Kuika mapapo kumaoneka ngati "sindinayambe" chithandizo cha cystic fibrosis. Koma ziribe kanthu momwe mumakhalira mwakhama ndi chithandizo chanu, chowonadi chosautsa ndi chakuti tsiku lidzafika pamene mapapu anu sangathe kumenyana nawo panonso. Potsirizira pake, kuwonongeka kwa moyo wanu wonse kumenyana ndi cystic fibrosis (CF) idzakhala yaikulu kwambiri, ndipo mapapu anu ayamba kulephera.
Panthawiyi, othandizira zaumoyo angakulimbikitseni kupatsa mapapo monga chithandizo chamankhwala chomwe chingawonjezere zaka m'moyo wanu.
Mudzakumana ndi chigamulo chachikulu chomwe chimafuna kudzipereka kwakukulu. Udzakhala ndi mafunso ambiri. Pezani mayankho kwa ena a iwo pano.
Ndiyo Nthawi Yoganizira Kusamba
Othandizira anu azaumoyo adzakuthandizani kusankha ngati ndi nthawi yanji kwa inu, koma kawirikawiri, opaleshoni amawerengedwa kwa anthu omwe ali ndi matenda akuluakulu a mapapu ndi a FEV osachepera 40%.
Kodi Kupaleshoni Kumachiza Cystic Fibrosis?
Ayi, osati kwathunthu. Ambiri mwa anthu omwe ali ndi cystic fibrosis amatha kusinthana, kutanthauza kuti mapapo onsewa amalowa m'malo mwake. Mapapu odzazidwa sadzakhala ndi majini anu, kotero iwo sadzakhala ndi CFTR mutation yomwe imayambitsa CF. Mapapu anu atsopano adzatha kunyamula mchere ndi madzi moyenera, kotero iwo sangakhale ndi mavuto ndi matenda akuluakulu a mucus ndi mapapo amene mapapu anu ali nawo.
Mudzakhalabe ndi CFTR mutation m'magulu ena, monga pancreas ndi sinuses. Mudzasowa kutenga michere kuti ikuthandizeni kudyetsa chakudya ndikupewa kuchepa kwa zakudya. Mudzapitirizabe kutenga kachilombo ndi matenda ena opuma opuma omwe angafalikire ndi kutsegula mapapu anu atsopano.
Kutenga Mankhwala Pambuyo Kusamuka
Mutatha kuika, mutenga mankhwala kwa moyo wanu wonse, koma adzakhala mankhwala osiyana kusiyana ndi momwe mumagwiritsira ntchito. Mmalo mowa mankhwala kuti akuthandizeni kupuma, mutenga mankhwala angapo kuteteza mapapu anu atsopano ndikuletsa thupi lanu kuti lisakane.
Mmene Mungapezere Mndandanda Wosakaniza Mapulogalamu
Dokotala wanu atasankha kuti mukufunika kupatsa mapapo, mudzayesedwa ndi gulu lokulitsa. Ngati mukumana ndi zofunikira, mudzayikidwa pa mndandanda wa anthu akudikira. Wopereka atakhalapo, limba limapita kwa munthu woyamba pa mndandanda umene uli woyenera.
Ndidzadikira Kutalika Kwambiri Mpaka Liti?
Kutalika kwa nthawi yomwe mukufuna kuyembekezera sikungathe kuneneratu. Idzatsimikiziridwa ndi kupezeka kwa wopereka ndi malo anu pandandanda. Potsatila mapapu, pali mndandanda wosiyana wa anthu akuluakulu ndi ana, ndipo m'badwo uliwonse uli ndi zoyenera zawo.
Akuluakulu: Mndandanda wodikira mndandanda wa anthu a zaka zapakati pa 12 ndi zapakati umatsimikiziridwa ndi chinachake chotchedwa Lung Allocation Score (LAS). Ndondomeko ya LAS, yomwe inakhazikitsidwa ndi United Network for Organ Sharing (UNOS) mu 2005, ikuyang'ana kuvutika kwa matenda ndi mwayi wopulumuka ndikugawa chiwerengero cha pakati pa 0 ndi 100.
Anthu omwe ali ndi masewera apamwamba amaonedwa kuti ali ovomerezeka kwambiri ndipo amaikidwa pamwamba pa mndandanda wa kuyembekezera. LAS mawerengedwe amafufuzidwanso osachepera miyezi isanu ndi umodzi.
Ana ochepera zaka khumi ndi ziwiri: Mndandanda wadikira wa ana a zaka zosachepera khumi ndi awiri (12) akuyendabe, yoyamba kutumikiridwa. Udindo pa mndandanda umatsimikiziridwa kokha ndi nthawi yayitali.
Kuthamangira kwa Kupulumuka Pambuyo Kusamba
Malingana ndi lipoti la 2008 la Scientific Registry of Transplant Recipients (SRTR), pafupifupi anthu 80% onse omwe amapatsidwa mapapo amatha kupuma chaka chimodzi mutatha kuziika ndipo pafupifupi 50% akukhalabe ndi moyo pambuyo pa zaka zisanu.
Zotsatira:
Cystic Fibrosis Foundation. Registry Registry 2006 Annual Data Report.2008.
Olemba Zipangizo Zogwiritsa Ntchito Sayansi. "SRTR Analysis" October 2008.
United Network for Sharing Sharing. "LAS calculator". February 2009.