ehlert, funsani wogwira ntchito yamlandu yemwe angapereke mndandanda wa malo omwe mungawone. "Makolo ayenera kupita kunja kukayang'ana ndikuwona zomwe ziri kunja uko," akutero. Tengani ulendo wa 'boma', kuchepetsa zomwe mungasankhe, kenako pitani kukacheza mosayembekezereka. Ehlert akukulimbikitsani kuti mufufuze njira iliyonse, kuyang'anitsitsa pa:
- Zotsatira za antchito
- Malipoti aliwonse a nkhanza
- Ubwino wa wosamalira munthu aliyense (mosiyana ndi zooneka bwino)
- Kupezeka kwa maola ndi "chithandizo chovomerezeka"
- Mndandanda wa mndandanda wadikira
Mutakhala ndi zofuna zingapo zomwe mumakonda, ndi nthawi yoti mumvetsetse mwana wanu ndi autism pakupanga chisankho. Ehlert akulemba kuti ana apamwamba akugwira ntchito akhoza kubweretsedwa kale, malingana ndi momwe mulili.
Khwerero 5: Funafunani Ndalama
Poyamba, akuti Ehlert, funsani za ndalama zomwe mungasankhe . Ngati ndalama zikupezeka, kodi mukuyenerera? Ngati muli ndi chitetezo chaumphawi ndi Medicare, muyenera kukhalabe oyenerera ndalama zilizonse. Chodetsa nkhaŵa, komabe, ndi ndalama mu dzina la mwana wanu. Ngati n'kotheka, ndalamazo ziyenera kuikidwa pa zosowa zapadera.
Ndizoona, akuti Ehlert, kuti kupeza kuti nyumba yabwino ingathe kuyenda panyanja ya tepi yofiira. Kuonjezerapo, muyenera kuonetsetsa kuti mukukonzekera zosowa za mwana wanu wamkulu. Ngati simukupeza zomwe mukuyang'ana pakhomo la nyumba, amalingalira, ganizirani kugwira ntchito ndi gulu la makolo kulenga ndi / kapena kusungira malo abwino. Ngati mukuganiza kuti mwapeza malo abwino, yambani nawo. Khalani msewu wofunikira. Pitani ku bolodi lawo.
Kupeza ndi kulipirira nyumba yabwino kwa mwana wanu wamkulu ndi autism sikumveka, ndipo sizingatheke usiku wonse. Koma pokonzekera mosamala, kufufuza, ndi kulenga, makolo akupeza kuti n'zotheka kupeza-kapena kulenga-zowathandiza, malo abwino okhala ndi ana awo ndi autism.